CA125 inching back up

kayandok
kayandok Member Posts: 1,202 Member
edited March 2014 in Ovarian Cancer #1
CA is inching back up. Going in for a PET/CT today. WIll get the results on December 2nd. Doc suspects a recurrence, but has to confirm with the scan. Am nervous, but trying to stay calm, restful and at peace. Knowing so many of you have been through this and are still here is so reassuring to me.

Kathleen
in Japan

Comments

  • samjan
    samjan Member Posts: 2
    #2
    Kayandok
    Even if the pet reveals a reoccurance, remember that cancer is more a symptom than a disease. A positive attitude and healthy living are the best possible strategies. Don't let fear get to you.

    Please know that I am thinking about you. I was diagnosed in 2004. After a long remission and a new reoccurance I am now doing chemo for the second time. I feel good, my Ca125 is shrinking and I am working on shifting my attitude and lifestyle.

    Please know that you are not alone.

    Janet
  • saundra
    saundra Member Posts: 1,370 Member
    #3
    Prayers
    That's what mine is doing. Be sure to post the PET results. I'm going to ask about one when I see the gyn/onc on the 10th. Psalm 55:22 will help you in the meantime. You are in my prayers. Saundra
  • mopar
    mopar Member Posts: 1,972 Member
    #4
    MORE PRAYERS
    I know this is easier said than done, but don't worry too much about this. Try to have a wonderful Thanksgiving, and relax and enjoy the moments. Soon enough you will see your doctor and get the results. Hopefully, there will be NED.

    I've been through this in 2000, 2006, and I just had a CT scan as follow-up today, and will see my doctor on December 10 for results. I know the waiting is difficult. But a long time ago I realized that I would be wasting good breath and evergy by spending the precious moments worrying until I knew for sure, and I'd be missing out on so many blessings, and denying my family the same. I certainly didn't forget there could be an issue, but I really rely on my faith and family to get me through those rough moments, and move on from there.

    Let us know how your appointment goes. Till then, sending lots of hugs and prayers your way. We'll be waiting to hear from you!

    Blessings,
    Monika
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #5
    pet scan ca125
    Hi Kathleen, Sorry to hear about the inching up of your ca125, as you can see lots of support here. :-) Now remember all the don'ts before the petscan, also that some of the hotspots that show up aren't cancer. Just wanted to stop the panic before it hits or calm the nerves. :-) Sending lots of prayers and hugs. Bonnie
  • floridajo
    floridajo Member Posts: 480
    #6
    Kathleen
    I'll keep you in prayer that nothing shows up on the PET and your numbers rising is a fluke. As some of the ladies have said,try not to worry to much. Don't let this disease rob you of any more than it already has. (((hugz))~~Joanne
  • saundra
    saundra Member Posts: 1,370 Member
    #7
    Waiting
    Kathleen, what did the PET scan show? I never have had one, but plan to ask my gyn/onc on the 10th if I should have one. We are waiting for your news. ((Hugs and Prayers)) Saundra
  • kayandok
    kayandok Member Posts: 1,202 Member
    #8
    saundra said:

    Waiting
    Kathleen, what did the PET scan show? I never have had one, but plan to ask my gyn/onc on the 10th if I should have one. We are waiting for your news. ((Hugs and Prayers)) Saundra

    Thanks for all the support. I went in Tuesday for PET/CT results. A recurrence is confirmed. Several tumors, largest at 1.5cm, including on liver and lung. Now I have entered into stage 4. I have sent all my info, scans etc to my doc in the States and will await his opinion. If he will do surgery, that is probably what I will opt for.....Wait wait wait wait.....:)

    I have been battling worry for about two months, watching the numbers go up. I even had a pity party with my husband for a couple days, and invited a few other close friends, asking all the WHY ME, WHY NOW, WHY WHY WHY? questions there are just no answers to. My husband is still processing a bit, but he is with me 100%. We just are not going to let this ruin our life. I just keep thinking of all the positive stories that you ladies have shared and that gives me hope. I also know that God will take care of me (and my kids!) as He always has. I have let go of the worry.

    Meanwhile, I am physically stronger and in the best shape I have been in for over a year from the daily one hour walks. (I started about a month ago.) It has done wonders for my serotonin levels and even moved the scale down a bit :)

    Will post again when I know what direction I am headed.

    Hugs to all of you!

    kathleen:)
  • saundra
    saundra Member Posts: 1,370 Member
    #9
    kayandok said:

    Thanks for all the support. I went in Tuesday for PET/CT results. A recurrence is confirmed. Several tumors, largest at 1.5cm, including on liver and lung. Now I have entered into stage 4. I have sent all my info, scans etc to my doc in the States and will await his opinion. If he will do surgery, that is probably what I will opt for.....Wait wait wait wait.....:)

    I have been battling worry for about two months, watching the numbers go up. I even had a pity party with my husband for a couple days, and invited a few other close friends, asking all the WHY ME, WHY NOW, WHY WHY WHY? questions there are just no answers to. My husband is still processing a bit, but he is with me 100%. We just are not going to let this ruin our life. I just keep thinking of all the positive stories that you ladies have shared and that gives me hope. I also know that God will take care of me (and my kids!) as He always has. I have let go of the worry.

    Meanwhile, I am physically stronger and in the best shape I have been in for over a year from the daily one hour walks. (I started about a month ago.) It has done wonders for my serotonin levels and even moved the scale down a bit :)

    Will post again when I know what direction I am headed.

    Hugs to all of you!

    kathleen:)

    :-(
    Looks like you and I are on the same course. I have decided not to start chemo until after the Chrismas Holidays and just enjoy.

    I don't know where your stateside doctor is but I hope it is in a large city. I had three 2.5 cm liver tumors when I started that were "inoperatable". I was lucky to have my surgery done in Dallas at Baylor and my gyn/onc surgeon found a surgeon willing to take on my liver (the problem area). He got all of the liver tumors burned out with "radio frequency ablation". So far, so good with the liver. This was the first debulking surgery as I was Stage IV to start with because of the spread to the liver.

    Praise for your good attitude. Read Psalm 121, as it helps me in my doubting scary times. Everyday there are new things to try. You will continue to be in my prayers, our best medicine of all.

    Hugs across the ocean...Saundra
  • mopar
    mopar Member Posts: 1,972 Member
    #10
    kayandok said:

    Thanks for all the support. I went in Tuesday for PET/CT results. A recurrence is confirmed. Several tumors, largest at 1.5cm, including on liver and lung. Now I have entered into stage 4. I have sent all my info, scans etc to my doc in the States and will await his opinion. If he will do surgery, that is probably what I will opt for.....Wait wait wait wait.....:)

    I have been battling worry for about two months, watching the numbers go up. I even had a pity party with my husband for a couple days, and invited a few other close friends, asking all the WHY ME, WHY NOW, WHY WHY WHY? questions there are just no answers to. My husband is still processing a bit, but he is with me 100%. We just are not going to let this ruin our life. I just keep thinking of all the positive stories that you ladies have shared and that gives me hope. I also know that God will take care of me (and my kids!) as He always has. I have let go of the worry.

    Meanwhile, I am physically stronger and in the best shape I have been in for over a year from the daily one hour walks. (I started about a month ago.) It has done wonders for my serotonin levels and even moved the scale down a bit :)

    Will post again when I know what direction I am headed.

    Hugs to all of you!

    kathleen:)

    PRAYERS & HUGS
    Kathleen:

    I'm sorry to hear you have a confirmed recurrance. Nothing ever really prepares us for that. But I am so relieved that you find comfort and encouragement, not only here, but with your husband and friends. I don't know what I would have done without my 'circle', and most importantly, my faith. And I could write books about the gals here who have lifted my spirits and been so encouraging and helpful, not to mention the friendship I have made.

    Please let us know how your doctor and you decide to approach this. There are so many options available. So glad that you have found an exercise program to strengthen your body and mind. I find exercise to be a great 'release'. I do some of my best thinking and praying actually while I'm exercising, not to mention all the positive physical benefits.

    Much luv, hugs and prayers to you, Kathleen. We'll be waiting to hear.

    God's Blessings
    Monika

    P.S. One of my favorites: Psalm 91
  • Dreamdove
    Dreamdove Member Posts: 175 Member
    #11
    kayandok said:

    Thanks for all the support. I went in Tuesday for PET/CT results. A recurrence is confirmed. Several tumors, largest at 1.5cm, including on liver and lung. Now I have entered into stage 4. I have sent all my info, scans etc to my doc in the States and will await his opinion. If he will do surgery, that is probably what I will opt for.....Wait wait wait wait.....:)

    I have been battling worry for about two months, watching the numbers go up. I even had a pity party with my husband for a couple days, and invited a few other close friends, asking all the WHY ME, WHY NOW, WHY WHY WHY? questions there are just no answers to. My husband is still processing a bit, but he is with me 100%. We just are not going to let this ruin our life. I just keep thinking of all the positive stories that you ladies have shared and that gives me hope. I also know that God will take care of me (and my kids!) as He always has. I have let go of the worry.

    Meanwhile, I am physically stronger and in the best shape I have been in for over a year from the daily one hour walks. (I started about a month ago.) It has done wonders for my serotonin levels and even moved the scale down a bit :)

    Will post again when I know what direction I am headed.

    Hugs to all of you!

    kathleen:)

    thanks for letting us know
    Kathleen in Japan, I wish you success in your next course of treatment. So sorry to hear of a recurrance--we ovarian cancer survivors sit here dreading the possibility it could happen to us, too. I am 18 months in remission. I have a checkup on Jan. 8. When it was scheduled it never occurred to me until a couple of days ago that that was the day 2 years ago I had my cancer surgery. Some abnormal cells showed up in my last pap test and I will be retested in Jan. I still have spotting, which concerns me. I just have to keep thinking that abnormal cells don't mean cancer, as long as my CA-125 is normal. I'd freak out if it went up. I keep holding on for my kids. I still have one at home who is 14, a freshman in high school. I'm the only parent in her life. That's what gives me strength. With your husband and children, that fact alone will give you strength to survive because they need you. Keep up the walking if you possibly can. I started walking as soon as I could after my surgery and I do believe it has helped strengthen me. I was in stage 3c and I am so lucky it was caught then because one ofthe tumors was found above my liver on my diaphram. Take care of yourself and let us know how you are doing and the next step in treatment. Even though it's a private struggle, we on here can relate. Elizabeth
  • ladyjogger31
    ladyjogger31 Member Posts: 289
    #12
    Hi Kathleen
    Hi Kathleen,
    I’m so sorry to hear about your reoccurrence and what you are going through is what we all fear. I’ve never been in remission. Keep believing in miracles, God is Faithful. I will keep you in my prayers God Bless.
    Hugs and Prayers, Terry
  • LPack
    LPack Member Posts: 645
    #13
    kayandok said:

    Thanks for all the support. I went in Tuesday for PET/CT results. A recurrence is confirmed. Several tumors, largest at 1.5cm, including on liver and lung. Now I have entered into stage 4. I have sent all my info, scans etc to my doc in the States and will await his opinion. If he will do surgery, that is probably what I will opt for.....Wait wait wait wait.....:)

    I have been battling worry for about two months, watching the numbers go up. I even had a pity party with my husband for a couple days, and invited a few other close friends, asking all the WHY ME, WHY NOW, WHY WHY WHY? questions there are just no answers to. My husband is still processing a bit, but he is with me 100%. We just are not going to let this ruin our life. I just keep thinking of all the positive stories that you ladies have shared and that gives me hope. I also know that God will take care of me (and my kids!) as He always has. I have let go of the worry.

    Meanwhile, I am physically stronger and in the best shape I have been in for over a year from the daily one hour walks. (I started about a month ago.) It has done wonders for my serotonin levels and even moved the scale down a bit :)

    Will post again when I know what direction I am headed.

    Hugs to all of you!

    kathleen:)

    Sorry too
    Kathleen,

    I too am sorry to hear about the recurrence. Prayer is what connects us all and I will prayer right now for you and your family. God is good all the time. All the time God is good. I cling to both Nehemiah 8:10 and Proverbs 17:22.

    In His Grip,
    Libby
  • kayandok
    kayandok Member Posts: 1,202 Member
    #14
    ladyjogger31 said:

    Hi Kathleen
    Hi Kathleen,
    I’m so sorry to hear about your reoccurrence and what you are going through is what we all fear. I’ve never been in remission. Keep believing in miracles, God is Faithful. I will keep you in my prayers God Bless.
    Hugs and Prayers, Terry

    Thanks!
    Thanks ladies, for your comments, support, scriptures and prayers. You are the best! I keep telling myself how blessed I am to be sitting over here in my corner of the world and yet always feeling so connected to OVCA survivors. Internet is a huge blessing for me.

    My doc is in CA and very famous for ovarian cancer. Known to be one of the best. I have total confidence in him and his opinion of what I should do. I should hear back next week

    I will update when I find out more info...

    Hugs to all of you wonderful ladies,
    kathleen :)
  • saundra
    saundra Member Posts: 1,370 Member
    #15
    That's great.
    Good to have a dependable doctor. I do too! Two of the best in the state. Plus they are caring. I may be coming to Japan to see my son after Christmas. I have to see what the onc/gyn says on the 10th. If I can put off chemo for a month or more and stay on the anti-estrogen I will have the energy for the trip. We were planning for end of March to see the cherry blossoms but I may have to come earlier. He lives near Tokyo, a suburb. Saundra
  • Dreamdove
    Dreamdove Member Posts: 175 Member
    #16
    kayandok said:

    Thanks!
    Thanks ladies, for your comments, support, scriptures and prayers. You are the best! I keep telling myself how blessed I am to be sitting over here in my corner of the world and yet always feeling so connected to OVCA survivors. Internet is a huge blessing for me.

    My doc is in CA and very famous for ovarian cancer. Known to be one of the best. I have total confidence in him and his opinion of what I should do. I should hear back next week

    I will update when I find out more info...

    Hugs to all of you wonderful ladies,
    kathleen :)

    So important to have a good doctor to care for you
    Kathleen, it's great that you have so much confidence in your doctor. I, too, have a wonderful doctor and if it wasn't for him I do believe I would not be here now. He is a gifted person. He's the only gynelogical oncologist in Northeastern Wisconsin. He came from Florida to practice here because he was so needed. Women used to have to travel far to see a good doctor before he came here. I have confidence that if my cancer returns he will do what he can to help me. I know he has alot of patients but he does his best with each patient. Good luck and take care.
  • kayandok
    kayandok Member Posts: 1,202 Member
    #17
    saundra said:

    That's great.
    Good to have a dependable doctor. I do too! Two of the best in the state. Plus they are caring. I may be coming to Japan to see my son after Christmas. I have to see what the onc/gyn says on the 10th. If I can put off chemo for a month or more and stay on the anti-estrogen I will have the energy for the trip. We were planning for end of March to see the cherry blossoms but I may have to come earlier. He lives near Tokyo, a suburb. Saundra

    Tokyo
    Saundra, very cool. Your son must be so excited. I live 600 miles or so from Tokyo, otherwise we could have lunch! Cherry blossom season is the most beautiful, but good to schedule around how you are feeling...

    Take care,
    Kathleen:)
  • green50
    green50 Member Posts: 312
    #18
    kayandok said:

    Thanks!
    Thanks ladies, for your comments, support, scriptures and prayers. You are the best! I keep telling myself how blessed I am to be sitting over here in my corner of the world and yet always feeling so connected to OVCA survivors. Internet is a huge blessing for me.

    My doc is in CA and very famous for ovarian cancer. Known to be one of the best. I have total confidence in him and his opinion of what I should do. I should hear back next week

    I will update when I find out more info...

    Hugs to all of you wonderful ladies,
    kathleen :)

    sorry of reoccurence
    sorry Kathleen I will pray for you. I have been taking chemo off and on for 6 and a half years and I look at it as I still have control. Take chemo and CA125 goes down. I am taking it now as I type. CA125 was 14000 and now 4500 and going down. I will try for below 100 which it has always done then I take break. I think of it as like a diabetic getting controlled with insulin. I hope all goes well for you. Keep up a good attitude and hopefully we will all beat this.
    God Bless and my prayers are with you.
    Sandy Green

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