MY Reality with the number of Treatments

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  • krystiesq
    krystiesq Member Posts: 240 Member
    all i can say phillieg is...
    You da man!
  • PhillieG
    PhillieG Member Posts: 4,866 Member

    Init for the long haul, too!
    Thanks, Phil, for posting this. I have been fighting now for 18 months and I just spoke to someone I thought was a friend say "Is it really worth it?" I almost climbed through the phone to wring her neck, but then I thought,people have no idea what it takes to fight this beast and I guess we have to educate some of them. This friend has a husband who had a major stroke and needed serious rehab for many months and has been on disability now for many years. I almost asked her if it was "worth it" for him.
    I have been chronicling my struggle, also, for many months and am so grateful for the support of all my friends here that truly understand.My odds are not good and the chemo and 4 surgeries were brutal, but I have a family to raise and God will get me through all of this; I also believe it is his decision when I am done with this fight and nor someone standing on the sidelines. Like you, I would love for my doc to tell me I'm NED, but if that doesn't happen at least I know that I haven't given up without trying my best.
    Your struggle just makes me realize that I can do this today ,tomorrow and for however long it takes to be cancer-free. Keep telling it like it is. We can take it! There is always hope in any situation; and even if this cancer beats me, I will be o.k. and my family can be proud that their mom did everything she could to stay with them and is now watching over them.
    Good luck in your continued battle!! You have given me strength for today and I thank you!
    Much love,
    Hollyberry

    Nice Friend :- (
    Having cancer freaks some people out. They don't know how to handle the situation at all. I've found it to be something can tighten a friendship, created a new one, or destroy an old one. We all handle things in our own ways, who's to say what it right or wrong but your 'friends' comment was on the dopey side I think. I think some folks think it's a death sentence or something. There are plenty of "us" out there. People living with cancer. I can relate to your situation Hollyberry, surgeries are so hard on the body and chemo is not much better and it is truly a grind. What keeps me going the most are my wife and kids. My little guy will be 9 in 2 weeks. Only 9. I HAVE to make sure I am around for a good while longer.

    You have such a wonderful attitude HollyB, you are an inspiration to me. All we can do is to do the best that we can and hope (or pray) for the strength to continue.
    Keep it up...
    -phil
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Buzzard said:

    Phil.......
    I certainly don't want to sound like "Yes , follow me to NED" , but to me that is what all newbies of this disease and old timers all want. To expect that all will be or remain there is probably not a reality but I am here to make people think of other things than a life with cancer or chemo. I understand that I may have a reoccurence also even though no nodes were involved I still have a 15% chance of it coming back, but I won't dwell on it. I will live everyday as if its my last and I will not dwell on something that is not there until it shows its face then and only then will I give it a second thought, for to let it run your life to me is giving into it, and no one does that. I do know what reality may do but I also know that without hope all is lost. I hope you don't find this as a rebuttle to you. It isn't , its just my thinking of the way that I handle this situation and I think what others new to this like to hear. There has to be some type of light at the end of the tunnel or whats the use. I am only here trying to give light when there is nothing but despair in some of these peoples lives....I know what this disease can do, I watched it with my father, but I also know that if I dwell on it that it will only get worse for me, and I just consider others that may want to hear of simply the surviving when all cancer use to be was a death sentence, not so anymore....and yes, you have a great attitude towards it, whatever it takes to get through .....I do take a lot of heart in all of your posts, and regret that you have been at it for 5 plus years. I do hope that meds catch up to us all and rid us all of this mess...I do understand how you feel........God Bless ya bud

    Living a good quaitly life
    Buzzard, I didn't get the impression that your post was a rebuttal. I would think none of us every thought we'd be where we are at right now and we all would LOVE to be NED. I feel I am here to let people know that life goes on, and a pretty decent one at that. I do remember back when I first was dx and there was the plan that after this and that was done, I'd be cured. After about 3 years of this (and that) it hit me that I will most likely have to live with cancer. Someone earlier in this thread mentioned about how more and more people are doing just that, living with cancer. I do remember when I came to this conclusion that I was devastated, that wasn't in the plan. I think it's important for people who are new or been at it for a while to know that this can happen sometimes.
    I know I post things that people don't normally post. I certainly don't want to scare anyone but things don't always turn out like the original plan. We can all hold hands and sing "We Are The World" but that isn't going to make the cancer go away or stop people from killing each other all over the world.
    One of the greatest "gifts" of cancer (I've found) is that it's a wakeup call that we are all going to die so do life everyday like it's your last. For any number of reasons it very well could be our last day and not because of cancer. I hope that people can see by my posts that we can often live past what the stats say and that there is still a good quality of life after cancer.

    I wish everyone the best with their dealing with this disease and with their lives in general.
    -phil