I'm almost speechless

dorion
dorion Member Posts: 183
edited March 2014 in Ovarian Cancer #1
I am so tired that I don't even know if I can get all this off my chest. I need to cos I need someone to tell me something other than the crap I've been getting lately. First of all the cancer has now spread to my intestnal area causing bowel obstructions, I've had to take myself to the er twice with unbearable pain. Since then the ct scan confirmed what I already knew and then I'm being seen by different oncologist everytime I go there. The last one is a young girl who I don't think that oncology is going to be what specializes in but she had to freaken gull to tell me that I have 2 years to live!!!!!!!!!!!!!!!!! C'mon, I thought I've been through all this already. It's stage 3c, does that mean I'm a gonner in 2 years???? Can someone here tell me that they've most certainly been around longer than my aloted time? I'm sure she doesn't know what she's talking about and how can they send these damn people to see people like us an then have the nerve to just blurt this out. Sorry I'm really really angry. I started round 2 yesterday, 1 of 5 more treatments, they are giving the same carbo/taxol. Well another hairless summer, least of my concerns now...........I'm going to kick some butt tomorrow. I went from the beginning of my diagnosis to getting my head wrapped around this disease and having a real possitive attitude to back to square one again and needed someone to tell me different. I'm not sounding to intellegent right now I know, sorry. Love to all you ladies. I don't want to bring anyone down.

Linda

Comments

  • green50
    green50 Member Posts: 312
    #2
    Only God KNows I am still here after 7 years!!!
    How can anyone say that you have only 2 years? NO one and I repeat no one knows when we leave this world and what from. I have had known ovarian stage 3 cancer for 7 years! I am 51 years old. Probably 11 with precancerous conditions. I have known some to be still taking chemo off and on as I do and they are here after 13 years. I would say its time to get a permenant oncologist from a Cancer Center and those who will give you encourgement. The so called statistics say 5 to 10 years but I have known a lot who out live that. I also know of a woman who had it come back once and now is cured! I am angry when people give a time frame. They are not God! We all handle things differently physically and mentally and it is good to stay positive and as unstressed as possible. I hope this helped and a special hug to you.
    Prayers and Hugs
    Sandy
  • saundra
    saundra Member Posts: 1,370 Member
    #3
    No one knows
    I would just laugh if an oncologist said that to me. Tell me that God is not a young blonde babe!!!
    Still, I am sorry you have to start chemo again. Aren't you in Canada? Seems like I remember that from past posts. Is that why you get different oncologists?
    You have every right to vent this anger here. Vent it and put it in a sack. They we'll show her!!! Keep up the fight, Linda. We've got a lot left in us. ☆☆☆☆Saundra
  • carol2dogs
    carol2dogs Member Posts: 132
    #4
    3 Years and Expecting Many More
    Linda,
    You have every right to be incredibly angry! Only an oncologist who does not know much about ovarian cancer would ever presume to know how long any one individual with this disease will live! Look how many Stage IV survivors we have on this board, and I bet you they have all out-lived any predictions or statistics.
    I am stage IIIC and I certainly expect to live way past the five year mark. As other Teal Warriors have already said here, only God knows how much time we have. Any of us could be run over by a truck tomorrow, including that oncologist.
    We have all learned to advocate for ourselves, even with the best docs. You go, girl, and make them give you some legitimate information!
    You have our prayers and hugs and support and love!
    Carol
  • Dreamdove
    Dreamdove Member Posts: 175 Member
    #5
    carol2dogs said:

    3 Years and Expecting Many More
    Linda,
    You have every right to be incredibly angry! Only an oncologist who does not know much about ovarian cancer would ever presume to know how long any one individual with this disease will live! Look how many Stage IV survivors we have on this board, and I bet you they have all out-lived any predictions or statistics.
    I am stage IIIC and I certainly expect to live way past the five year mark. As other Teal Warriors have already said here, only God knows how much time we have. Any of us could be run over by a truck tomorrow, including that oncologist.
    We have all learned to advocate for ourselves, even with the best docs. You go, girl, and make them give you some legitimate information!
    You have our prayers and hugs and support and love!
    Carol

    21 months here!
    My doctor (a gynelogical oncologist), if guilty of anything, would be guilty of being overly optimistic. Yet I have read other things, from other sources, such as the Mayo Clinic. I didn't think I'd make it after reading all that stuff. The statistics are not good for stage 3 or even 4 but yet so many women are still here, on this site, even. You read the statistics on how many women die every year from ovarian cancer, but who is dying? Not the women on here. Not me.
  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    #6
    I can't even IMAGINE how a statement like that would affect me!
    What a statement: 2 years to live! That would send anyone into a tail spin! And then you start thinking about it, get justifiably ANGRY, and start considering the source. You have a LOT longer than 2 years to live, so don't let her shake you. My oncologist has told me that UPSC has the same type of prognosis as ovarian cancer, and I am Stage III-c UPSC, and he thinks I will come out of treatment CURED!! ((((((Linda))))))
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #7
    Echoing The Other Responses
    Hi Linda, I just want to echo what the others have said. Dr's can only compare you to the stats they see, but they have no crystal ball and do predict that far into the future is bizarre. Hugs Bonnie
  • JoanC
    JoanC Member Posts: 231 Member
    #8
    Beyond speecless!
    Linda,
    WOW, a doctor and to be that ignorant..or is she just that arrogant ...As everyone else has said only God knows when our time on earth is finished and we go on to better. Keep the faith. Many have and are living way beyond anyones expectations......new drugs and possibly even a cure will found....just around the corner. Prayers and hugs that your mind will ease from this awful experience.
    ((HUGS)) Joan
  • JanQ
    JanQ Member Posts: 236
    #9
    live!!!!!!
    I agree with everyone else, I really think we know more than the doctors. Last week was when they told my husband if I quit chemo I would have 6months to a year. You listen you vent and then you get up again. God is in contol, the doctors do what they can. I think they are surprised that I am still here because my anniversary date was Dec 3 2008 5 Years.
    So we all get mad sometimes and have to vent but then you put things in perspective and realize they don't really know, and most of them look strickly at the stats. I think it would be good if they would add some things we tell them to there research and people may step back and think we can contol this even at late stages. I am stage 3c and I really don't think my doctor expected me to make the 5 year mark, but I am here and I plan on staying a while! Love and Hugs to you.
    I have thought about maybe going to the American Cancer Center, at first I thought it wasn't necessary but you know they deal with the whole body- mind, body and soul.
  • JoanC
    JoanC Member Posts: 231 Member
    #10
    saundra said:

    No one knows
    I would just laugh if an oncologist said that to me. Tell me that God is not a young blonde babe!!!
    Still, I am sorry you have to start chemo again. Aren't you in Canada? Seems like I remember that from past posts. Is that why you get different oncologists?
    You have every right to vent this anger here. Vent it and put it in a sack. They we'll show her!!! Keep up the fight, Linda. We've got a lot left in us. ☆☆☆☆Saundra

    New Picture Saundra
    I like your new picture. It makes you look very happy and younger.
    Joan
  • mopar
    mopar Member Posts: 1,972 Member
    #11
    TIME TO FIND A GOOD DOCTOR
    Linda:

    Sorry to hear you are going through this. I think that doctor was way out of line. She doesn't know you, your whole situation, and as all the other ladies said, 'she is NOT God'. I hope that everything else they've said has given you encouragement.

    I also remember that you live in Canada. I've heard many times that the health care system isn't that great. I pray we don't go down that path (such as socialized medicine). It's difficult already to find good doctors and get our insurance to cover services and meds and treatments sometimes. I'm blessed to have a very good doctor and good health insurance. But pretty soon I won't be able to afford the insurance and then I don't know what I'll do.

    So much for me. You take care, Linda. Don't let anyone rob you of your hope and your strength. If we can be of any more help we will. So don't hesitate to come back. You can 'vent' anytime!

    Luv & Hugs & Prayers,
    Monika
  • bansheecat
    bansheecat Member Posts: 3
    #12
    time left
    My husband had TC cancer. He was given a 5% chance to live with treatment. 30+ years later he is still here. While he was in the hospital he had a guy in the bed next to him. He was in for a hernia operation..something very minor in comparison. That guy wouldn't follow directions or take his meds. Had a horrible outlook on life and never laughed. Glenn was in the room when the guy ended up dieing.

    Never give up, never stop laughing, only one knows when our time is truely up.
  • rasunshine
    rasunshine Member Posts: 28 Member
    #13
    bansheecat said:

    time left
    My husband had TC cancer. He was given a 5% chance to live with treatment. 30+ years later he is still here. While he was in the hospital he had a guy in the bed next to him. He was in for a hernia operation..something very minor in comparison. That guy wouldn't follow directions or take his meds. Had a horrible outlook on life and never laughed. Glenn was in the room when the guy ended up dieing.

    Never give up, never stop laughing, only one knows when our time is truely up.

    Bald is Beautiful
    I went two summers with a shiny head...I was the solo member of the BTHL aka bald, tanned, hooped earring, ladies.And I loved every minute of being the President.People say you have the look.I call it the look of the LOVE.. To me having cancer is like the phrase..Life is like a box of chocolates, you never know whatcha going get. I am on my mission of curing my own body.Take a look at the Graviola website. I just started taking it along with the Stomach-EZ. Heck, it is the rainforest bark that destroys cancer cells and since the scientists cannot patent a plant, they reproduce it adding harmful chemicals and call it Taxol..which not only destroys cancer cells but also your good cells and then sits in your body in hidden areas for a long time..about 50-60 percent you get rid of, but where does the rest of go...???? There are other avenues that you can take and I am researching them all and not waiting for the Medical society to find the magic pill.Which probably will have a long list of side effects that are harmful. Geting back to this person with the ugly words, I would call her on line about what she said. You are going to beat this..and 2 years is a drop in the bucket to the years that you are going to light up the earth with your presence..remember.."we are to eat from the fruits of the earth". Put a smile on your face, a song in your heart and always remember to Let the sun shine in..STAY WELL, My prayers,
    rasunshine
  • green50
    green50 Member Posts: 312
    #14
    rasunshine said:

    Bald is Beautiful
    I went two summers with a shiny head...I was the solo member of the BTHL aka bald, tanned, hooped earring, ladies.And I loved every minute of being the President.People say you have the look.I call it the look of the LOVE.. To me having cancer is like the phrase..Life is like a box of chocolates, you never know whatcha going get. I am on my mission of curing my own body.Take a look at the Graviola website. I just started taking it along with the Stomach-EZ. Heck, it is the rainforest bark that destroys cancer cells and since the scientists cannot patent a plant, they reproduce it adding harmful chemicals and call it Taxol..which not only destroys cancer cells but also your good cells and then sits in your body in hidden areas for a long time..about 50-60 percent you get rid of, but where does the rest of go...???? There are other avenues that you can take and I am researching them all and not waiting for the Medical society to find the magic pill.Which probably will have a long list of side effects that are harmful. Geting back to this person with the ugly words, I would call her on line about what she said. You are going to beat this..and 2 years is a drop in the bucket to the years that you are going to light up the earth with your presence..remember.."we are to eat from the fruits of the earth". Put a smile on your face, a song in your heart and always remember to Let the sun shine in..STAY WELL, My prayers,
    rasunshine

    Thanks for the info
    Thanks for the info Rasunshine. And may we all be dancing soon to our cure. How and where do you get the Graviola? And I would be saying something to those drs. too about the time. Hmm. Still upsets me they told her 2 years. Wow I am still shocked.
    Prayers and Hugs to all
    Sandy
  • LPack
    LPack Member Posts: 645
    #15
    God's Call Only
    Linda,

    I agree with the other ladies. And God is the author of our birth and our death. He decides when our days on earth are done.

    I am going Home when He calls me whether from cancer, car wreck, or old, old age, but no one else has the right to tell us how long we will live.

    My onc/gyn did tell my husband that if my chemo didn't work, I had 18 months probably. We just took that with a grain of salt because we have had other relatives with cancers (both moms, father-in-law) and knew that when diagnosed they always tell you what they think COULD happen.

    I will say a prayer for you now that God will lift this burden off your shoulders.

    Love,
    Libby
  • dorion
    dorion Member Posts: 183
    #16
    whoa!!!
    Ladies, Ladies, my beautiful Ladies, you are all so absolutely freaken amazing and you really make me feel so damn humble! I can't even express my appreciation and gratitude for all of your responses and feedback. I knew I could vent and count on some real possitive words of encouragement here, what was I thinking eh? Yes I'm still in Canada and yes socialized medicine is becoming a bad word for me here too now.

    I will fight this thing and I just really needed to hear you guys and know once again that Im not alone, reminds me once again to take hold the good things in life. You guys are all heaven sent to me, and I thank you all so much. I will read this and reread it til it becomes woven in my brain cells. I love all of you so much.....ok, now I"m back in the saddle again........watch! I'm feeling a bit yukky from the chemo so I'm taking it easy, this time around it's just me and my beautiful Meghan together in our own place with no one to bother us and make me feel bad for being sick. That's a good place to be. I'll check in on u ladies later. My love and thanks each and every one of you. You Ladies mean the world to me.......always!

    Linda
  • Bstrange
    Bstrange Member Posts: 87
    #17
    No Way!
    Unless she has a direct line to God I don't think she knows anything. I know of a lady that was told she had several years and it's going on 20! Hang in there. Do not let humans discourage you. God is the one you listen too.
    love,
    Barbara Strange
  • Bstrange
    Bstrange Member Posts: 87
    #18
    No Way!
    Sorry I posted twice. :)
  • kris43
    kris43 Member Posts: 275
    #19
    dorion said:

    whoa!!!
    Ladies, Ladies, my beautiful Ladies, you are all so absolutely freaken amazing and you really make me feel so damn humble! I can't even express my appreciation and gratitude for all of your responses and feedback. I knew I could vent and count on some real possitive words of encouragement here, what was I thinking eh? Yes I'm still in Canada and yes socialized medicine is becoming a bad word for me here too now.

    I will fight this thing and I just really needed to hear you guys and know once again that Im not alone, reminds me once again to take hold the good things in life. You guys are all heaven sent to me, and I thank you all so much. I will read this and reread it til it becomes woven in my brain cells. I love all of you so much.....ok, now I"m back in the saddle again........watch! I'm feeling a bit yukky from the chemo so I'm taking it easy, this time around it's just me and my beautiful Meghan together in our own place with no one to bother us and make me feel bad for being sick. That's a good place to be. I'll check in on u ladies later. My love and thanks each and every one of you. You Ladies mean the world to me.......always!

    Linda

    You ROCK!!
    Linda - I just love when you post. Whether you are happy or angry you always get people buzzing and really telling it like it is. We NEED that!! I'm so glad the ladies responses have put you back in the right frame of mind. I know what it is like to walk out of the doctors office angry - and when you let that anger hold on (which I have!)- it is taking much needed peace of mind away from you and your fight against this wicked disease. If everyone was given a "time frame" what would this world be like? There are new things going on every day - so you go and give them hell, stand up for yourself and don't back down.

    I think you said that you moved to where you are to be closer to people but that you felt like everyone had left you - but we are right here, any time you need us.

    Hang in there my friend. Hugs to you!!

    Kris

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