Nausea already??

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Comments

  • VickiCO
    VickiCO Member Posts: 917
    #22
    KathiM said:

    Ask for a towel...
    or take a travel pillow (one of those blow-up semi-circle things) to put under your port.

    I am so sorry you cried, my sweet soul...I am putting my arms around you right now...

    BIG, fuzzy, warm hugs,
    Kathi

    BTW, when they put the needle into my port, I always blew out air thru my mouth...it seems to help...

    yeah, a pillow would be good
    I did blow out as she tried to get the needle in, but my port was not aligning for whatever reason. Of course, I blame Dr Doom, the original surgeon that I disliked, and the one who put in the port! LOL! But she said the port was OK, just not able to 'find the spot' probably because of the blood. We rested and then on the 4th try she got it straight in.

    Funny thing is, I rarely cry for pain, or for myself. I think I had just had it today.
  • kmygil
    kmygil Member Posts: 876 Member
    #23
    I don't know what reality your med team works in, but pukiness descends when it feels like it, not according to schedule. At first I got pukey on day 3, then by tx 4 on day 2, and by tx 6 on the day itself. Toward the end, pukiness was just a state of being, however the antiemetics kept me from actually puking--just nausea. Hang in there. This will pass. Stay hydrated and keep good nutrition even if it is an effort.

    Hugs,
    Kirsten
  • krystiesq
    krystiesq Member Posts: 240 Member
    #24
    get emla cream for port
    My mom's port is really deep and lower than normal. She puts on emla cream two hours before we go to get port accessed and she can't feel a thing.
  • msccolon
    msccolon Member Posts: 1,917 Member
    #25
    VickiCO said:

    Well, if it's not one thing...
    This afternoon I started to bleed where the needle goes into the port. I can tell you it scared the you-know-what out of me. The doctor had me go to the cancer center, where an oncology nurse took it all apart, cleaned the area and reset everything. However, due to a number of reasons, not the least which was that I was too tense, it took 4 tries to get the new needle in. Let me tell you how that hurt! She froze the area with that spray- numbing stuff, but I could still feel it. By the time we were done, both she and I were crying together. None of this was her fault - apparently I have an anomaly. But, we persevered and now all is well.

    It seems when I had my radiation this morning, I pressed the needle too hard down onto the table. I will be super, super careful from now on. And today started out so well...

    Vicki

    What a dear your onc nurse is!
    That she can feel for her patients so much that she cries with you! They are probably the most underrated people on this earth! I pray for my oncology team often; I can't imagine having their jobs. You think of the number of people they see in pain and (unfortunately) the number that they see pass on. I would expect a lot of burnout or a lot of very distant people (protecting themselves from the pain). I hope your next radiation treatment goes well. And you probably weren't crying for the pain, you were probably scared and tired and, like you said, had had ENOUGH!
    mary
  • pamness
    pamness Member Posts: 524 Member
    #26
    I don't get what is going on here at all - anti nausea meds and
    I got nauseous day one no matter what the treatment, but you shouldn't be puking day one, two, three, four and really not at all.

    First of all - the first line of defense in anti-nausea meds is compazine, it is for mild nausea and given for all sorts of things. Zolfran is the anti-nausea med of choice - works for 8 hours, should control nausea from 5FU and you use compazine and ativan for breakthrough nausea. Common side effect - headache and constipation.

    More severe nausea, generally after chemo with 5FU and oxaliplatin and whatever - emend with decadron (a steriod).

    Constipation - usually recommended with senokot, a stool softener, apple sauce, prune juice - if that doesn't work - miralax or the equivalent.

    I had a horrible time with chemo and was on the emend with zolfran compazine, decadron and ativan and had to take the miralax. I was nauseous for 9 or 10 out of 14 days - with 5FU and oxaliplatin - it was better with the 5FU and radiation - that was where immodium came in. I still took a little zolfran but no emend or decadron - occasionally compazine and/or ativan.

    I don't know where you are being treated but your symptoms should be treated more aggressively (it doesn't pose any danger to you). A side effect of compazine is that it can make you very anxious.
  • VickiCO
    VickiCO Member Posts: 917
    #27
    pamness said:

    I don't get what is going on here at all - anti nausea meds and
    I got nauseous day one no matter what the treatment, but you shouldn't be puking day one, two, three, four and really not at all.

    First of all - the first line of defense in anti-nausea meds is compazine, it is for mild nausea and given for all sorts of things. Zolfran is the anti-nausea med of choice - works for 8 hours, should control nausea from 5FU and you use compazine and ativan for breakthrough nausea. Common side effect - headache and constipation.

    More severe nausea, generally after chemo with 5FU and oxaliplatin and whatever - emend with decadron (a steriod).

    Constipation - usually recommended with senokot, a stool softener, apple sauce, prune juice - if that doesn't work - miralax or the equivalent.

    I had a horrible time with chemo and was on the emend with zolfran compazine, decadron and ativan and had to take the miralax. I was nauseous for 9 or 10 out of 14 days - with 5FU and oxaliplatin - it was better with the 5FU and radiation - that was where immodium came in. I still took a little zolfran but no emend or decadron - occasionally compazine and/or ativan.

    I don't know where you are being treated but your symptoms should be treated more aggressively (it doesn't pose any danger to you). A side effect of compazine is that it can make you very anxious.

    I am fine
    If you read ALL of my posts, you would know that I have both my nausea and my constipation under control. I am being treated VERY well at my cancer center, and was not passing judgment on my care or my doctors, just asking how others handled the nausea. I appreciate your concern, but I am confused why you seem to think I am getting substandard care? I will follow my doctor's plan, and as long as I take the responsibility to let them know what is happening, they adjust the plan as needed. I am brand new to treatment (5 days now), and still learning when I need to tell the docs what is going on. When I am farther down the road, these questions may not seem as necessary.

    Thanks for your input. Vicki
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #28
    VickiCO said:

    I am fine
    If you read ALL of my posts, you would know that I have both my nausea and my constipation under control. I am being treated VERY well at my cancer center, and was not passing judgment on my care or my doctors, just asking how others handled the nausea. I appreciate your concern, but I am confused why you seem to think I am getting substandard care? I will follow my doctor's plan, and as long as I take the responsibility to let them know what is happening, they adjust the plan as needed. I am brand new to treatment (5 days now), and still learning when I need to tell the docs what is going on. When I am farther down the road, these questions may not seem as necessary.

    Thanks for your input. Vicki

    Those 3 words
    I am fine...............those words tell me your gonna be fine and thats good to hear...Keep up the positive thoughts....God Bless ya
  • VickiCO
    VickiCO Member Posts: 917
    #29
    Hey Buddy!
    You know, this morning when I went for radiation, I walked in to hear the tech say "Here comes our own Miss Positive Attitude!" I guess it shows...

    Thanks for being there, Vicki
  • pamness
    pamness Member Posts: 524 Member
    #30
    pamness said:

    I don't get what is going on here at all - anti nausea meds and
    I got nauseous day one no matter what the treatment, but you shouldn't be puking day one, two, three, four and really not at all.

    First of all - the first line of defense in anti-nausea meds is compazine, it is for mild nausea and given for all sorts of things. Zolfran is the anti-nausea med of choice - works for 8 hours, should control nausea from 5FU and you use compazine and ativan for breakthrough nausea. Common side effect - headache and constipation.

    More severe nausea, generally after chemo with 5FU and oxaliplatin and whatever - emend with decadron (a steriod).

    Constipation - usually recommended with senokot, a stool softener, apple sauce, prune juice - if that doesn't work - miralax or the equivalent.

    I had a horrible time with chemo and was on the emend with zolfran compazine, decadron and ativan and had to take the miralax. I was nauseous for 9 or 10 out of 14 days - with 5FU and oxaliplatin - it was better with the 5FU and radiation - that was where immodium came in. I still took a little zolfran but no emend or decadron - occasionally compazine and/or ativan.

    I don't know where you are being treated but your symptoms should be treated more aggressively (it doesn't pose any danger to you). A side effect of compazine is that it can make you very anxious.

    Glad you are feeling beter
    But if you wonder why I replied the way I did, look at your first post - it seemed as though compazine was all you were getting. Very happy to hear that things are going well now.,

    I wish you all the best.

    Happy holidays,

    Pam
  • VickiCO
    VickiCO Member Posts: 917
    #31
    I am sorry
    Pamness,
    This was my grouchy week...I didn't mean offense. Thank you for your concern and help. I will need it as I go forward.

    Vicki

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