Good news to report!
shmurciakova
Member Posts: 906 Member
Hi Everyone,
I know there are a lot of newbies on the forums who don't know me, but I just wanted to report my good news! Four years post treatment I am STILL NED! Yay!
I hope this gives hope to some of you starting out on this "journey". I was diagnosed at the age of 31 and at the time they thought I was Stage III. I had 6 months of 5-FU/Leukovorin which was the standard treatment WAY back in 2002! We've come a long way since then for sure! At my first followup post chemo they found out I had a walnut sized nodule on my liver. I guess it had been there all along and had just been too small to see. I did FOLFIRI that whole summer following my liver resection. I was NED for only 4 months before they found two lung nodlues on my right lung. After 8 months of "it's cancer", "it's not cancer", etc. They lit up on a PET scan and were resected in October of 2004! I have been NED since then by the grace of God, luck, and I believe by changing my diet and my attitude that I would be healed from this disease. So, if you are starting out or struggling, please know that there are some of us out there who have beaten Stage IV and continue to thrive! My husband and I just got back from an amazing trip to Tibet and Nepal where I got to trek around the East Face of Mt. Everest. It had been something I had been wanting to do for a long time but feared I would not be able to because of my situation with colon cancer.
My advice is BELIEVE you can be healed and LIVE like there is no tomorrow!
Thanks for the support you all have given me over the years. As I told Limey, this site is like a refuge from the storm.
Cheers,
Susan H.
I know there are a lot of newbies on the forums who don't know me, but I just wanted to report my good news! Four years post treatment I am STILL NED! Yay!
I hope this gives hope to some of you starting out on this "journey". I was diagnosed at the age of 31 and at the time they thought I was Stage III. I had 6 months of 5-FU/Leukovorin which was the standard treatment WAY back in 2002! We've come a long way since then for sure! At my first followup post chemo they found out I had a walnut sized nodule on my liver. I guess it had been there all along and had just been too small to see. I did FOLFIRI that whole summer following my liver resection. I was NED for only 4 months before they found two lung nodlues on my right lung. After 8 months of "it's cancer", "it's not cancer", etc. They lit up on a PET scan and were resected in October of 2004! I have been NED since then by the grace of God, luck, and I believe by changing my diet and my attitude that I would be healed from this disease. So, if you are starting out or struggling, please know that there are some of us out there who have beaten Stage IV and continue to thrive! My husband and I just got back from an amazing trip to Tibet and Nepal where I got to trek around the East Face of Mt. Everest. It had been something I had been wanting to do for a long time but feared I would not be able to because of my situation with colon cancer.
My advice is BELIEVE you can be healed and LIVE like there is no tomorrow!
Thanks for the support you all have given me over the years. As I told Limey, this site is like a refuge from the storm.
Cheers,
Susan H.
0
Comments
-
Helpful news
Dear Susan:
I have just recently been diagnosed with colon cancer. Tomorrow, I go in for a liver biopsy to once and I hope for all determine if it has spread. The plan to date is 10 weeks of chemo/radiation followed by surgery. If the biopsy prove cancerous the plans will change. I hope and pray this will not be the case.
Your message of hope was helpful.
Thanks for sharing and good luck. I have long wanted to climb Mt. Ranier. Maybe I will put it higher on the list.
Mike0 -
awesome post!
It is always good to hear when one of us is able to beat the beast back and enjoy life! We all feel, at times, like we will never see the end of the tunnel; then we arrive at the end of chemo and get to feel normal again! Sounds like your trip was a lot of fun!
mary0 -
WooHoo!
Thank you for sharing your story! I dream of 4 yrs out NED! You give us all hope for a cure and belief that it is possible to live on, even after a stage IV diagnosis. I'm so glad you got to realize a dream that felt so out of reach just a few short years ago.
congratulations!
Kimby0 -
Yea!!
Dear Susan,
YEA!!!!! Your story is such an inspiration to us all! Fantastic news. Hearty congratulations on your continuing NED status.
I'm so glad you did the trip to Tibet and Nepal! Mountain treks are high on my list of "visions/dreams" for the future -- and you did it!!
Love,
Tara0 -
Awesome
Congratulations Susan. Am thrilled for you. keep the faith.
God Bless,
Diane0 -
Just awesome news
Congrats and many blessings! I do not know at what point you become a veteran not a newbie but I always read your posts from 9/06 on and ma encouraged by them. Like others, I am a Stage 4 and doing fine right now with 8 months on NED under my belt... It is so heartening to hear success stories.
AWESOME!!!
Chip0
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