Happy 2009!!! and a quick update...

Monicaemilia
Monicaemilia Member Posts: 455 Member
edited March 2014 in Colorectal Cancer #1
Hello everyone: For those of you who don't know me, I was Dx'd November 2005 with a genetic form of colorectal cancer (FAP) when I was 8 months pregnant. Colectomy (01/2006) Liver mets (liver resection - 07/2007), lung mets (lung resection - 08/2008), one bone met (radiation and Exablate), and now retroperitoneal mets. You can read the full story on my webpage.

Just wanted to give you a quick update as a lot has happened in the last couple of months. Last I posted I mentioned that I was part of a clinical trial for my one bone met using the Exablate 2000. The pain is getting better, although it is not all gone. Apparently it can take up to three months to feel the full advantages of the procedure. Of course, I will keep you all posted.

In the middle of December I went on a trip to Argentina to see my oncologist and liver surgeon. I also had a PET scan done. The scan showed that the inaccessible lung met (behind the lung, near the heart) was gone (my doctors are scratching their heads at that one), although a new small nodule did appear in a very accessible, operable area. I will deal with that later on. The liver mets are the same, but there is some retroperitoneal mets. My surgeon is very willing to do the surgery to remove the liver and retriperitoneal mets, but wants me to do further therapy to attempt to shrink one lesion close to the portal vein. He says he wants really good, clear margins so that I have a better chance at success. Therefore, I had some radioimmunotherapy in Argentina, and am now back in Canada on Folfox and Erbitux. Hopefully this will get me to another resection by March 2009.

I am taking it one step at a time, and am grateful that we just celebrated my son's 3rd birthday (who would've thought?), and am on my way to watching the next Superbowl. Faith and patience has become the motto I live by. Happy New Years everyone!!! Monica

Comments

  • dixchi
    dixchi Member Posts: 431
    New Year
    Happy New Year and hope the year brings good news for you; am keeping you in
    my thoughts for your treatment and resection.

    Yes, the next bowl game is tonight with my alma mater, University of Alabama.
    Living in Cincinnati, I had to watch the Orange Bowl as well last night.
    I could not believe the number of fumbled and lost balls on UC's part; they
    did not look good but then who does against a Tybol Taylor!
  • MoonDragon
    MoonDragon Member Posts: 183
    Can you bottle and sell it?
    Wow, you have really been through the wringer! What a strong, strong woman you are! You are an inspiration to us all!

    May this year be one of your best years yet!!
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Wonderful
    How wonderful that you are here to celebrate your son's third birthday! I hope and pray you will be here for many more milestones.

    *hugs*
    Gail
  • Joy1216
    Joy1216 Member Posts: 290 Member
    dixchi said:

    New Year
    Happy New Year and hope the year brings good news for you; am keeping you in
    my thoughts for your treatment and resection.

    Yes, the next bowl game is tonight with my alma mater, University of Alabama.
    Living in Cincinnati, I had to watch the Orange Bowl as well last night.
    I could not believe the number of fumbled and lost balls on UC's part; they
    did not look good but then who does against a Tybol Taylor!

    Roll Tide
    I got my MBA at UAB and have been a Bama fan for many years although I never went to school in Tuscaloosa. I lived in Alabama from '69 to '92. My husband and I went to a Bama watch party last night here in KC. Not a good night for the Tide. Need I say more? Anyhow, Roll Tide to another Bama fan.
    Joy
    PS - My personalized license plate is ROL TYD.
  • jenalynet
    jenalynet Member Posts: 361 Member
    Inspiration
    I am happy to read your post, it is very inspiring to me. I hope you celebrate many more of your sons birthdays. You are a strong person and I wish you all good things. Hugs, Audrey.