bad news

angelsbaby
angelsbaby Member Posts: 1,165 Member
edited March 2014 in Colorectal Cancer #1
I just want to say thanks for all the prayers. husband has a blockage in the upper left side been in hospital since last tuesday cat scan done on friday surgeon came in sunday explained that the cat scan shows some little cancer in stomach area plan is to go in and remove blockage in colon and reattach well it did not go as planed dr said they opened him up and he has numerouse huge tumors all around the colon area the tumors were bigger then the blockage. could not remove the blockage did give him a ileostomy on the right side so he can eat and poop but could not remove anything, so the chemo that the chemo doc said was helping was not. the surgeon said the cat scan did not pick up those large tumors.we are devasted again. cancer doc coming to day to see my husband so i will ask alot of questions and tell him i am mad he thinks the chemo was working and it was not. so i have to be at work today no one with my husband very confused from pain meds i am so worried i come at 4.00 to the hospital. i feel teriible that he is alone. i am very upset right now i just wanted to let you know

michelle

Comments

  • funnyguy
    funnyguy Member Posts: 89
    #2
    thinking of you
    My prayers are with both of you.

    Maybe you should push for a PET scan instead of a CAT scan. The PET would/should show the "uptake" of cancerous tumors. Might help you and the dr.s make better decisions.
  • msccolon
    msccolon Member Posts: 1,917 Member
    #3
    I am so sorry
    It seems to just keep on coming. I know you are having a hard time dealing with this, as would anybody. I am praying for comfort and strength for the both of you. It has to be very hard not only to deal with the disappointment of the findings when they opened Angel up, but not being able to discuss this because of your husband's drug-induced confusion. I know that you know the drugs are necessary to keep Angel comfortable, but I am sure that still doesn't help you deal with it. You both have a tough road ahead and I pray God sends an "angel with skin on" to be with you both at this tough time.

    Hugs from afar
    mary
  • kimby
    kimby Member Posts: 797
    #4
    So very sorry
    I am so sorry for your news. The days ahead will indeed be tough ones. Know that you are not alone, no matter how lonely you feel right now. I can't begin to imagine the pain you are in and the agony of having to leave and go to work. He knows your heart is always with him. Sending all of the good thoughts and prayers available.

    Kimby
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #5
    kimby said:

    So very sorry
    I am so sorry for your news. The days ahead will indeed be tough ones. Know that you are not alone, no matter how lonely you feel right now. I can't begin to imagine the pain you are in and the agony of having to leave and go to work. He knows your heart is always with him. Sending all of the good thoughts and prayers available.

    Kimby

    pet scan was done in nov no
    pet scan was done in nov no new uptake so that test was wrong to cea 3.5 I am not trusting any test at this point. the cancer said to me today thay will do the krass test to see what chemo he can have so he saID HE WILL NEED TO HEAL SEE YOU IN A MONTH . I TOLD HIM MAYBE MAYBE NOT.THE MAIN CONCERN RIGHT NOW IS TO MAKE SURE THE HE CAN POOP .

    MICHELLE
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #6
    I'm so very sorry
    Oh, dear. I'm so sorry about this. I know this has just got to be devastaing to both of you. I will pray for comfort for both of you and hopefully some answers that will provide some relief and healing.

    *hugs*
    Gail
  • MoonDragon
    MoonDragon Member Posts: 183
    #7
    Oh Michelle, I am so very
    Oh Michelle, I am so very sorry! Please know that you and your husband are in my thoughts and prayers!
  • tiny one
    tiny one Member Posts: 465 Member
    #8
    blockage
    My prayers are with you. I had an ileostomy for 10 months and then it was reversed. They will keep checking to make sure that he has output coming from his stoma. Sometimes certain pain meds cause alot of confusion morphine can do that. Don't be afraid to be demanding, you know how he normally is. Sometimes chemo can shrink tumors. Please keep us posted. Also don't be afraid to demand a second opinion.
  • kristasplace
    kristasplace Member Posts: 957 Member
    #9
    In my prayers...
    I will be thinking of both of you, and keeping you in my prayers.

    Many hugs,
    Krista
  • changing2
    changing2 Member Posts: 118
    #10
    Praying for you both
    So sorry to read your update. I KNOW God has the power to heal and I trust in His wisdom for each of us. Holding you in prayer.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #11
    Angelsbaby
    I have kinda been watching this and not really posting but I want both of you to know that I prayed for you both last night at Church and also for Hop...I don't know if you and your hubby are religious or not, that is none of my business, but its times like this that I really don't have the right things to say so I turn it over to the Lord to say it for me. If you follow Him and let Him take control you will find peace, even as hard as it is to be in the positions that both of you are in right now. Sometimes our Lord is the only solace we have, and that solace comes from knowing that He will take control of this if you allow Him to. Believe in Him, you have nothing to lose in doing so and everything to gain by doing so. He will make things ok...He promises that only if you believe in Him....Let Him have the burden that you and yours are carrying, and then enjoy each other, for sooner or later the both of you will be together forever eternally....The life here on earth is a very short one for us all, its the next one thats eternal, thats the one we all seek....God Bless both of you and continued prayers will be there for you both in your journey through this...........
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #12
    Buzzard said:

    Angelsbaby
    I have kinda been watching this and not really posting but I want both of you to know that I prayed for you both last night at Church and also for Hop...I don't know if you and your hubby are religious or not, that is none of my business, but its times like this that I really don't have the right things to say so I turn it over to the Lord to say it for me. If you follow Him and let Him take control you will find peace, even as hard as it is to be in the positions that both of you are in right now. Sometimes our Lord is the only solace we have, and that solace comes from knowing that He will take control of this if you allow Him to. Believe in Him, you have nothing to lose in doing so and everything to gain by doing so. He will make things ok...He promises that only if you believe in Him....Let Him have the burden that you and yours are carrying, and then enjoy each other, for sooner or later the both of you will be together forever eternally....The life here on earth is a very short one for us all, its the next one thats eternal, thats the one we all seek....God Bless both of you and continued prayers will be there for you both in your journey through this...........

    Thank you all
    Husbands potassuim low he thinks he leaving the hospital today. had surgery monday he is sick of being in the hospital not very coopertive. I talked to the nurse last nite she said he won't be going home until a few days. but my husband will do what he wants I'm scared he will leave against medical advise..He Just started to eat a little yesterday.Hopefully they can convince him to stay my husbands mind set is that he will be ok if he is at home. Still acting funny because of the pain meds. I don't want him home if he is not well because he if needs to go back to the hospital he won't go .It Is so Hard to talk to him right now he thinks the ileostomy is going to be removed, it is not. I am scared that he will come home not eat or drink well and die from that and not the cancer I will try to convince him to stay tonite when i see him at the hopital .. wish me luck

    michelle
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #13
    angelsbaby said:

    Thank you all
    Husbands potassuim low he thinks he leaving the hospital today. had surgery monday he is sick of being in the hospital not very coopertive. I talked to the nurse last nite she said he won't be going home until a few days. but my husband will do what he wants I'm scared he will leave against medical advise..He Just started to eat a little yesterday.Hopefully they can convince him to stay my husbands mind set is that he will be ok if he is at home. Still acting funny because of the pain meds. I don't want him home if he is not well because he if needs to go back to the hospital he won't go .It Is so Hard to talk to him right now he thinks the ileostomy is going to be removed, it is not. I am scared that he will come home not eat or drink well and die from that and not the cancer I will try to convince him to stay tonite when i see him at the hopital .. wish me luck

    michelle

    lending you my shoulder
    Oh Michelle,

    I'm so sorry you're having to go this. How difficult to not feel in control and to wonder how your husband is going to react to everything. I am praying right now that your husband will have a sense of feeling calm and will be more compliant with doing what needs to be done for his best interest. You take care- get plenty of rest yourself before he comes home, because I know you're going to need it.

    Take care and God bless,
    Lisa
  • msccolon
    msccolon Member Posts: 1,917 Member
    #14
    angelsbaby said:

    Thank you all
    Husbands potassuim low he thinks he leaving the hospital today. had surgery monday he is sick of being in the hospital not very coopertive. I talked to the nurse last nite she said he won't be going home until a few days. but my husband will do what he wants I'm scared he will leave against medical advise..He Just started to eat a little yesterday.Hopefully they can convince him to stay my husbands mind set is that he will be ok if he is at home. Still acting funny because of the pain meds. I don't want him home if he is not well because he if needs to go back to the hospital he won't go .It Is so Hard to talk to him right now he thinks the ileostomy is going to be removed, it is not. I am scared that he will come home not eat or drink well and die from that and not the cancer I will try to convince him to stay tonite when i see him at the hopital .. wish me luck

    michelle

    prayers
    You and Angel are in my prayers, Michelle. You are having such a tough time right now. I can understand Angel's side of it, but I also understand how hard it is for you; you want him to do everything possible, you just aren't sure of what's possible. Just know that he is going to do what is possible for HIM. He's got some tough choices ahead and you both need to come to terms with the decisions he makes; ultimately they are for him to make. I pray for strength for you and him as well as for an angel to come and strengthen the both of you together. As far as his thinking the ileostomy is temporary; if that is what he needs to believe right now to get through then there's nothing wrong with that. Besides, who knows what the future entails. He needs to build his strength right now and he needs you to be there for him.
    mary
  • LSAULS
    LSAULS Member Posts: 8
    #15
    Bad News
    I'm a newbie on this forum, just want to tell you how very sorry I am. I can feel your frustration with this. It is so hard to work and go thru this, that part I DO understand. Please know that all here on site and your friends and family will be there for you.

    Linda
  • kmygil
    kmygil Member Posts: 876 Member
    #16
    angelsbaby said:

    Thank you all
    Husbands potassuim low he thinks he leaving the hospital today. had surgery monday he is sick of being in the hospital not very coopertive. I talked to the nurse last nite she said he won't be going home until a few days. but my husband will do what he wants I'm scared he will leave against medical advise..He Just started to eat a little yesterday.Hopefully they can convince him to stay my husbands mind set is that he will be ok if he is at home. Still acting funny because of the pain meds. I don't want him home if he is not well because he if needs to go back to the hospital he won't go .It Is so Hard to talk to him right now he thinks the ileostomy is going to be removed, it is not. I am scared that he will come home not eat or drink well and die from that and not the cancer I will try to convince him to stay tonite when i see him at the hopital .. wish me luck

    michelle

    Praying
    Michelle, I am so very sorry for everything you two are going through. I am sending you hugs and praying for you both. Please keep us updated and do try to keep him in the hospital for now.

    Praying hard,
    Kirsten
  • msccolon
    msccolon Member Posts: 1,917 Member
    #17
    kimby said:

    So very sorry
    I am so sorry for your news. The days ahead will indeed be tough ones. Know that you are not alone, no matter how lonely you feel right now. I can't begin to imagine the pain you are in and the agony of having to leave and go to work. He knows your heart is always with him. Sending all of the good thoughts and prayers available.

    Kimby

    I love your new pic!
    Just had to comment!
    mary
  • changing2
    changing2 Member Posts: 118
    #18
    Still in prayer
    Hi,
    Thanks for keeping us posted as you're thought of often. Give our hugs and prayers to you and hubby.
  • changing2
    changing2 Member Posts: 118
    #19
    Buzzard said:

    Angelsbaby
    I have kinda been watching this and not really posting but I want both of you to know that I prayed for you both last night at Church and also for Hop...I don't know if you and your hubby are religious or not, that is none of my business, but its times like this that I really don't have the right things to say so I turn it over to the Lord to say it for me. If you follow Him and let Him take control you will find peace, even as hard as it is to be in the positions that both of you are in right now. Sometimes our Lord is the only solace we have, and that solace comes from knowing that He will take control of this if you allow Him to. Believe in Him, you have nothing to lose in doing so and everything to gain by doing so. He will make things ok...He promises that only if you believe in Him....Let Him have the burden that you and yours are carrying, and then enjoy each other, for sooner or later the both of you will be together forever eternally....The life here on earth is a very short one for us all, its the next one thats eternal, thats the one we all seek....God Bless both of you and continued prayers will be there for you both in your journey through this...........

    Thankful for you
    Thanks Buzzard! You have a "gift" for sharing your faith and want you to know I'm praying that God will continue to use, bless and encourage you as well!
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #20
    changing2 said:

    Still in prayer
    Hi,
    Thanks for keeping us posted as you're thought of often. Give our hugs and prayers to you and hubby.

    thanks for all your hugs and prayers
    update, husband thought he was leaving the hospital yesterday but no his potassuim is still to low the ileostomy nurse showed me again yesterday not really showing me more me showing her i did real well she was amazed that i did so well I was a cna for 10 yrs so i can do this, just needed a refresher course. the ileostomy is working but he has alot of stuff coming out to much, the nurse said liqiud meds because pills will just come out whole and he won;t get the benefit from the meds. This is going to be hard for him and me,our insurance has some co pay for a home nurse to come so my husband said no. i will need supplies of bags and so on, will ck with insurance about that. I will do what i need to for him because i am able to thank god. I am at work trying to catch up will leave soon and stay with my husband until this evening , he is off daladed morphine now as needed. My husband is still having crazy dreams from the pain meds but is getting better Will let you know soon how things are . thanks again to eveyone

    michelle


    mi
  • msccolon
    msccolon Member Posts: 1,917 Member
    #21
    angelsbaby said:

    thanks for all your hugs and prayers
    update, husband thought he was leaving the hospital yesterday but no his potassuim is still to low the ileostomy nurse showed me again yesterday not really showing me more me showing her i did real well she was amazed that i did so well I was a cna for 10 yrs so i can do this, just needed a refresher course. the ileostomy is working but he has alot of stuff coming out to much, the nurse said liqiud meds because pills will just come out whole and he won;t get the benefit from the meds. This is going to be hard for him and me,our insurance has some co pay for a home nurse to come so my husband said no. i will need supplies of bags and so on, will ck with insurance about that. I will do what i need to for him because i am able to thank god. I am at work trying to catch up will leave soon and stay with my husband until this evening , he is off daladed morphine now as needed. My husband is still having crazy dreams from the pain meds but is getting better Will let you know soon how things are . thanks again to eveyone

    michelle


    mi

    thank you for your post!
    Michelle, it is good to hear you peering at that light at the end of the tunnel! You are sounding so much better today than you have. It sounds like Angel is doing much better as well! That is really awesome that you have CNA training; we never know how God is arranging our lives to prepare us for the future! You are a strong woman, Angel is lucky to have you! Take care and God be with you.
    mary

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