Thyroid Cancer Chat

Georgyghee88
Georgyghee88 Member Posts: 5
edited March 2014 in Thyroid Cancer #1
Hi everyone!

There is a thyroid cancer chat in Room 2 on Monday nights between 8-9 PM Eastern Standard Time. Any patient or caregiver or interested party is welcome to attend. We do not exclude other cancer survivors from this chat, we merely try to stay on thyroid cancer topics to assist those in dealing with this type of cancer which is not treated the same as others. Thanks!

From the ThyCa girls and guys

Comments

  • jassie
    jassie Member Posts: 1
    #2
    Trying to get into room. My mom is heading for RA therapy on Wednesdy and terrified.
  • anatran
    anatran Member Posts: 1
    #3
    balancing hormonal levels
    Hi everyone,

    My sister is a thyroid cancer survivor (4 years) and is doing generally well, but lately her doctor has been having a hard time balancing her levels and she is feeling tired and her mood and weight have been constantly fluctuating. She has had a hard year emotionally, could this be a factor? Also, are there things she could do or use to help her body into balance, ie: alternative things like meditation, herbs, foods, etc

    Any suggestions are hugely appreciated!
    Thanks
    Ana
  • cboo1974
    cboo1974 Member Posts: 56
    #4
    oh man
    wish I could make it on Monday nights but I have to work. Have not met many other thyroid survivors in the lobby chat. Hopefully I will get an ocassional Monday off to join in.
    Cindy
  • cboo1974
    cboo1974 Member Posts: 56
    #5
    Disappointed
    So I went into chat tonight, I actually had tonight off. I have to say that I was disappointed. Only one other person showed up and that was valvester who was looking for more than just my support. I was really looking forward to being able to chat with others who have thyroid cancer. Even though the many people that I have met and call friends in chat are there to support me I would have really enjoyed being able to talk with others who have walked down the same road that I have. thank you valvester for trying to join the chat and I appologize on behalf of others who didn't make the chat happen tonight.
    Cindy
  • JimInSJ
    JimInSJ Member Posts: 3
    #6
    Is the chat room for Thyca
    Is the chat room for Thyca survivors still going on on Mondays? Anyone going to participate tomorrow?
  • jcvolt
    jcvolt Member Posts: 69
    #7
    cboo1974 said:

    Disappointed
    So I went into chat tonight, I actually had tonight off. I have to say that I was disappointed. Only one other person showed up and that was valvester who was looking for more than just my support. I was really looking forward to being able to chat with others who have thyroid cancer. Even though the many people that I have met and call friends in chat are there to support me I would have really enjoyed being able to talk with others who have walked down the same road that I have. thank you valvester for trying to join the chat and I appologize on behalf of others who didn't make the chat happen tonight.
    Cindy

    I am looking
    I am looking for people like me who have thyroid cancer and can't seem to get any answers.
  • Pd416
    Pd416 Member Posts: 2
    #8
    JimInSJ said:

    Is the chat room for Thyca
    Is the chat room for Thyca survivors still going on on Mondays? Anyone going to participate tomorrow?

    Pam
    I want to join the chat room for info I have thyriod cancer had 2 radiation treatments is any one 100% free of the cancer that you have heard from
  • jcvolt
    jcvolt Member Posts: 69
    #9
    Pd416 said:

    Pam
    I want to join the chat room for info I have thyriod cancer had 2 radiation treatments is any one 100% free of the cancer that you have heard from

    Celebrating
    TT on march 9 my doctor says I am done. The cancer was only 8mm so I don't need RAI or body scan! Starting on 100mcg levothyroxine tomorrow!
  • flygirlc
    flygirlc Member Posts: 30 Member
    #10
    Pd416 said:

    Pam
    I want to join the chat room for info I have thyriod cancer had 2 radiation treatments is any one 100% free of the cancer that you have heard from

    Other network
    Hi, My name is Caitlin and I was diagnosed on May 6 of 08, total thyroidectomy on the 12 (which turned out to be a good decision as the cancer had spread to the thyroid tissue itself so it saved me from a second surgery) and then had to do 2 months of external beam radiation therapy (unusual for thyroid cancer) followed by RAI in Oct and my first follow up scan in Jan. My scan came back totally clean and my thyroglobulin levels are almost zero. So I'm pretty lucky. I hope that is some help in regards to your question about being cancer free. The good news is that most forms of thyroid cancer are very very treatable. The bad news is that they treated the CRAP out of it!!! LOL
    As for a chat room, I work monday nights or I'd love to check it out. But I'm on myspace and there is a good thyroid cancer support group on there. They don't have a chat group (yet, but it's a good idea) but there are some very nice people on there and I made a lot of new friends. Just knowing that I wasn't going through it alone and having a bunch of people to talk to who were in all different stages of treatment made such a huge difference. I hope that is helpful to you! Good luck!
    PS. You might also want to check out www.thyca.org. they have a person to person network and could try to match you up with someone to talk to who has been through what you're going through.
  • fintia
    fintia Member Posts: 31
    #11
    jcvolt said:

    I am looking
    I am looking for people like me who have thyroid cancer and can't seem to get any answers.

    I had it.. twice.. what
    I had it.. twice.. what would you like to know?
  • suzie56
    suzie56 Member Posts: 1
    #12
    jcvolt said:

    I am looking
    I am looking for people like me who have thyroid cancer and can't seem to get any answers.

    Thyroid Cancer Still Suspected
    I have had thyroid cancer for one and a half years. In March of 2008 I had RAI treatment and surgery in January 2008. I would like to communicate with anyone who is going through this. Tomorrow is my PET scan, after completing a neck ultra-sound,body scan, and chest x-ray, which were incomplete.Does the testing ever end? Thank you for any comment. Take Care. Sue
  • SirMarkOfOaks
    SirMarkOfOaks Member Posts: 1
    #13
    jassie said:

    Trying to get into room. My mom is heading for RA therapy on Wednesdy and terrified.

    Radiation
    I went through 8 weeks of Radiation, (7800 Rads). Does She have a feeding tube, PEG tube in her stomach??
  • FORUMTHYROID
    FORUMTHYROID Member Posts: 1
    #14
    flygirlc said:

    Other network
    Hi, My name is Caitlin and I was diagnosed on May 6 of 08, total thyroidectomy on the 12 (which turned out to be a good decision as the cancer had spread to the thyroid tissue itself so it saved me from a second surgery) and then had to do 2 months of external beam radiation therapy (unusual for thyroid cancer) followed by RAI in Oct and my first follow up scan in Jan. My scan came back totally clean and my thyroglobulin levels are almost zero. So I'm pretty lucky. I hope that is some help in regards to your question about being cancer free. The good news is that most forms of thyroid cancer are very very treatable. The bad news is that they treated the CRAP out of it!!! LOL
    As for a chat room, I work monday nights or I'd love to check it out. But I'm on myspace and there is a good thyroid cancer support group on there. They don't have a chat group (yet, but it's a good idea) but there are some very nice people on there and I made a lot of new friends. Just knowing that I wasn't going through it alone and having a bunch of people to talk to who were in all different stages of treatment made such a huge difference. I hope that is helpful to you! Good luck!
    PS. You might also want to check out www.thyca.org. they have a person to person network and could try to match you up with someone to talk to who has been through what you're going through.

    ThyroidChat - Thyroid Cancer | Thyroid Support Group
    I found a site group on the subject

    ThyroidChat - Thyroid Cancer | Thyroid Support Group | Thyroid LIVE CHAT | Thyroid Cancer Information | Chat About Thyroid Disease | Thyroid Hypothyroidism | Thyroid Hyperthyroidism | Thyroid Problems | Resources for Thyroid Cancer

    http://forumthyroid.com/
    www.forumthyroid.com

    Help to chat with you.

    .
  • MFerg
    MFerg Member Posts: 1 *
    #15

    hi everyone, im recover from thyroid cancer and i dont know how to express my emotions with my family and friends about my cancer.

    I was diagnosed almost at 18 years old, so I dont know why I had this from a young age and I feel anxious all the tiem about my future...

    (sorry about my english, Im not American)

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