Anyone out there with stage 4 colon cancer / went to the lung?

star5
star5 Member Posts: 5
edited March 2014 in Emotional Support #1
please let me know , my husband has stage 4 cancer and we can find anymore out there to talk with and who is surviving .... Help . thanks
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Comments

  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
    Not me but...
    I am a survivor of Stage 3 head/neck cancer (had half of tongue replaced along with radical neck dissection) who, a couple of years later, developed cancer in the lung.

    I had a lobectomy done on the 31st of January this year. Earlier this month I was pronounced cancer-free.

    Metastisis is problematic, for sure. I HOPED that my lung cancer was a new cancer, and they still do not know because the node they removed was so small. But the cancer is gone.

    Depending on the range and scope of the cancer to hub's lungs, there may be a very good chance of a complete recovery from that. It would be helpful, as mentioned above, if it were a new cancer. It would be helpful if it were non-small cell lung cancer, which is typically less aggressive. And it would be very helpful if it were isolated in one lung, even better if it is restricted to one lobe.

    These factors may play a large role in what is decided next.

    In June of 2007, they thought I had cancer bombarding both lungs and told me to expect a short life thereafter (10 months was the minimum). That turned out to be an incorrect diagnosis, luckily for me, but it might help you understand what the consequences may be if factors do not fall into place.

    At the same time, I am hopeful that it gives you hope!

    I will not lie to you: stage 4 of ANY cancer is not a good thing (heck, stage 0.5 of any cancer is not a good thing). I do, however, know of a number of stage 4 colon cancer survivors. I talk to them regularly on this very site. They are, for the most part, cancer-free, and living fully functional, happy lives.

    It can be done. Let us hope that the lung cancer can be removed. That is the ticket.

    Best wishes to you and your husband and your family for a great 2009.

    Take care,

    Joe
  • star5
    star5 Member Posts: 5

    Not me but...
    I am a survivor of Stage 3 head/neck cancer (had half of tongue replaced along with radical neck dissection) who, a couple of years later, developed cancer in the lung.

    I had a lobectomy done on the 31st of January this year. Earlier this month I was pronounced cancer-free.

    Metastisis is problematic, for sure. I HOPED that my lung cancer was a new cancer, and they still do not know because the node they removed was so small. But the cancer is gone.

    Depending on the range and scope of the cancer to hub's lungs, there may be a very good chance of a complete recovery from that. It would be helpful, as mentioned above, if it were a new cancer. It would be helpful if it were non-small cell lung cancer, which is typically less aggressive. And it would be very helpful if it were isolated in one lung, even better if it is restricted to one lobe.

    These factors may play a large role in what is decided next.

    In June of 2007, they thought I had cancer bombarding both lungs and told me to expect a short life thereafter (10 months was the minimum). That turned out to be an incorrect diagnosis, luckily for me, but it might help you understand what the consequences may be if factors do not fall into place.

    At the same time, I am hopeful that it gives you hope!

    I will not lie to you: stage 4 of ANY cancer is not a good thing (heck, stage 0.5 of any cancer is not a good thing). I do, however, know of a number of stage 4 colon cancer survivors. I talk to them regularly on this very site. They are, for the most part, cancer-free, and living fully functional, happy lives.

    It can be done. Let us hope that the lung cancer can be removed. That is the ticket.

    Best wishes to you and your husband and your family for a great 2009.

    Take care,

    Joe

    Thank you so much Joe, Your
    Thank you so much Joe, Your information was very helpful... I am so glad you are cancer free. Thank god.

    My husband was diagnose with stage 4 colon cancer . Doctor gave him a CT Scan which showed spots on his left lung. After the surgery to remove the tumor in his colon it was the size of my husband fist. Dr, told him he wanted to do an biopsy on 1 cm spot just to make sure it wasn't cancer. Well the colon cancer metastisic to the left lung, it was cancer... Not to mention we were told he had 2 months to 2 years to live. OMG, my heart felt so heavy , I cried , at that time my whole world just came down. He is 44 years old too young to leave me and his three daughters. He is on chemo , and taking the meds Xeloda. It hurts me to see him so sick. I am keeping the faith and alot of prayers are going out to all of you as well.

    The 3 spots on his lung one spot disappear and the 1 cm shrunk, one stood the same size, which the dr, said it's nothing to worry about. Doctor also told us , he didn't want to remove one lescians that it was so small , he may not be able to feel it, when he goes in.
    Do you think we should get a second option? Or ask the doctor to go ahead with the surgery.?

    People who you talk with on this web site , can you please let them know to I am here and I would love to talk with them . Do you know any of them , with colon cancer that metastisis to the lung? that are stage 4 ...

    Again, I want to thank you so much Joe for your reply . God bless and keep in touch. Best wishes to you to and a very happy 2009.
  • Eil4186
    Eil4186 Member Posts: 949
    star5 said:

    Thank you so much Joe, Your
    Thank you so much Joe, Your information was very helpful... I am so glad you are cancer free. Thank god.

    My husband was diagnose with stage 4 colon cancer . Doctor gave him a CT Scan which showed spots on his left lung. After the surgery to remove the tumor in his colon it was the size of my husband fist. Dr, told him he wanted to do an biopsy on 1 cm spot just to make sure it wasn't cancer. Well the colon cancer metastisic to the left lung, it was cancer... Not to mention we were told he had 2 months to 2 years to live. OMG, my heart felt so heavy , I cried , at that time my whole world just came down. He is 44 years old too young to leave me and his three daughters. He is on chemo , and taking the meds Xeloda. It hurts me to see him so sick. I am keeping the faith and alot of prayers are going out to all of you as well.

    The 3 spots on his lung one spot disappear and the 1 cm shrunk, one stood the same size, which the dr, said it's nothing to worry about. Doctor also told us , he didn't want to remove one lescians that it was so small , he may not be able to feel it, when he goes in.
    Do you think we should get a second option? Or ask the doctor to go ahead with the surgery.?

    People who you talk with on this web site , can you please let them know to I am here and I would love to talk with them . Do you know any of them , with colon cancer that metastisis to the lung? that are stage 4 ...

    Again, I want to thank you so much Joe for your reply . God bless and keep in touch. Best wishes to you to and a very happy 2009.

    Take heart, many are making it ok with stage 4
    Star, your posts really touched my heart. I am going to pray for your husband to fully recover and for God to give both of you strength and peace of mind during this journey.

    I have met many people on this site that are stage 4 but being successfully treated and living good lives. Good luck and please keep us posted. Eil
  • star5
    star5 Member Posts: 5
    Eil4186 said:

    Take heart, many are making it ok with stage 4
    Star, your posts really touched my heart. I am going to pray for your husband to fully recover and for God to give both of you strength and peace of mind during this journey.

    I have met many people on this site that are stage 4 but being successfully treated and living good lives. Good luck and please keep us posted. Eil

    Eil
    Thank you so much, we will keep you in our prayers as well. My husband had another CT scan last month we won't know the results until this Thursday when he goes in for chemo. (god help us all ) . Once again thanks for your reply, God bless and take care. I will keep you posted on his results. OOO by the way , you have a very pretty cat in your arms, I'm a pet lover myself.

    well, take care Eil

    star5
  • MONEYBAGSMAMMY
    MONEYBAGSMAMMY Member Posts: 3
    my mums started in the liver
    my mums started in the liver but she did not know it was there now it has spread to colen and lung she is gettin chemo and its shrinkin so there is some hope with it i suspose. how is he doin and u how are u doin
  • This comment has been removed by the Moderator
  • Wenchie
    Wenchie Member Posts: 88
    Stage 4 colon cancer
    Star:
    I see your post was quite a while ago but I'm also a colon cancer person whose cancer has spread to my lungs. How is your husband doing and what type of chemo is he taking?
    Wenchie
  • CBraden
    CBraden Member Posts: 1
    star5 said:

    Thank you so much Joe, Your
    Thank you so much Joe, Your information was very helpful... I am so glad you are cancer free. Thank god.

    My husband was diagnose with stage 4 colon cancer . Doctor gave him a CT Scan which showed spots on his left lung. After the surgery to remove the tumor in his colon it was the size of my husband fist. Dr, told him he wanted to do an biopsy on 1 cm spot just to make sure it wasn't cancer. Well the colon cancer metastisic to the left lung, it was cancer... Not to mention we were told he had 2 months to 2 years to live. OMG, my heart felt so heavy , I cried , at that time my whole world just came down. He is 44 years old too young to leave me and his three daughters. He is on chemo , and taking the meds Xeloda. It hurts me to see him so sick. I am keeping the faith and alot of prayers are going out to all of you as well.

    The 3 spots on his lung one spot disappear and the 1 cm shrunk, one stood the same size, which the dr, said it's nothing to worry about. Doctor also told us , he didn't want to remove one lescians that it was so small , he may not be able to feel it, when he goes in.
    Do you think we should get a second option? Or ask the doctor to go ahead with the surgery.?

    People who you talk with on this web site , can you please let them know to I am here and I would love to talk with them . Do you know any of them , with colon cancer that metastisis to the lung? that are stage 4 ...

    Again, I want to thank you so much Joe for your reply . God bless and keep in touch. Best wishes to you to and a very happy 2009.

    colon cancer metastisis to the lung
    My mother was diagnosed with colon cancer at the age of 49. She underwent 2 rounds of chemo treatment that made her very sick and didn't seem to be affecting the cancer cells at all. Instead of staying ill and feeling like a pile of garbage every day, she decided to do radiation treatment. This really helped her to maintan a positive attitude and regain hope. After the treatment was complete, she was doing well. 6 months later, the doctors noticed that a dark spot on the CT scan had grown. This is where things started to get complicated. They did further scans and x-rays and found that the dark spot was located around the heart where the lungs are connected. After a biopsy, the doctors found that the colon cancer had spread to this area. The only solution thus far it to place a stint in the lung where this mas is blocking the travel of air so she can breath better. Chemo treatment is out of the question for her because she gets so ill. Due to the location of the cancer, they are not able to safely remove any of the cancer cells and they can only allow minimal radiation treatment. I am preparing for the worst because it seems minimal for any hope or rational for her to recover from this. does anyone know of any HOPE?
  • vistion
    vistion Member Posts: 1
    Help is out there...
    There was a story all over our local news recently regarding a Leisa Dargis. She was diagnosed with stage four lung cancers which had metastasized from her lung to her spine and to her brain and was given only 18 months to live. Apparently she chose to take her chances, opting out on the “Western Medicine” chemotherapy / radiation. Instead, she made some serious lifestyle changes consisting mainly of diet as to maintain high alkalinity (an environment in which cancer cannot possibly dwell) and monitored her PH levels closely.

    Reportedly, less than seven months post initial diagnosis she has been confirmed completely cancer free. NBC plugged her web site at the end of their report, which is http://www.diseasefreedom.com which I immediately relayed to my friend Linda whom was recently diagnosed with early stage lung cancer (hence my focus on the topic). Inspired by her success, Linda contacted Leisa Dargis directly (initially through her Website and then by telephone) which, ultimately led to a personal meeting.

    Linda called as she returned from her meeting; “You’ll never guess who I just met with” were the first words she spoke. Her delivery was laced an optimism I’d not head since her diagnosis and an energy sufficient to leave me speechless not to mentioned disadvantaged in the guessing department. “Lisa Dargis! The lady on the news! I’m going to beat this thing!” It sounds trite but I really did almost drop the phone. Not in response to her words but rather the palpable re-emergence of a spirit which had been fading through hopelessness and unspoken fear.

    The results are not yet in but over the past months Linda has stuck to her plan without missing a beat and is literally back to her energetic and upbeat self again. For this I am forever so grateful.
  • Trapbear
    Trapbear Member Posts: 108 Member
    Wenchie said:

    Stage 4 colon cancer
    Star:
    I see your post was quite a while ago but I'm also a colon cancer person whose cancer has spread to my lungs. How is your husband doing and what type of chemo is he taking?
    Wenchie

    Hi Wenchie,
    My husband's

    Hi Wenchie,
    My husband's case sounds similar to you. Diagnosed over two years ago, one nodule in lung but the doctor didn't think it was anything. Did 9 cycles of xeloda and oxaliplatin. A year later more nodules in lung, biopsied, indeed was colon cancer. Liver is still clear. Just finished fourth cycle of folfiri and avastin, one nodule shrank 40%, the others are stable. All are now less than 1 cm. Good news!
    Bill
  • HeartofSoul
    HeartofSoul Member Posts: 729 Member
    vistion said:

    Help is out there...
    There was a story all over our local news recently regarding a Leisa Dargis. She was diagnosed with stage four lung cancers which had metastasized from her lung to her spine and to her brain and was given only 18 months to live. Apparently she chose to take her chances, opting out on the “Western Medicine” chemotherapy / radiation. Instead, she made some serious lifestyle changes consisting mainly of diet as to maintain high alkalinity (an environment in which cancer cannot possibly dwell) and monitored her PH levels closely.

    Reportedly, less than seven months post initial diagnosis she has been confirmed completely cancer free. NBC plugged her web site at the end of their report, which is http://www.diseasefreedom.com which I immediately relayed to my friend Linda whom was recently diagnosed with early stage lung cancer (hence my focus on the topic). Inspired by her success, Linda contacted Leisa Dargis directly (initially through her Website and then by telephone) which, ultimately led to a personal meeting.

    Linda called as she returned from her meeting; “You’ll never guess who I just met with” were the first words she spoke. Her delivery was laced an optimism I’d not head since her diagnosis and an energy sufficient to leave me speechless not to mentioned disadvantaged in the guessing department. “Lisa Dargis! The lady on the news! I’m going to beat this thing!” It sounds trite but I really did almost drop the phone. Not in response to her words but rather the palpable re-emergence of a spirit which had been fading through hopelessness and unspoken fear.

    The results are not yet in but over the past months Linda has stuck to her plan without missing a beat and is literally back to her energetic and upbeat self again. For this I am forever so grateful.

    Im happy for Leisa Dargis
    Im happy for Leisa Dargis and her outcome so far by designing her diet as to maintain high alkalinity and monitoring her PH levels closely. But I would never suggest to anyone, especailly with lung cancer, that diet, vitamins, or holistic approaches is a sound and worthwhile approach. What if your friend decided to postpone conventional treatment for her lung cancer and try to beat cancer with the diet Leisa Dargis promotes and her cancer grows? The time lost very likely could make her treatments increasingly challenging and more difficult to obtain a successful outcome.

    Lung cancer is known to be one of the aggressive types of cancer incl;

    NSCLC accounts for about 80% of lung cancers.
    •Squamous cell carcinoma:
    •Adenocarcinoma. This cancer is found in the glands of the lungs that produce mucus. This is the most common type of lung cancer in women and also among people who have not smoked.
    •Bronchioalveolar carcinoma. This is a rare subset of adenocarcinoma.
    •Large-cell undifferentiated carcinoma. This cancer forms near the surface and grows rapidly.

    SCLC accounts for about 20% of all lung cancers. Although the cells are small, they multiply quickly and form large tumors that can spread throughout the body.
  • Divyesh
    Divyesh Member Posts: 1

    Not me but...
    I am a survivor of Stage 3 head/neck cancer (had half of tongue replaced along with radical neck dissection) who, a couple of years later, developed cancer in the lung.

    I had a lobectomy done on the 31st of January this year. Earlier this month I was pronounced cancer-free.

    Metastisis is problematic, for sure. I HOPED that my lung cancer was a new cancer, and they still do not know because the node they removed was so small. But the cancer is gone.

    Depending on the range and scope of the cancer to hub's lungs, there may be a very good chance of a complete recovery from that. It would be helpful, as mentioned above, if it were a new cancer. It would be helpful if it were non-small cell lung cancer, which is typically less aggressive. And it would be very helpful if it were isolated in one lung, even better if it is restricted to one lobe.

    These factors may play a large role in what is decided next.

    In June of 2007, they thought I had cancer bombarding both lungs and told me to expect a short life thereafter (10 months was the minimum). That turned out to be an incorrect diagnosis, luckily for me, but it might help you understand what the consequences may be if factors do not fall into place.

    At the same time, I am hopeful that it gives you hope!

    I will not lie to you: stage 4 of ANY cancer is not a good thing (heck, stage 0.5 of any cancer is not a good thing). I do, however, know of a number of stage 4 colon cancer survivors. I talk to them regularly on this very site. They are, for the most part, cancer-free, and living fully functional, happy lives.

    It can be done. Let us hope that the lung cancer can be removed. That is the ticket.

    Best wishes to you and your husband and your family for a great 2009.

    Take care,

    Joe

    Please help me!!!
    hey joe..
    I was happy to hear about your survival and winning battle against cancer. My father in law is having 4th stage intestine cancer.. Doctors have stopped his treatment and said him to stay only on liquid.
    i cannot see him going away from me. he means a lot to me. he is like my life.

    Can you please suggest something for him?
    Can you give me your doctors contact number or email ID?
    I need your help desperately.

    Regards
    Divyesh
  • BEC BEC
    BEC BEC Member Posts: 3
    Divyesh said:

    Please help me!!!
    hey joe..
    I was happy to hear about your survival and winning battle against cancer. My father in law is having 4th stage intestine cancer.. Doctors have stopped his treatment and said him to stay only on liquid.
    i cannot see him going away from me. he means a lot to me. he is like my life.

    Can you please suggest something for him?
    Can you give me your doctors contact number or email ID?
    I need your help desperately.

    Regards
    Divyesh

    HELP
    MAY I ASK WHAT'S GOING ON WITH YOUR FATHER IN LAW WHERE DO YOU LIVE? IF THAT MAN IS STILLING PULLING THROUGH GET HIM TO HOUSTON TEXAS THE ANDERSON CLINIC IS THE BEST THEY ARE #1 IN THE STATES
  • BEC BEC
    BEC BEC Member Posts: 3
    Trapbear said:

    Hi Wenchie,
    My husband's

    Hi Wenchie,
    My husband's case sounds similar to you. Diagnosed over two years ago, one nodule in lung but the doctor didn't think it was anything. Did 9 cycles of xeloda and oxaliplatin. A year later more nodules in lung, biopsied, indeed was colon cancer. Liver is still clear. Just finished fourth cycle of folfiri and avastin, one nodule shrank 40%, the others are stable. All are now less than 1 cm. Good news!
    Bill

    WENCHIE
    READING YOUR POST TONIGHT I REALLY GOT EXCITED SOUNDS LIKE YOU GUYS ARE DOING JUST AWESOME. KEEP ON KEEP ON DOING WHAT YOU ARE DOING WITH THE TREATMENT AND REMEMBER TURN IT ALL OVER TO THE LORD OUR SAVIOR IS OUR HEALER.
  • cmankin
    cmankin Member Posts: 1
    I am there
    I am and have had for more then a year now the excact same cancer.
    I have hid it from my family and continue to do so. I let them think it just me
    and my mind to make them feel safe and not worry. I am undergoing a radical
    treatment at Johns Hopkins Once a Month that totally wipes me out. I am about to
    enter stage 4 as my tests have all shown rapid spreading to my lungs and lypnodes.
    I will follow up with you in the next few days.
    Know that your not alone.

    Lost in the truth
    C
    Manassas Va
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    cmankin said:

    I am there
    I am and have had for more then a year now the excact same cancer.
    I have hid it from my family and continue to do so. I let them think it just me
    and my mind to make them feel safe and not worry. I am undergoing a radical
    treatment at Johns Hopkins Once a Month that totally wipes me out. I am about to
    enter stage 4 as my tests have all shown rapid spreading to my lungs and lypnodes.
    I will follow up with you in the next few days.
    Know that your not alone.

    Lost in the truth
    C
    Manassas Va

    Best wishes
    Best of luck and good wishes. My husband lived for 6 years with stage 4 colon cancer originally with mets to the lymph nodes and liver. I know there are many new things out there. Each new thing he tried seemed to add more time. That's really what we are all doing, buying time. That's why we try to live healthy lives and try to avoid very dangerous behaviors. I wish you much more time.

    Please consider sharing your dx with at least some members of your family. Our family became much closer as we supported my husband through this time. We feel very blessed with those 6 years. We were a close family before, but we came to know each other even better. We treasured the time we had together. I can understand not wanted to worry family members, but you may also be depriving them of a chance to support you in a very meaningful way. Fay
  • sister with stage 4 colon cancer
    i am distraught (not a big enough word)....my sister of 47 yrs was just diagnosed one month ago...it has spread to her liver and the lesions are too big to take out surgically...she has started chemo 3 weeks ago and we are unsure of results. they are giving her 2 years if the chemo works...she is going to get a second opinion next week from a dr. who does surgery when no one else does...can anyone help with any advice? hope? i love her so much i can't breath thinking about it...
  • buckeye2
    buckeye2 Member Posts: 428 Member

    sister with stage 4 colon cancer
    i am distraught (not a big enough word)....my sister of 47 yrs was just diagnosed one month ago...it has spread to her liver and the lesions are too big to take out surgically...she has started chemo 3 weeks ago and we are unsure of results. they are giving her 2 years if the chemo works...she is going to get a second opinion next week from a dr. who does surgery when no one else does...can anyone help with any advice? hope? i love her so much i can't breath thinking about it...

    Colorectal Board
    You will find many posting frm Stage IV survivors in the colorectal boards. It's okay for you to post there as the sister. You will find lots of hope there and also lots of information to assist her in her battle. My husband was diagnosed in May with same as your sister. Although we are both scared sh--less, we are continuing to live almost normal lives. He is golfing today for third day in a row. Once you get over the shock, things will return to a new normal where living is still lots of fun. I have four sisters so know how irreplaceable they are. You and yours will have many years ahead. She will need you to be normal and not focus on her illness. Good luck. Lisa
  • Steve Hoog
    Steve Hoog Member Posts: 1
    buckeye2 said:

    Colorectal Board
    You will find many posting frm Stage IV survivors in the colorectal boards. It's okay for you to post there as the sister. You will find lots of hope there and also lots of information to assist her in her battle. My husband was diagnosed in May with same as your sister. Although we are both scared sh--less, we are continuing to live almost normal lives. He is golfing today for third day in a row. Once you get over the shock, things will return to a new normal where living is still lots of fun. I have four sisters so know how irreplaceable they are. You and yours will have many years ahead. She will need you to be normal and not focus on her illness. Good luck. Lisa

    Stage IV
    I was diagnosed in April of 2011; this had been brewing in me since 1999, but was passed off as a bleeding ulcer. By the time my colon was completely blocked in April it spread to nodes, pelvic bone, liver, lungs. Immediate surgery removed the colon tumor, scrapped off all the bone, and removed all nodes. I had 2 sessions of chemo and all 5 tumors in my liver have disappeared from that PET scan as well the 2 spots on my lungs. My CEA was 96 before surgery, 70's before chemo, 50's after the first session, 16 after a month break and having a wisdom tooth pulled, and 4 after the second chemo session. I give credit to God. It may reoccur or maybe not; but to me it's just going to be a bump in the road I will cross without issue. Sincerely, Steve Hoog Tulsa OK 918-260-0151
  • therealnapster
    therealnapster Member Posts: 1
    Diagnosed stage 1 colon cancer in 2008 and found lung nodule
    Dear All,
    I am A.T.M.Golam Bari,diagnosed with T2N0Mx left colon cancer in June 2008 at the age of 25. After that, I went for surgery, 6 cycles of chemotherapy (Oxaliplating and Xeloda tablet),a whole body CT/PET in January 2009. All the reports were fine.After that I was in regular follow up - blood chemistry in each three months, Ultrasonography,CT Scan,Colonoscopy in each year. All the reports look very good till then. Last year in September,2011, I came to South Korea for my higher study here. I went to Kyung Hee University Medical Center for my regular follow up on last March 2012. The oncologist gave me several blood chemistry, Whole abdoment CT and Chest CT. All the reports other than Chest CT was fine. The oncologist analyzed my chest CT and said that there is a small nodule (1 - 2 mm in diameter) in my left lung.I had my Chest X-ray (PA view) before my surgery and Whole body CT/PET after chemotherapy. Both of these reports said - "Both lung fields are clear" but I had not Chest CT previously. However, My doctor has given me another schedule for my chest CT after three months (June 11,2012) to compare with the chest CT of March 13,2012.
    He has said that my body condition is very good and wait to see the next CT scan report.

    After that, I am exploring regarding metastasis colon cancer and found that lung nodules turn into lung cancer frequently especially for a cancer survivor. I am reading extensively about lung cancer symptomps,sign etc and had not found any chest pain or weitgh loss or cough yet. I am maintaining physical exercise and healthy diet. But all is becoming very gloomy to me. I can't understand what is my treatment now and I am becoming very scared. I have my beautiful wife and I don't want to leave this world making her alone so early.
    Please shere your experience and give your information to help me in fighting against cancer.