pancreatic cancer

unsal
unsal Member Posts: 1
edited March 2014 in Rare and Other Cancers #1
hello, is there anybody who fights against pancreatic cancer?
«1

Comments

  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #2
    Hello,

    You may want to search the personal web pages on the this site. On the left hand side of this page, click on "Personal Web Pages." You can then set the diagnosis and criteria you are looking for. If you find someone you would like to contact, you can do so through the internal CSN email system. For information on all of the functions of the CSN, visit the help link at the top of this page.

    Take care,

    Dana
    CSN Dana
  • mrwhipl
    mrwhipl Member Posts: 1
    #3
    i been fighting it for 8 years. im 43, was discovered when i was 35.
  • bkr31
    bkr31 Member Posts: 5
    #4
    I am 31 and had the whipple procedure done almost a year ago....
  • ruth511
    ruth511 Member Posts: 4
    #5
    bkr31 said:

    I am 31 and had the whipple procedure done almost a year ago....

    had the whipple 5/11/05 going on 3 years now getting over the surgery was kinda tough be patient i know its hard if you contact me i will reply i/m ruth511 on this site hope to here from you soon
  • ruth511
    ruth511 Member Posts: 4
    #6
    mrwhipl said:

    i been fighting it for 8 years. im 43, was discovered when i was 35.

    hello mrwhipl i/m ruth511/s husband she had her whipple 05/11/05 for a stage3 adenocarcinoma on the common bile duct they took lymph nodes off of the pancreas the head of the pancreas duodenum gall bladder a peice of the stomach did doctor this a/m blood still looks good weight is down though do you have trouble keeping you weight up?? her/s is down to 121 she was about 170 when she had her surgery she was 135 last august what kinds of med/s are you tied to just curiuos she takes 7 in the a/m/ 5 at noon 6 at bed time she is dictateing this it/s hard for her to see would like to here from you hope things are good for you god bless
  • ruth511
    ruth511 Member Posts: 4
    #7
    bkr31 said:

    I am 31 and had the whipple procedure done almost a year ago....

    my wife hwd her whipple on 05/11/05 please respond hope you are doing well maybe we can help each other
  • ajbf
    ajbf Member Posts: 28
    #8
    my husband had a 2 inch neuroendocrine tumor in the pancreas tail, he had a distal pancreatectomy and a splenectomy , in nov 2007 ,
  • lucy11
    lucy11 Member Posts: 5
    #9
    hi, my husband age 55, has unoperable cancer of the pancreas. he completed a phase 2 clinical trial at the University of Michigan. he just began a second round of chemo this week her in PA where we live. i am seeking support from other women who have husband's with pancreatic cancer.
  • ajbf
    ajbf Member Posts: 28
    #10
    lucy11 said:

    hi, my husband age 55, has unoperable cancer of the pancreas. he completed a phase 2 clinical trial at the University of Michigan. he just began a second round of chemo this week her in PA where we live. i am seeking support from other women who have husband's with pancreatic cancer.

    hello, my husband (51) had a his tumor remove from the tail of his pancreas , they think it had spread to his live, the ct scan found a lesion on his liver, his neuro-endocrine tumor was very rare,he had chemo for the other rare cancer (varient hairy cell leukemia/lymphoma )u can look on the personal web page on this site, about how we found out,and more! i wish u and your husband the best,their is a spot were you can see other peoples treaments ,they find new treatments all the time. (look at patrick swayz the dirty dancing guy ) they say hes back making movies, i would like to know more about his treatment! we have 4 kids,do u have any kids, its so hard to be strong infront of them, i cry alone,i cry thinking about the day i took him into the er, when this all started,ive been married to my husband 22 years, ive been with him since i was 19. he has been hasentating on taking more test, i tell him we have to be proactive,he say there fishing,he dose want to know whats on his liver,or if it has spread,the doctor talked him into it,it took a month for him to agree..so we r waiting for the appt 4 the octreotide test, i will update on our web page when we have results, i go on-line almost every day, ajbf
  • lucy11
    lucy11 Member Posts: 5
    #11
    ajbf said:

    hello, my husband (51) had a his tumor remove from the tail of his pancreas , they think it had spread to his live, the ct scan found a lesion on his liver, his neuro-endocrine tumor was very rare,he had chemo for the other rare cancer (varient hairy cell leukemia/lymphoma )u can look on the personal web page on this site, about how we found out,and more! i wish u and your husband the best,their is a spot were you can see other peoples treaments ,they find new treatments all the time. (look at patrick swayz the dirty dancing guy ) they say hes back making movies, i would like to know more about his treatment! we have 4 kids,do u have any kids, its so hard to be strong infront of them, i cry alone,i cry thinking about the day i took him into the er, when this all started,ive been married to my husband 22 years, ive been with him since i was 19. he has been hasentating on taking more test, i tell him we have to be proactive,he say there fishing,he dose want to know whats on his liver,or if it has spread,the doctor talked him into it,it took a month for him to agree..so we r waiting for the appt 4 the octreotide test, i will update on our web page when we have results, i go on-line almost every day, ajbf

    Dear ajbf, my heart goes out to you. We have a daughter age 14. my husband was diagnosed 2/14/08. He has adenocarcinoma of the head of the pancreas. We moved to Ann Arbor Michigan for 6 six to undergo a clinical trial. His is inoperable and will not respond to "normal" treatment. He underwent 5 weeks of 5x week, radiation with every monday chemo (gemcitabine).
    we have been home a little over one month. He started back on chemo this past monday. he will not ever be able to have more radiation. I cry daily as well, and try so hard to keep my spirits up for our daughter. Do you find that you have to put on a happier strong appearance for people,even relatives. I feel like sometimes people forget the caregiver (wife) needs help too.
  • ajbf
    ajbf Member Posts: 28
    #12
    lucy11 said:

    Dear ajbf, my heart goes out to you. We have a daughter age 14. my husband was diagnosed 2/14/08. He has adenocarcinoma of the head of the pancreas. We moved to Ann Arbor Michigan for 6 six to undergo a clinical trial. His is inoperable and will not respond to "normal" treatment. He underwent 5 weeks of 5x week, radiation with every monday chemo (gemcitabine).
    we have been home a little over one month. He started back on chemo this past monday. he will not ever be able to have more radiation. I cry daily as well, and try so hard to keep my spirits up for our daughter. Do you find that you have to put on a happier strong appearance for people,even relatives. I feel like sometimes people forget the caregiver (wife) needs help too.

    hi, i left a reply on your discussion,
  • charmlise
    charmlise Member Posts: 1
    #13
    lucy11 said:

    hi, my husband age 55, has unoperable cancer of the pancreas. he completed a phase 2 clinical trial at the University of Michigan. he just began a second round of chemo this week her in PA where we live. i am seeking support from other women who have husband's with pancreatic cancer.

    pancreatic cancer
    hi, my husband is 58 with inoperable pancreatic cancer. After a year of treatment, his health has deteriorated and he is now off of treatment to give him a chance to recuperate. Each day is a gift, our future is today, that's all we have right now. I would really like to know how you are coping, because it feels like, although we are surrounded by people, that we are alone. Maybe chatting with someone in the same situation will help.
  • Gordon Hendrickson
    Gordon Hendrickson Member Posts: 1
    #14
    charmlise said:

    pancreatic cancer
    hi, my husband is 58 with inoperable pancreatic cancer. After a year of treatment, his health has deteriorated and he is now off of treatment to give him a chance to recuperate. Each day is a gift, our future is today, that's all we have right now. I would really like to know how you are coping, because it feels like, although we are surrounded by people, that we are alone. Maybe chatting with someone in the same situation will help.

    Pancreatic cancer
    I am 73 years old and was diagnosed with pancreatic can in June, 6 years ago. I was told that I was in stage 4, but today I am doing quite well. I have some problems with digestion and elination, but it's not too bad as I feel so fortunate. The New York Times wrote an article about me in July of 2007 and you can google me to read more.
    I talk to people all over the country about living after being diagnosed with pancreatic cancer. In many ways, I am a MIRACLE and feel that I now have a purtpose in life, more than ever. You can write me directly at gordonhend@msn.com.
    Believe in MIRACLES
    Gordon
  • jimsbaby
    jimsbaby Member Posts: 6
    #15
    Gordon Hendrickson said:

    Pancreatic cancer
    I am 73 years old and was diagnosed with pancreatic can in June, 6 years ago. I was told that I was in stage 4, but today I am doing quite well. I have some problems with digestion and elination, but it's not too bad as I feel so fortunate. The New York Times wrote an article about me in July of 2007 and you can google me to read more.
    I talk to people all over the country about living after being diagnosed with pancreatic cancer. In many ways, I am a MIRACLE and feel that I now have a purtpose in life, more than ever. You can write me directly at gordonhend@msn.com.
    Believe in MIRACLES
    Gordon

    Here I am again
    Hi there, I thought I would reply and let you know I was here, and thank you for the emails. Sherry
  • Alyssa B
    Alyssa B Member Posts: 3
    #16
    pancreatic cancer
    Hi. I have adenocarcinoma of the middle and head of the pancreas. Here is my story. I am so glad to have found this group!

    was diagnosed with locally advanced pancreatic cancer on Dec. 27, 2007. It is non-resectable. I am a 38 year old mother of 7. I had 29 radiation treatments and weekly Gemzar treatments beginning in January and ending in March. I then had a month off of treatment. When I was first diagnosed, my tumor measured 6.0 x 5.5 cm and was wrapped around the hepatic artery and the portal vein. In March I had an MRI and my tumor had shrunk slightly. I went back on Gemzar in April and have been on a 3 weeks on, one week off schedule since then. I started having excruciating pain in June and was given another MRI. At that point my tumor measured 4.0 x 3.7 cm. It had continued to shrink. Doctors have no idea why. It seems I am the only one they have seen Gemzar do this with. Unfortunately, my tumor was still inoperable in June. I continued to have debillitating pain throughout June and was hospitalized at the beginning of July. I had bilateral pneumonia with my lungs 1/3 collapsed. I also had 6 ulcers and stones and sludge in my gall bladder. I was in the hospital a total of 8 days. Upon release I felt better for a few days and then my pain increased some more. I was finally given a celiac access nerve block -- I have been pain free since. In fact, I am completely off narcotics for the first time since my diagnosis. My white cell count has been too low for treatment three times in the last two months. I had my most recent MRI last week. My tumor now measures 3.1 x 2.3 cm! Still no medical explanation but who cares! I am beating this dreadful disease so far. My tumor is still inoperable but is shrinking. I feel blessed.
  • Alyssa B
    Alyssa B Member Posts: 3
    #17
    Alyssa B said:

    pancreatic cancer
    Hi. I have adenocarcinoma of the middle and head of the pancreas. Here is my story. I am so glad to have found this group!

    was diagnosed with locally advanced pancreatic cancer on Dec. 27, 2007. It is non-resectable. I am a 38 year old mother of 7. I had 29 radiation treatments and weekly Gemzar treatments beginning in January and ending in March. I then had a month off of treatment. When I was first diagnosed, my tumor measured 6.0 x 5.5 cm and was wrapped around the hepatic artery and the portal vein. In March I had an MRI and my tumor had shrunk slightly. I went back on Gemzar in April and have been on a 3 weeks on, one week off schedule since then. I started having excruciating pain in June and was given another MRI. At that point my tumor measured 4.0 x 3.7 cm. It had continued to shrink. Doctors have no idea why. It seems I am the only one they have seen Gemzar do this with. Unfortunately, my tumor was still inoperable in June. I continued to have debillitating pain throughout June and was hospitalized at the beginning of July. I had bilateral pneumonia with my lungs 1/3 collapsed. I also had 6 ulcers and stones and sludge in my gall bladder. I was in the hospital a total of 8 days. Upon release I felt better for a few days and then my pain increased some more. I was finally given a celiac access nerve block -- I have been pain free since. In fact, I am completely off narcotics for the first time since my diagnosis. My white cell count has been too low for treatment three times in the last two months. I had my most recent MRI last week. My tumor now measures 3.1 x 2.3 cm! Still no medical explanation but who cares! I am beating this dreadful disease so far. My tumor is still inoperable but is shrinking. I feel blessed.

    Pancreatic cancer P.S.
    I forgot to say that I am open to receiving email from anyone.
  • NETsurvivor
    NETsurvivor Member Posts: 16
    #18
    Alyssa B said:

    pancreatic cancer
    Hi. I have adenocarcinoma of the middle and head of the pancreas. Here is my story. I am so glad to have found this group!

    was diagnosed with locally advanced pancreatic cancer on Dec. 27, 2007. It is non-resectable. I am a 38 year old mother of 7. I had 29 radiation treatments and weekly Gemzar treatments beginning in January and ending in March. I then had a month off of treatment. When I was first diagnosed, my tumor measured 6.0 x 5.5 cm and was wrapped around the hepatic artery and the portal vein. In March I had an MRI and my tumor had shrunk slightly. I went back on Gemzar in April and have been on a 3 weeks on, one week off schedule since then. I started having excruciating pain in June and was given another MRI. At that point my tumor measured 4.0 x 3.7 cm. It had continued to shrink. Doctors have no idea why. It seems I am the only one they have seen Gemzar do this with. Unfortunately, my tumor was still inoperable in June. I continued to have debillitating pain throughout June and was hospitalized at the beginning of July. I had bilateral pneumonia with my lungs 1/3 collapsed. I also had 6 ulcers and stones and sludge in my gall bladder. I was in the hospital a total of 8 days. Upon release I felt better for a few days and then my pain increased some more. I was finally given a celiac access nerve block -- I have been pain free since. In fact, I am completely off narcotics for the first time since my diagnosis. My white cell count has been too low for treatment three times in the last two months. I had my most recent MRI last week. My tumor now measures 3.1 x 2.3 cm! Still no medical explanation but who cares! I am beating this dreadful disease so far. My tumor is still inoperable but is shrinking. I feel blessed.

    Amazing!
    Alyssa, Your story is simply amazing! It is so exciting to hear good news about one with such a difficult cancer. I pray that you will continue to improve, the tumors will shrink, and one day you will be healed - a medical miracle! I also have pancreatic cancer but it is a very rare form called neuroendocrine tumors or Islet cell carcinoma. My type is slower growing than adenocarcinoma. Nice to meet you! Feel free to message me if you want to stay in touch.
  • RIOSTAX26
    RIOSTAX26 Member Posts: 2
    #19
    NETsurvivor said:

    Amazing!
    Alyssa, Your story is simply amazing! It is so exciting to hear good news about one with such a difficult cancer. I pray that you will continue to improve, the tumors will shrink, and one day you will be healed - a medical miracle! I also have pancreatic cancer but it is a very rare form called neuroendocrine tumors or Islet cell carcinoma. My type is slower growing than adenocarcinoma. Nice to meet you! Feel free to message me if you want to stay in touch.

    Endometrial cancer
    My sister was diagnoised with endometiral cancer 1/08. The cancer has spread to her organs in her abdominal wall. She went through 2 surgeries to remove the uterus but they were unsuccesful. She completed her chemothearpy 7/08. She has seen 4 Oncologist since the last surgery and they give different opions. Could you please recommend a good diet for her. She is depressed and is leaning on my to help her. She does not have the strenght to do research at this time. I would appreciate any suggestions you may have even though you have a different type of cancer.
  • NETsurvivor
    NETsurvivor Member Posts: 16
    #20
    RIOSTAX26 said:

    Endometrial cancer
    My sister was diagnoised with endometiral cancer 1/08. The cancer has spread to her organs in her abdominal wall. She went through 2 surgeries to remove the uterus but they were unsuccesful. She completed her chemothearpy 7/08. She has seen 4 Oncologist since the last surgery and they give different opions. Could you please recommend a good diet for her. She is depressed and is leaning on my to help her. She does not have the strenght to do research at this time. I would appreciate any suggestions you may have even though you have a different type of cancer.

    Diet and Supplement Resource
    Hi Riostax26,

    You might want to check out the website http://www.nutritional-solutions.net/
    Dr. Jeanne Wallace PHD,CNC . She specializes in cancer patients and provides a nutritional and supplement protocol specific to each individuals health situation. She does charge for her services. You can find out more by exploring her website. We hired her shortly after I was diagnosed. The amount of information she gave us was overwhelming at first but through the telephone conferences included in the fee, I am now on a diet that I believe has been helping me to fight my cancer. I also take supplements recommended by her. Each recommendation comes with an explanation of the science behind the food or supplement including notation of the studies that support it.
  • jamie59
    jamie59 Member Posts: 3
    #21
    Gordon Hendrickson said:

    Pancreatic cancer
    I am 73 years old and was diagnosed with pancreatic can in June, 6 years ago. I was told that I was in stage 4, but today I am doing quite well. I have some problems with digestion and elination, but it's not too bad as I feel so fortunate. The New York Times wrote an article about me in July of 2007 and you can google me to read more.
    I talk to people all over the country about living after being diagnosed with pancreatic cancer. In many ways, I am a MIRACLE and feel that I now have a purtpose in life, more than ever. You can write me directly at gordonhend@msn.com.
    Believe in MIRACLES
    Gordon

    Pancreatic Cancer
    I have just been diagnosed with pancreatic cancer and have only heard negative things until I found this website. You're story has given me hope. My cancer right now is inoperable and I am going through treatment. Don't know what the outcome will be but I'm fighting everyday to thing and act positive. This cancer was just diagnosed so it's new to me. It has not spread to any other organs and i am healthy and young as the doctors put it so I have a chance to fight this. You're story inspired me.

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