Neuropathy

Wagonmaker
Wagonmaker Member Posts: 2
edited March 2014 in Lung Cancer #1
I've undergone chemo/radiation, and am now struggling with neuropathy, especially in both feet.
Right foot is swollen. Has anyone had any success with any kind of treatment, medication, etc.

Comments

  • BDDB
    BDDB Member Posts: 2
    #2
    Da Feets!
    OMG I didn't know what it was when I first got neuropathy. I was tripping and constantly thought there was something stuck to the bottoms of my feet & in my toes. A small price to pay for hopefully being cured. My Dr. told me to take vitamins which I regularly forget to take. The neuropathy appears to be going away slowly (or I am getting used to it) as I can wear heels again!
  • marybear
    marybear Member Posts: 64
    #3
    BDDB said:

    Da Feets!
    OMG I didn't know what it was when I first got neuropathy. I was tripping and constantly thought there was something stuck to the bottoms of my feet & in my toes. A small price to pay for hopefully being cured. My Dr. told me to take vitamins which I regularly forget to take. The neuropathy appears to be going away slowly (or I am getting used to it) as I can wear heels again!

    neuropathy
    hi everyone my husband had one chemo treatment and got neuropathy 1 week after couldnt walk at all he still has it as of now needs a walker to get around his legs are getting weaker he took one treatment of taxol 3hours and cisplatin 1 hour on aug 14 never been the same since hope you are all well ii did hear from visiting nurse that this condition could be permanent since my husband is 75 years old i f i would have known this backc in august i wouldnd have let him do the chemo he was walking around the block by himself no he cant even leave the house without assistance no one told us of the severe side effects of this chemo my hubby has stage 4 lung cancer non small cell that has spread as of two weeks ago no surgery good luck to all
  • Greggriggs
    Greggriggs Member Posts: 132
    #4
    marybear said:

    neuropathy
    hi everyone my husband had one chemo treatment and got neuropathy 1 week after couldnt walk at all he still has it as of now needs a walker to get around his legs are getting weaker he took one treatment of taxol 3hours and cisplatin 1 hour on aug 14 never been the same since hope you are all well ii did hear from visiting nurse that this condition could be permanent since my husband is 75 years old i f i would have known this backc in august i wouldnd have let him do the chemo he was walking around the block by himself no he cant even leave the house without assistance no one told us of the severe side effects of this chemo my hubby has stage 4 lung cancer non small cell that has spread as of two weeks ago no surgery good luck to all

    Yessir
    I am 67 Left lung removed had three rounds of taxole an carboplatin ,they had to stop . But I have not been the same since.
    I was like your Hubby did pretty good till the chemo.
    They don't call mine neuropathy any more now it is severe rumitoid artheritis.
    I think it's the chemo but ya get answers like oh it has been to long couldn't be the chemo.
    Noratriptyline works pretty well guess about the best of them.
    have the Doc check your Sed Rate mine was realy high . Keep up on your blood work mine just fell apart Iron Red cells an so on.
    But you Sed rate will tell you if you have a infection or inflamation . I feel for you because it feels like you are stading on feet with out skin like standing on your bones.
    Vicoden gets me through the day. An Ativan gets me through the nights.
    Keep us posted hope you get better .
    Greg
  • marybear
    marybear Member Posts: 64
    #5
    Greggriggs said:

    Yessir
    I am 67 Left lung removed had three rounds of taxole an carboplatin ,they had to stop . But I have not been the same since.
    I was like your Hubby did pretty good till the chemo.
    They don't call mine neuropathy any more now it is severe rumitoid artheritis.
    I think it's the chemo but ya get answers like oh it has been to long couldn't be the chemo.
    Noratriptyline works pretty well guess about the best of them.
    have the Doc check your Sed Rate mine was realy high . Keep up on your blood work mine just fell apart Iron Red cells an so on.
    But you Sed rate will tell you if you have a infection or inflamation . I feel for you because it feels like you are stading on feet with out skin like standing on your bones.
    Vicoden gets me through the day. An Ativan gets me through the nights.
    Keep us posted hope you get better .
    Greg

    neuropathy
    thank you gregg for the post his oncologist said the chemo is no longer in the body so it isnt from that the visiting nurse said it could be neuroptathy i blame the chemo sorry we started it with his weak heart and all but that was the only cure right now no surgery tumor got bigger as of 2 weeks ago cat scan now 6cm by 4.5 and spread to left lung 2 nodules there and spread to spleen thank you for answering about your expierence my hubby now 75 but i have a question what is the Sed rate you are talking about got all blood work from last month in hospital and last week at oncoligst office his white high what is sed rate please explain if you can Thank You mary
  • Greggriggs
    Greggriggs Member Posts: 132
    #6
    marybear said:

    neuropathy
    thank you gregg for the post his oncologist said the chemo is no longer in the body so it isnt from that the visiting nurse said it could be neuroptathy i blame the chemo sorry we started it with his weak heart and all but that was the only cure right now no surgery tumor got bigger as of 2 weeks ago cat scan now 6cm by 4.5 and spread to left lung 2 nodules there and spread to spleen thank you for answering about your expierence my hubby now 75 but i have a question what is the Sed rate you are talking about got all blood work from last month in hospital and last week at oncoligst office his white high what is sed rate please explain if you can Thank You mary

    Sed Rate
    Mary, White cells are an indication your body is fighting off an infection or inflmmation.
    Sed Rate is how fast your red cells fall in one hour. If they fall too fast your body does not get enough oxygen and it also is an indication of inflamation or infection in your body somewhere.
    It is so funny the oncologist told me the same thing but they don't seem to want to tell you the damage it did after it left .
    I don't know if it is reversable or not.
    Guess you are dammed if you do an dammed if you don't
    Lotsa luck to you an your hubby hope things get better for you an Him.
    Greg
  • marybear
    marybear Member Posts: 64
    #7
    Greggriggs said:

    Sed Rate
    Mary, White cells are an indication your body is fighting off an infection or inflmmation.
    Sed Rate is how fast your red cells fall in one hour. If they fall too fast your body does not get enough oxygen and it also is an indication of inflamation or infection in your body somewhere.
    It is so funny the oncologist told me the same thing but they don't seem to want to tell you the damage it did after it left .
    I don't know if it is reversable or not.
    Guess you are dammed if you do an dammed if you don't
    Lotsa luck to you an your hubby hope things get better for you an Him.
    Greg

    neuropathy
    hi Gregg thanks for the post as of today hubby still weak cant walk without walker sometimes his feet and legs are a mess even with physically therapy that we do everyday not getting stronger i guess the cancer is taking a tole on his body still hoping the tarceva will slow it down will know in 2 months if it is helping will do another cat scan to see how are you feeling gregg can you walk now at all please keep me posted praying for you are you still in treatment hang in there this cancer is a bit

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