no iodine diet how did you feel.

RAI
You will be ok. Just wash the beding you are laying on and blankets. The house will be fine. I would not hold the dogs for 5 days. After 5 days you can sleep with your husband if you are married. I have had this treatment twice. I used paper plates and siverware so you can throw it all away. Make sure you have plenty of meals made up because you are not going to feel like making any thing while you have the treatment. I was on the computer the whole time while I was having mine, so if you want to talk I will keep cking on here and will visit with you. Just make sure you eat lots of sour candy the second day.



Take care
Love Betsy

shortstuff00 said:

RAI
You will be ok. Just wash the beding you are laying on and blankets. The house will be fine. I would not hold the dogs for 5 days. After 5 days you can sleep with your husband if you are married. I have had this treatment twice. I used paper plates and siverware so you can throw it all away. Make sure you have plenty of meals made up because you are not going to feel like making any thing while you have the treatment. I was on the computer the whole time while I was having mine, so if you want to talk I will keep cking on here and will visit with you. Just make sure you eat lots of sour candy the second day.



Take care
Love Betsy

RAI
You sould have some one come and heat up your food for you. They can be in the house with you just go to your room. You will be to tired to cook your own food.

Sorry im writting so much just trying to help.

Betsy

shortstuff00 said:

RAI
You sould have some one come and heat up your food for you. They can be in the house with you just go to your room. You will be to tired to cook your own food.

Sorry im writting so much just trying to help.

Betsy

RAI
Thank you so much for the information as I just got home from the hospital with a brown envelope full of info . However I found one or two items I can eat , and they tell me I would be cramping ,my jaws would hurt ,and just call to get motrin. Thank God I stumbled across this site and all of you . The diet I found online is a low iodine one I need NO iodine .I suppose I can live on water, tea , and rice cakes eww . I only weigh 108lbs now so I am worried about losing weight again. When I finally found a good doctor that told me what was going on I was down to 87lbs. My normal weight is around 109lbs to 103lbs .I am a very thin small boned person with concerns about calcium now more then ever. Betsy you have answered my questions and made me feel less alone and misunderstood . It is suprising to me that so many people think wow that's great you get to stay home and do nothing. This is no vacation it is a nightmare . Oh the reason I picked hamster as mt SN is because I am so tiny and already had big eyes well I now look like the hamster in that movie "bedtime Stories". I keep asking will my eyes get better but I never gat a straight answer from any of the doctors I am seeing.
Vanity can go out the window and I can change jobs once this over all I want is to feel better . I stop my meds on January 31st so I better go shopping and make some food I can freeze as I am alone and will be for awhile.
Thank You so very much,
Kathie

hamster_53 said:

RAI
Thank you so much for the information as I just got home from the hospital with a brown envelope full of info . However I found one or two items I can eat , and they tell me I would be cramping ,my jaws would hurt ,and just call to get motrin. Thank God I stumbled across this site and all of you . The diet I found online is a low iodine one I need NO iodine .I suppose I can live on water, tea , and rice cakes eww . I only weigh 108lbs now so I am worried about losing weight again. When I finally found a good doctor that told me what was going on I was down to 87lbs. My normal weight is around 109lbs to 103lbs .I am a very thin small boned person with concerns about calcium now more then ever. Betsy you have answered my questions and made me feel less alone and misunderstood . It is suprising to me that so many people think wow that's great you get to stay home and do nothing. This is no vacation it is a nightmare . Oh the reason I picked hamster as mt SN is because I am so tiny and already had big eyes well I now look like the hamster in that movie "bedtime Stories". I keep asking will my eyes get better but I never gat a straight answer from any of the doctors I am seeing.
Vanity can go out the window and I can change jobs once this over all I want is to feel better . I stop my meds on January 31st so I better go shopping and make some food I can freeze as I am alone and will be for awhile.
Thank You so very much,
Kathie

RAI
So I have some meals for you to try. You take hamberger patties and lay them on tin foil and slice up potatoes and put that on top of the patty and them slice up carrots and put that on top and slice up onions put that on top. close the tin foil up and cook for 1 hour. I made like 10 of them. After they are done I put them in baggies and froze. They take like 2 min to heat up. I found no salt ketchup that I put on top. Or you can make up a salsa with alvacado onions and papya. I also made this, no salt corn in a pan with cooked hamberger meat cooked up with some no salt diced tomatoes with yummy herbs. Its like a soup its really good. I also made spaghetti Just follow a normal recipe but you can buy no iodine salt and use that. I used mrs. dash tooo on every thing. I also found no salt chips and I ate them all day with alvocado. You can find no salt peanuts I ate them all the time too. You can also find no salt peanut butter and crakers with no salt and I made little peanut butter and jam sandwiches with that. You can make big salads with chicken and use oil and vinegarett dressing. You can make rotisserie chicken with mrs. dash or fry up some chicken. The second 4th time on this diet I was sick of all food. I just didnt taste good so I did lose weight. I stated at about 140 and was down to 120. But I lost all my taste buds so nothing tasted good so you dont eat as much. But once they came back I was eating everything. lol lol I am at 132 now. I work at Target thank god they understand all this because I was out for 3 months the last time. I was so tired. But once you get on your meds and they get it right you will feel wonderful. Like I said start your meals now and have pleanty because you will want to cheat bad because you are so hungry. Please try to have some one come help you. I had friends come over and help me. You will want some one to heat up your meals. The first time I didnt and I eat oat meal for a week, lol lol I will never eat oat meal again. Egg white omlets are good too with veggies and I put surup on top just for taste. You can buy just egg whites in a carton, I bought a lot of this or you can just make scramble eggs with just egg whites and eat that with ketchup on top, again this is for taste. You jaws will hurt but it dont last, just eat lots of sour candy that will help. When you start your meds it will give you a head ache for a couple of days, this is normal. I know this sounds bad and im so sorry but you will feel better after its all over. They say the cure is worst then the cause.

You have friends here to help
Love Betsy


Oh your eyes that is part of a thyroid problem if you go on the internet and look up thyroid you will read about some times it makes your eyes big. I hope that helps. What kind of thyroid cancer do you have? Did you have both sides removed? I have papillary, I had cancer on both sides. I had mine removed Nov 2007 and had treatment on Dec 26th 2007 and had treatment again this year Oct 24th. I will be tested again in July. Just hang in there.

shortstuff00 said:

RAI
So I have some meals for you to try. You take hamberger patties and lay them on tin foil and slice up potatoes and put that on top of the patty and them slice up carrots and put that on top and slice up onions put that on top. close the tin foil up and cook for 1 hour. I made like 10 of them. After they are done I put them in baggies and froze. They take like 2 min to heat up. I found no salt ketchup that I put on top. Or you can make up a salsa with alvacado onions and papya. I also made this, no salt corn in a pan with cooked hamberger meat cooked up with some no salt diced tomatoes with yummy herbs. Its like a soup its really good. I also made spaghetti Just follow a normal recipe but you can buy no iodine salt and use that. I used mrs. dash tooo on every thing. I also found no salt chips and I ate them all day with alvocado. You can find no salt peanuts I ate them all the time too. You can also find no salt peanut butter and crakers with no salt and I made little peanut butter and jam sandwiches with that. You can make big salads with chicken and use oil and vinegarett dressing. You can make rotisserie chicken with mrs. dash or fry up some chicken. The second 4th time on this diet I was sick of all food. I just didnt taste good so I did lose weight. I stated at about 140 and was down to 120. But I lost all my taste buds so nothing tasted good so you dont eat as much. But once they came back I was eating everything. lol lol I am at 132 now. I work at Target thank god they understand all this because I was out for 3 months the last time. I was so tired. But once you get on your meds and they get it right you will feel wonderful. Like I said start your meals now and have pleanty because you will want to cheat bad because you are so hungry. Please try to have some one come help you. I had friends come over and help me. You will want some one to heat up your meals. The first time I didnt and I eat oat meal for a week, lol lol I will never eat oat meal again. Egg white omlets are good too with veggies and I put surup on top just for taste. You can buy just egg whites in a carton, I bought a lot of this or you can just make scramble eggs with just egg whites and eat that with ketchup on top, again this is for taste. You jaws will hurt but it dont last, just eat lots of sour candy that will help. When you start your meds it will give you a head ache for a couple of days, this is normal. I know this sounds bad and im so sorry but you will feel better after its all over. They say the cure is worst then the cause.

You have friends here to help
Love Betsy


Oh your eyes that is part of a thyroid problem if you go on the internet and look up thyroid you will read about some times it makes your eyes big. I hope that helps. What kind of thyroid cancer do you have? Did you have both sides removed? I have papillary, I had cancer on both sides. I had mine removed Nov 2007 and had treatment on Dec 26th 2007 and had treatment again this year Oct 24th. I will be tested again in July. Just hang in there.

Iam sorry I am new to all of
Iam sorry I am new to all of this and didnt know how to post a comment except to reply. I had surgery on Dec 18th and they removed my entire thyroid, 2 parathyroids, along with 19 lymph nodes. It took us 2 weeks to get the results back because they wanted to get a second opinion. When they told us it was cancer I went back to the doctor and that day he told me to start this lovely low iodine diet!!! Which kinda sucks since everything I read says to prepare your meals before starting. I feel like I am going blind and just hoping I am eating the right things since its low iodine and not low sodium as everyone says, however nothing tells you how much iodine is in anything. I have joked with my mom that well if it has no flavor then it must be on the diet. Where did you find the kethcup and other items you were talking about? My other problem is that I am not a big veggie person which makes it much harder since we cant find foods to fix. This along with not being on my meds just makes me have no energy and feeling nauseous all the time. I am normally a very active person and this is the hardest part in dealing with this. I have been staying with my mom since the surgery but am planning on going back to my apt after the RAI which I am a little nerous about. do you mind if I also ask was dose of RAI you had? My doctor said I will be getting 29.9 since they took the entire thyroid, this is more of a precaution and to make it easier to tell if the cancer comes back in the future. I am really looking forward to hearing back from you, I have enjoyed reading all of your comments and appreciate you sharing what you have been through. Iam glad to hear things sound like they are getting better for you and wish you more good luck to come your way as for everyone else here!!!

download diet
Hello ,
I just returned from the Stop&Shop grocery near my home and looked at labels .OY VEY the kosher foods had alot of sodium except for lovely cardboard saltless matzo. I was going to buy saltless peanut butter but now the news is talking about a recall. Damn this had to happen now ? So I suppose it's the pure jams smuckers makes called simply fruit ,and those hambuger veggie no bun wraps Betsy mentioned. Breakfast ,snack time will be rough I am one of those people that eat all day . I rarely have 3 meals it's more six minis .There is the rice cakes oh they looked inviting ,black coffee , and a fruit. Oh can we eat bananas? Or are they too easy so I need to peel some apples and make breakfast mush . I got my packet this morning I think somebody made an error or two they want a pregnancy test lolol I had my tubes burned 7 years ago and now I am 53 . Plus they said show up Thursday Feb.10,2009 for RAI in my world Feb. 10th is Tuesday. So I have some calls to make Monday morning. Also Betsy the oncologist did not say cancer out loud just come in on the 3rd of feb take a pill then come back the next morning for the scan. The endocronigist said it's graves disease but then sent me for a ultr sound and now all this crapola .You have me thinking about target I met a woman that had thyriod cancer and works there . She had nothing but support .Who knows maybe when this is all over I can apply at the pharmacy in my target . Again thank you and Wendy for being here for me I feel less alone . My family is far away and I was the caretaker for my mom before I became ill in August and was seeing a really bad doctor I was shrinking he said take lipitor and eat oatmeal . I said go to hell finally and found a good primary care person .That brings up to now 3 doctors and I got more info from you. Whats your co-pay? take care, Kathie

maggintex said:

Iam sorry I am new to all of
Iam sorry I am new to all of this and didnt know how to post a comment except to reply. I had surgery on Dec 18th and they removed my entire thyroid, 2 parathyroids, along with 19 lymph nodes. It took us 2 weeks to get the results back because they wanted to get a second opinion. When they told us it was cancer I went back to the doctor and that day he told me to start this lovely low iodine diet!!! Which kinda sucks since everything I read says to prepare your meals before starting. I feel like I am going blind and just hoping I am eating the right things since its low iodine and not low sodium as everyone says, however nothing tells you how much iodine is in anything. I have joked with my mom that well if it has no flavor then it must be on the diet. Where did you find the kethcup and other items you were talking about? My other problem is that I am not a big veggie person which makes it much harder since we cant find foods to fix. This along with not being on my meds just makes me have no energy and feeling nauseous all the time. I am normally a very active person and this is the hardest part in dealing with this. I have been staying with my mom since the surgery but am planning on going back to my apt after the RAI which I am a little nerous about. do you mind if I also ask was dose of RAI you had? My doctor said I will be getting 29.9 since they took the entire thyroid, this is more of a precaution and to make it easier to tell if the cancer comes back in the future. I am really looking forward to hearing back from you, I have enjoyed reading all of your comments and appreciate you sharing what you have been through. Iam glad to hear things sound like they are getting better for you and wish you more good luck to come your way as for everyone else here!!!

Iam sorry I am new to all of
Hello, I had a dose of 100 both times. When I went back in 6 months later they saw something again so I had the same dose. Yes you get very tired, I was very active too, worked through the first time and I would go to work and come home and sleep. I think I slept for months. But once the meds kick in you feel better. The second time there was no way I was going to work again and took 3 months off. I think that helped me bounce back faster. Im on sythyriod now and take 112 I was on 125 but that was to high. I found all my stuff at the grocery store and trader joes. I was not prepared the first time and ate oatmeal for a week. I was on the diet the first time for a month and That diet sucks. This does mess up your eyes for while I was thinking I needed glasses. If you could stay with your mom, that would be good so she can help you. You will want her to heat up your food for you. Its just nice to have someone around while your having your treatment. It makes you feel sick and you will be more tired. Positive thinking helps, and as you see here you are not alone. I would have loved to join any glub but this one but here we are. Its just nice to know there are others going though the same thing. Its funny because we all feel the same way. The mood swings,tired,leg cramps.


When are you having your treatment?

take care
Betsy

maggintex said:

RAI on the 27th
Betsy,

Thank you again for your kind words and telling us all about your experience. I feel that I have got more information from you and others like Wendy from here than any place else. I go in for RAI next Tuesday the 27th and then for my 1st body scan on the 2nd and my 2nd scan on the 5th and then am hoping I will feel well enough to go back to work the following Monday on the 9th, since I have been out of work since my surgery on Dec 18th. I just keep thinking just another week and 2 days of this diet!!! Then hopefully I will get to feeling better. I have lost weight as of now, but I think that is also due to not eating since nothing tastes good. I have some questions for my doctor after reading what you have gone through and I thank you again for that. All he told me was that after taking the RAI I will be so bored but none of the other things as far as taking the Phylips of Magnisa, lemon drops, water, extra showers, or using the disposable utensils and plates. When you went back for your scan to see if it had come back did you have to go off of your thyroid medicine? And did you have to do this lovely diet before the scan?

RAI on the 27th
6 months after your rai you will go on the diet again but only for a week and you will have to get a shot to rid your body of Iodine. You will get the shots two days in a row. Thank god its only for a week of the diet. Then you will take a pill and get a scan. They saw in the scan that it was still there so I had to go on a different thyroid pill for a weeek and then no pills and had my treatment again. I will do this again in July, it better be gone this time. I weighed about 142 when I started and ended up at 120. I didnt eat because nothing tasted good. After the treatment I lost my taste buds for about 3 weeks so I didnt eat because you know what it should taste like but it taste like dried bread or cardboard. lol lol. If you dont have a thyroid you are hypothyroid and that makes you gain weight. So we do gain the weight right back. You will get to know your body and when you start to fell tired you will know your meds are wrong. I go in every 4 weeks for a blood test to make sure my meds are ok and to see if there are cancer cells. My meds never where right I would go up and down. My last ck up he said my leavels were great and I didnt have to go back for two months. That was a big for me. My wooo hoo. Your radioligest will tell you all about what you will need to do during your treatment. He or she will become your best firend. They sit you down before and talk about the pill and how you will feel. Trust me we all go thought the same things. I bought a note book in and wrote every thing down. They will give you paper work too, to bring home. All your paper plates and trash you have to hold for one month so it will be safe for the trash man. I just put it in the corner of our carport. I just made sure I didnt touch anything we had to reuse. Throw out your tooth brush and anything like that, when you are done. I will go by fast and you will back at work and EATING EVERYTHING.

My sisters doc told her its like a mini vacation when she had her treatment......... I dont know what they are talking about. They need to have this done and then see what they think.


Do your own research because this is your body and your life, If you feel your doc is not helping ask questions and look it up.


take care
Betsy

shortstuff00 said:

RAI on the 27th
6 months after your rai you will go on the diet again but only for a week and you will have to get a shot to rid your body of Iodine. You will get the shots two days in a row. Thank god its only for a week of the diet. Then you will take a pill and get a scan. They saw in the scan that it was still there so I had to go on a different thyroid pill for a weeek and then no pills and had my treatment again. I will do this again in July, it better be gone this time. I weighed about 142 when I started and ended up at 120. I didnt eat because nothing tasted good. After the treatment I lost my taste buds for about 3 weeks so I didnt eat because you know what it should taste like but it taste like dried bread or cardboard. lol lol. If you dont have a thyroid you are hypothyroid and that makes you gain weight. So we do gain the weight right back. You will get to know your body and when you start to fell tired you will know your meds are wrong. I go in every 4 weeks for a blood test to make sure my meds are ok and to see if there are cancer cells. My meds never where right I would go up and down. My last ck up he said my leavels were great and I didnt have to go back for two months. That was a big for me. My wooo hoo. Your radioligest will tell you all about what you will need to do during your treatment. He or she will become your best firend. They sit you down before and talk about the pill and how you will feel. Trust me we all go thought the same things. I bought a note book in and wrote every thing down. They will give you paper work too, to bring home. All your paper plates and trash you have to hold for one month so it will be safe for the trash man. I just put it in the corner of our carport. I just made sure I didnt touch anything we had to reuse. Throw out your tooth brush and anything like that, when you are done. I will go by fast and you will back at work and EATING EVERYTHING.

My sisters doc told her its like a mini vacation when she had her treatment......... I dont know what they are talking about. They need to have this done and then see what they think.


Do your own research because this is your body and your life, If you feel your doc is not helping ask questions and look it up.


take care
Betsy

RAI on the 27th
Betsy,

I have to agree with you about the doctor. Mine told me you will be fine you will just be so bored and just from this diet and no medicine I feel like I am dying since I have no energy!!! I said the same thing to my mom, I have told her many times through this that I think these doctors should have to go through this diet even just for one week. My doctor is pretty good, its just his staff we have a hard time with. I did call today to ask him some questions since you said that you had the 100 dose and I am only going to need the 29.9 I was wondering if some things might be different as far as being around people. They said that they gave me the paperwork but they didnt so they are faxing it to my dad and he will bring it to me tomorrow. I just want to be prepared. The little amount of energy I do have now I dont know if I will have after the RAI so I just want to be prepared.

I am in the same boat about the weight loss. I thought well at least I am losing weight through all this which I needed to do. Its just not the way to do it. I have said the same thing. I am losing the weight because nothing tastes good and so I am not eating which is not good either. You said that you gained the weight back though once you got back on your synthroid right? I was hoping that even though they took my entire thyroid that since I will be on the synthroid to help regulate everything that I might be able to keep it off, I guess we will wait and see. Because my surgeon had to remove all the lymph nodes along with the thyroid, my taste buds havent been the same since the surgery over a month ago so I am looking forward to tasting food again. I cant believe I have been doing this for 2 weeks now...ony 1 more week to go!!!! yea!!!

I am so glad that you were finally able to get your meds right, I can image how frustrating that can be for you and what a relief to get the good news!! They had to add OsCal to my meds because my calcium levels are low on top of eveything else, which is normal since they took two of the parathyroids too. Thats been the hardest though is taking all this medicine because if I take it on an empty stomach I get sick but then nothing taste good so I dont want to eat and yet I have to take them twice a day...I will be so glad if I never have to take another TUMS again!! I am 32 and feel like I am an old lady popping my TUMS like I do!! lol

I am going to sign off for now, I just dont have much energy today but I wanted to say hi and thank you again. I really cant express how much your knowledge, sharing, and words of encouragement mean to me. I hope you have a good day!!!

maggintex said:

RAI on the 27th
Betsy,

I have to agree with you about the doctor. Mine told me you will be fine you will just be so bored and just from this diet and no medicine I feel like I am dying since I have no energy!!! I said the same thing to my mom, I have told her many times through this that I think these doctors should have to go through this diet even just for one week. My doctor is pretty good, its just his staff we have a hard time with. I did call today to ask him some questions since you said that you had the 100 dose and I am only going to need the 29.9 I was wondering if some things might be different as far as being around people. They said that they gave me the paperwork but they didnt so they are faxing it to my dad and he will bring it to me tomorrow. I just want to be prepared. The little amount of energy I do have now I dont know if I will have after the RAI so I just want to be prepared.

I am in the same boat about the weight loss. I thought well at least I am losing weight through all this which I needed to do. Its just not the way to do it. I have said the same thing. I am losing the weight because nothing tastes good and so I am not eating which is not good either. You said that you gained the weight back though once you got back on your synthroid right? I was hoping that even though they took my entire thyroid that since I will be on the synthroid to help regulate everything that I might be able to keep it off, I guess we will wait and see. Because my surgeon had to remove all the lymph nodes along with the thyroid, my taste buds havent been the same since the surgery over a month ago so I am looking forward to tasting food again. I cant believe I have been doing this for 2 weeks now...ony 1 more week to go!!!! yea!!!

I am so glad that you were finally able to get your meds right, I can image how frustrating that can be for you and what a relief to get the good news!! They had to add OsCal to my meds because my calcium levels are low on top of eveything else, which is normal since they took two of the parathyroids too. Thats been the hardest though is taking all this medicine because if I take it on an empty stomach I get sick but then nothing taste good so I dont want to eat and yet I have to take them twice a day...I will be so glad if I never have to take another TUMS again!! I am 32 and feel like I am an old lady popping my TUMS like I do!! lol

I am going to sign off for now, I just dont have much energy today but I wanted to say hi and thank you again. I really cant express how much your knowledge, sharing, and words of encouragement mean to me. I hope you have a good day!!!

rai on the 27th
I know how you feel. Im 44 and I felt like a old lady tooo. I fell so sorry for my boyfriend, He was cooking cleaning and washing clothes. He did every thing for about a year. It does get better, you will be eating again and feeling good. About the weight, we have no thyriod so we will have weight problems the reast of our lives. I weight 132 now, I am 5'4 so it shows more. I was up to 146, I go up and down all the time. But I have to work really hard to not gain a bunch. I know the energy thing is bad, but for now you are only going to want to sleep and sleep but once the meds kick in you will be out doing things again.

Hang in there

Betsy