CT Scan
Comments
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I'M DANCING WITH NED!!!!lindaprocopio said:I think it was 3 days before I got my CT scan results.
I got my last CT scan on a Friday, and they had my results for me when I was getting my chemo the next Monday. For my first CT-scan it was 5 days I think; I remember calling a couple of times, impatient to know. (((Marge)))
MIND, BODY & SOUL.
HUGS!!0 -
WOO! WOO! Dance on, Marge!!!shortmarge said:I'M DANCING WITH NED!!!!
MIND, BODY & SOUL.
HUGS!!
I'm so HAPPY for you!! I KNEW it would be NED, but it's still a thrill and a relief when you get the good word that all is right with the world! (((((Marge)))) (happy hugs)0 -
That is fantastic newsshortmarge said:I'M DANCING WITH NED!!!!
MIND, BODY & SOUL.
HUGS!!
That is fantastic news Marge!!! So encouraging!! How long has it been now? I am taking my mom for her check up on Feb. 25th... I'm a tad nervous...
I'm so happy for you!! Celebrate!0 -
Great news Margeshortmarge said:I'M DANCING WITH NED!!!!
MIND, BODY & SOUL.
HUGS!!
I am so happy that you are Dancing with NED. Hopefully you had a dance with your wonderful husband, too. That has to be such a relief for you and your family. That will help you enjoy your vacation much more. Celebrate. We all hope to dance with NED.0 -
Dancing with NEDRo10 said:Great news Marge
I am so happy that you are Dancing with NED. Hopefully you had a dance with your wonderful husband, too. That has to be such a relief for you and your family. That will help you enjoy your vacation much more. Celebrate. We all hope to dance with NED.
WHOO HOO,
Congrats Marge! So happy for you and thanking the Lord.0 -
DANCING WITH NEDshortmarge said:I'M DANCING WITH NED!!!!
MIND, BODY & SOUL.
HUGS!!
I am very new here and what a day to read that someone is dancing with NED. I have 1 more treatment to go then wait 2 weeks to get my ct scan. I am very nervous because this is a mets to the lungs after 1 year of having radiation and radical hysterectomy. I had carbo/taxol treatments and side effects were terrible except this time I feel great (#5). I have been getting the booster shots for white and red blood cells and they are working.
Again, I am so happy to hear your news. Live with hope.
Sharon0 -
Hi, Sharon! Welcome!fuzzytrouble said:DANCING WITH NED
I am very new here and what a day to read that someone is dancing with NED. I have 1 more treatment to go then wait 2 weeks to get my ct scan. I am very nervous because this is a mets to the lungs after 1 year of having radiation and radical hysterectomy. I had carbo/taxol treatments and side effects were terrible except this time I feel great (#5). I have been getting the booster shots for white and red blood cells and they are working.
Again, I am so happy to hear your news. Live with hope.
Sharon
Happy that you have found us, and welcome! What kind of cancer are you fighting? You must be excited to be closing in on the end of your treatment regime. I still have 2 more rounds of chemo that I need to get in me if my platelets come up good enough to push on, and all my radiation is still ahead. It seems like I've been at this so LONG already, and yet won't be done until summer. Quite a few of our UPSC Sisters are dancing with NED now, and they all give us hope that we will get our turn on the dance floor, too.0 -
I welcome you too Sharonfuzzytrouble said:DANCING WITH NED
I am very new here and what a day to read that someone is dancing with NED. I have 1 more treatment to go then wait 2 weeks to get my ct scan. I am very nervous because this is a mets to the lungs after 1 year of having radiation and radical hysterectomy. I had carbo/taxol treatments and side effects were terrible except this time I feel great (#5). I have been getting the booster shots for white and red blood cells and they are working.
Again, I am so happy to hear your news. Live with hope.
Sharon
I am glad you found the website. I have found it very informative. We appreciate hearing from those who have completed or are close to completing their treatment plans. I am just starting my treatment program. Had the 2nd chemo treatment today. Hope the three weeks following go as well as they did the first treatment. Except for losing my hair, I would have not known I had any medications. I do have problem the day of treatments, but did not afterwards. I too hope you get to dance with NED, soon.
Tell us a little more about yourself. Maybe you have it posted somewhere else, and I just have not found it yet. Again I am happy you have joined our group. I wish you did not have the problem to join us though,0 -
Welcome SharonRo10 said:I welcome you too Sharon
I am glad you found the website. I have found it very informative. We appreciate hearing from those who have completed or are close to completing their treatment plans. I am just starting my treatment program. Had the 2nd chemo treatment today. Hope the three weeks following go as well as they did the first treatment. Except for losing my hair, I would have not known I had any medications. I do have problem the day of treatments, but did not afterwards. I too hope you get to dance with NED, soon.
Tell us a little more about yourself. Maybe you have it posted somewhere else, and I just have not found it yet. Again I am happy you have joined our group. I wish you did not have the problem to join us though,
I like that.... fuzzytrouble! LOL. Welcome to our group. I'm sorry about your diagnosis, but glad that you came here and found us. We are all in various stages of our treatments, so there is a lot of support here.
Glad to hear that you only have one treatment left. I have 4 chemo treatments left and as long as I have no postponements, will be done the first week of May. I finished my 28 radiation treatments in December. I had total hysterectomy in September. Oh... and got married in November in the middle of my radiation treatments. LOL. Life is good, isn't it?!
If I could just grow my hair back now...
Glad to have you. Take Care
Deanna0 -
mets to the lungs endometrial cancerlindaprocopio said:Hi, Sharon! Welcome!
Happy that you have found us, and welcome! What kind of cancer are you fighting? You must be excited to be closing in on the end of your treatment regime. I still have 2 more rounds of chemo that I need to get in me if my platelets come up good enough to push on, and all my radiation is still ahead. It seems like I've been at this so LONG already, and yet won't be done until summer. Quite a few of our UPSC Sisters are dancing with NED now, and they all give us hope that we will get our turn on the dance floor, too.
Hi Linda, I have mets to the lungs from my endometrial cancer which was staged at 1 grade 2b.
I had a radical hysterectomy then 27 radiation treatments in Aug and Sept. of 2007. I was going along without a care in the world until I got leg pain in my left leg which led to a ct scan which led to carbo/taxo treatments. I too had plenty of anemia, with low platelets, and so I have 2 shots to get every time I get a treatment. The side effects from the Neulasta gives me terrible bone aches but i have a pill for that too. I am in shock still to find out that it traveled. The lung nodes are very small so here's hoping the treatments will put it in remission. My doctor told me it was not curable but remisson is about 75%. I will take it.
It does seem like it's been forever doing this and now that I am close to the last treatment I am scared. Every little pain, and here comes the cancer head.
Thank you again for getting the discussion for endometrial it's own heading.
Sharon0 -
Thank youRo10 said:I welcome you too Sharon
I am glad you found the website. I have found it very informative. We appreciate hearing from those who have completed or are close to completing their treatment plans. I am just starting my treatment program. Had the 2nd chemo treatment today. Hope the three weeks following go as well as they did the first treatment. Except for losing my hair, I would have not known I had any medications. I do have problem the day of treatments, but did not afterwards. I too hope you get to dance with NED, soon.
Tell us a little more about yourself. Maybe you have it posted somewhere else, and I just have not found it yet. Again I am happy you have joined our group. I wish you did not have the problem to join us though,
I posted to Linda telling how I ended up with all you wonderful people fighting for the same reasons. How are you doing after your 2nd round and what are cocktail are you getting?
The worst of all this was losing my hair, not only did mine hurt while it was falling out but I buzzed cut it myself and scared my husband. I am not one of those beautiful bald ladies. I am just about to lose all my eyebrows and eyelashes too. I had bushy type of eyebrows so I still have a few strands left of them. I got real tired of my hats and scarves too, so I found a pattern to sew for myself. It's a baseball type of style and it's all cotton material with ties in the back and it doesn't slide all over the places.
Let us know how you are doing.
Sharon0 -
Thank youdeanna14 said:Welcome Sharon
I like that.... fuzzytrouble! LOL. Welcome to our group. I'm sorry about your diagnosis, but glad that you came here and found us. We are all in various stages of our treatments, so there is a lot of support here.
Glad to hear that you only have one treatment left. I have 4 chemo treatments left and as long as I have no postponements, will be done the first week of May. I finished my 28 radiation treatments in December. I had total hysterectomy in September. Oh... and got married in November in the middle of my radiation treatments. LOL. Life is good, isn't it?!
If I could just grow my hair back now...
Glad to have you. Take Care
Deanna
Hi Deanna, thank you for your welcome. Fuzzytrouble is my cat's name and it goes will with my hair status right now. lol
How did your radiation treatments go? I had them after my hysterectomy and had a few problems but they had a pill for everything I was going through. I am with you as far as the hair goes, I miss mine so much. Do you wear a wig?
Sharon0 -
How are you feeling these daysshortmarge said:I'M DANCING WITH NED!!!!
MIND, BODY & SOUL.
HUGS!!
Hello Shortmarge, What did you do for celebration on your results from the CT scan?
Sharon0 -
I don't like the wig!fuzzytrouble said:Thank you
Hi Deanna, thank you for your welcome. Fuzzytrouble is my cat's name and it goes will with my hair status right now. lol
How did your radiation treatments go? I had them after my hysterectomy and had a few problems but they had a pill for everything I was going through. I am with you as far as the hair goes, I miss mine so much. Do you wear a wig?
Sharon
Hi Sharon,
The external radiation was very tiring, but the other symptoms were very manageable. I carried Imodium around with me, but as long as I was careful about what I ate I didn't have much trouble. Internal radiation was physically not so bad, but emotionally very degrading and humiliating. I knew I had to focus on the positives and just get through it and I did. I pray I won't have to endure that again!
I am doing pretty well with Chemo. I am getting Carboplatin and Taxol every 21 days with the Neulasta injections the day after chemo. My WBC's weren't very good last time, but the ANC was okay so I got to have my treatment that day. This time I am feeling very tired and can pretty much go to sleep whenever I sit still for very long. I hope that doesn't mean my counts are low. I will find out on Monday when I am scheduled for chemo #3. I hope I won't have to postpone any treatments. I haven't had much trouble other than being tired. I have actually gained a lot of weight since surgery. Story of my life... I can't sneeze without gaining weight. The doctors keep telling me not to worry about it until after I finish treatment.
I have tried a couple of times to wear my wig, but it is too hot and itchy. I have a lot of hot flashes and I keep getting a heat rash on my head! I would like to have a pony tail to wear under my caps. I too am getting tired of the hats and scarves that I have. Oh well... I will make do. I have tossed around the idea of just going commando... no scarve or cap. It is still a little cold for that around here. LOL0 -
gaining weightdeanna14 said:I don't like the wig!
Hi Sharon,
The external radiation was very tiring, but the other symptoms were very manageable. I carried Imodium around with me, but as long as I was careful about what I ate I didn't have much trouble. Internal radiation was physically not so bad, but emotionally very degrading and humiliating. I knew I had to focus on the positives and just get through it and I did. I pray I won't have to endure that again!
I am doing pretty well with Chemo. I am getting Carboplatin and Taxol every 21 days with the Neulasta injections the day after chemo. My WBC's weren't very good last time, but the ANC was okay so I got to have my treatment that day. This time I am feeling very tired and can pretty much go to sleep whenever I sit still for very long. I hope that doesn't mean my counts are low. I will find out on Monday when I am scheduled for chemo #3. I hope I won't have to postpone any treatments. I haven't had much trouble other than being tired. I have actually gained a lot of weight since surgery. Story of my life... I can't sneeze without gaining weight. The doctors keep telling me not to worry about it until after I finish treatment.
I have tried a couple of times to wear my wig, but it is too hot and itchy. I have a lot of hot flashes and I keep getting a heat rash on my head! I would like to have a pony tail to wear under my caps. I too am getting tired of the hats and scarves that I have. Oh well... I will make do. I have tossed around the idea of just going commando... no scarve or cap. It is still a little cold for that around here. LOL
Hi Deanna, I too have my ups and downs for the weight gain but I think it's the fluid build up after the treatments. I lost weight during radiation but soon put it on after it was over. I did not have the internal radiation and from what I read it's not pretty but at least you give insight for others having to go through this. After I lost my hair I had pimples all over my head and they hurt so much, now I just get one or two now and again, they told me it was the pores getting infected but it would go away.
It's too cold for me here in Oregon to go without a hat and I just can't do it, I have to have a cap on when I go out.
I was very tired all the time and it was because I was anemic and my red blood cells were very low. I have had 2 booster shots so far for that and I feel pretty good now. I bet that's what is wrong with you, it's pretty common for us all on chemo. Doesn't it stick that we can't just be ourselves anymore? That's what bothers me the most with all this. I try to keep upbeat but it sure is a struggle.
Well I sure hope you don't delay any of the treatments I know how it is to want to get it done. I did go for four weeks in between and that helped alot.
Take care,
Sharon0 -
Being tiredfuzzytrouble said:gaining weight
Hi Deanna, I too have my ups and downs for the weight gain but I think it's the fluid build up after the treatments. I lost weight during radiation but soon put it on after it was over. I did not have the internal radiation and from what I read it's not pretty but at least you give insight for others having to go through this. After I lost my hair I had pimples all over my head and they hurt so much, now I just get one or two now and again, they told me it was the pores getting infected but it would go away.
It's too cold for me here in Oregon to go without a hat and I just can't do it, I have to have a cap on when I go out.
I was very tired all the time and it was because I was anemic and my red blood cells were very low. I have had 2 booster shots so far for that and I feel pretty good now. I bet that's what is wrong with you, it's pretty common for us all on chemo. Doesn't it stick that we can't just be ourselves anymore? That's what bothers me the most with all this. I try to keep upbeat but it sure is a struggle.
Well I sure hope you don't delay any of the treatments I know how it is to want to get it done. I did go for four weeks in between and that helped alot.
Take care,
Sharon
I wonder about the anemia. My Hgb was 11.0 prior to my last treatment which is on the low side of normal. I guess I will find out on Monday. I have been trying to increase protein in my diet and have eaten steak a couple of times since the last treatment. I hope it works. I went to the store today and I have to drive about 15 minutes and had trouble staying awake for that. I have a feeling I probably won't be able to take a treatment on Monday.0 -
When they told me that I was anemic i asked what I could do to bring it up as far as diet and supplement and they told me nothing could bring it up except the booster shot or waiting a extra week between treatments. Believe me I ate protein, red meat anything with a bit of iron and it did nothing. I hope you recover fast with your counts.deanna14 said:Being tired
I wonder about the anemia. My Hgb was 11.0 prior to my last treatment which is on the low side of normal. I guess I will find out on Monday. I have been trying to increase protein in my diet and have eaten steak a couple of times since the last treatment. I hope it works. I went to the store today and I have to drive about 15 minutes and had trouble staying awake for that. I have a feeling I probably won't be able to take a treatment on Monday.
take care,
Sharon0 -
I WENT TO FLORIDAfuzzytrouble said:How are you feeling these days
Hello Shortmarge, What did you do for celebration on your results from the CT scan?
Sharon
Sorry to hear about your diagnosis, but we are all here for you.
I spent five amazing, wonderful sunny days in Florida with Aunts and cousins. Had an absolute blast, lots of laughs! My energy level is getting better, my hair is growing back, even had man hairs on my chin yesterday and plucked them. I was excited about it, who would have thought you could get excited over man hair! My neuropathy is getting better too. There is life after radiation, chemo and major surgery!!!!!!
MIND, BODY AND SOUL!
Hugs.0 -
Glad to hear it!shortmarge said:I WENT TO FLORIDA
Sorry to hear about your diagnosis, but we are all here for you.
I spent five amazing, wonderful sunny days in Florida with Aunts and cousins. Had an absolute blast, lots of laughs! My energy level is getting better, my hair is growing back, even had man hairs on my chin yesterday and plucked them. I was excited about it, who would have thought you could get excited over man hair! My neuropathy is getting better too. There is life after radiation, chemo and major surgery!!!!!!
MIND, BODY AND SOUL!
Hugs.
Marge,
I am so happy to hear that you are gradually feeling better, that you had a great vacation and that there is life after these treatments. I pray that you gain strength and feel even better with each passing day.
I look forward to May when I can do the same!0 -
Life After Treatmentdeanna14 said:Glad to hear it!
Marge,
I am so happy to hear that you are gradually feeling better, that you had a great vacation and that there is life after these treatments. I pray that you gain strength and feel even better with each passing day.
I look forward to May when I can do the same!
I had an appointment this morning with my chemo oncologist, since he was off on Monday when I had my chemo. We needed to schedule my last (LAST!) round of chemo (tentatively scheduled for March 16th, with the realization that I will probably need an extra week again but we're going to draw blood at the 3 week interval and see if I can safely get my chemo on schedule for a change.) But the conversation was mainly on 'what's next?' Of course I still have all my radiation ahead, but he wanted to discuss HIS role with me going forward. He told me that I will have a CT-scan done again 2 weeks after my last chemo and before my radiation starts. He recommended a gynecologist who would join my 'team' for routine follow-up visits, since my gynecologic oncologist/surgeon is hours away from here. He told me that he will monitor me after treatment using 3 things: 1.) CA-125 which he considers a reliable marker for me, but of the 3 things they watch CA-125 is given the least importance. But if mine goes up it will trigger additional testing.; 2.) CT-scans; and 3.) pelvic exams. He said they rely on ME to let them know if I am having any bloating or pain or anything unusual. He seemed really pleased that I was experiencing very few side effects other than the low platelets and hemoglobin.
We talked a little about the 15 pounds I've gained, some of which is water weight from the steroids, but he wanted to be sure that I was EATING on the extra pounds and that it wasn't anything else and examined me to be sure. Everyone has warned me not to lose weight before the radiation. No worries there! Did any of you drop a lot of weight during pelvic radiation? I would love to lose the extra weight but not with diahrea!
Anyway, it just felt good to look BEYOND treatment with the doctor, out there with the 3-month monitoring visits, out there with eyelashes and eyebrows and hair! I can't wait to join you lucky NED-Sisters, probably in June or July for me (fingers crossed for luck!)0
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