stage 4 mets

angelsbaby
angelsbaby Member Posts: 1,165 Member
edited March 2014 in Colorectal Cancer #1
hi just need to vent i guess, nov o7 had tumor on left side it had perferated the colon wall so he started on oxy 5 fu lecovin he went threw hell with that chemo but finished at the end of may 08, he was feeling good not having chemo but his stomach area hurted him pain in left pelvic area. now when chemo finished in may the doctor told us then that the pet scan showed two area of concern ,dr said maybe scar tissue, but i did not beleave that so he orderd two biopsys of the kidney and liver we missed our appt with him but the last biopsy of the kidney the dr office called and said he needed a pet scan and blood work.I got very scared but didn't ley my husband no so the following week july the 28th we say the doc to get the resulst from the pet scan, doc asked my husband how he felt so he told him about the pelvic pain, doc said that the cancer had spread to the liver kidney stomach and had a new tumor growing in the sigmoide area so when his chemo regime was over just in two months the cancer had grown now he has an agressive cancer we were devestated we thought things were clear but that is not the case my husband asked the doc with out chemo how long do i have his answer was 6 months tears were flowing then. we went home husband didn't want any more chemo but the family persaued him to give it a try so now he is on erbitux camptosar 5 fu lecoverin.evey week fist chemo got mouth sores 3 days after chemo got miracle mouth wash helped with the mouth sores. Has Had alot of pain in the pelvic due to the tumor there oxycoden given is helping with pain the first week of sept will have another pet scan to see if chemo is helping or not (please let it help)I am so scared he is 52 married for 35 years I can't lose him now. I feel so bad, what must he be thinking 24 hrs a day can't sleep good. I love him I don't want him to be in pain i want this to get better but because it has spread so fast we have a hard battle to fight please pray for my husband thanks

angelsbaby

Comments

  • kristasplace
    kristasplace Member Posts: 957 Member
    #2
    So sorry...
    I'm so sorry to hear of you and your husbands fight. I know how scary this disease is, but please don't give up. Remember Lance Armstrong and how much spread he had...He survived, and your husband can do it too.

    Please let us know how he does, and come here to 'vent' often.

    Many hugs,
    Krista
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #3
    kristasplace said:

    So sorry...
    I'm so sorry to hear of you and your husbands fight. I know how scary this disease is, but please don't give up. Remember Lance Armstrong and how much spread he had...He survived, and your husband can do it too.

    Please let us know how he does, and come here to 'vent' often.

    Many hugs,
    Krista

    thanks krista, i can't
    thanks krista, i can't really talk to my husband he is still in his mad stage.
  • apache4
    apache4 Member Posts: 272 Member
    #4
    angelsbaby said:

    thanks krista, i can't
    thanks krista, i can't really talk to my husband he is still in his mad stage.

    It surely is tough
    I am so sorry that you and your hubby are faced with this. Please don't let the dr. dictate how long he has to live. It could be six months or it could be longer. No one knows how long another will live...it is God's will.
    I hope that he will be able to communicate soon with you. I understand his being angry, but that does not help. He will learn to accept this as another step and be able to deal with it better. Remember that it is his life and he must make his own decisions when he is able. If the chemo does not help, it a quality of life issue. I do hope that the chemo helps. I am glad that he is giving it a try.
    Best of prayers for you and your family.
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #5
    apache4 said:

    It surely is tough
    I am so sorry that you and your hubby are faced with this. Please don't let the dr. dictate how long he has to live. It could be six months or it could be longer. No one knows how long another will live...it is God's will.
    I hope that he will be able to communicate soon with you. I understand his being angry, but that does not help. He will learn to accept this as another step and be able to deal with it better. Remember that it is his life and he must make his own decisions when he is able. If the chemo does not help, it a quality of life issue. I do hope that the chemo helps. I am glad that he is giving it a try.
    Best of prayers for you and your family.

    scary
    thank you for your reply last nite in bed my husband put my hand down by his pelvis i felt this baseball lump i am scared he needs to tell the doc about this but he does know and there is a possiblity of surgery and a colostomy which he is not wanting my god that felt big i can't imagine the pain he is in. but he's a mechanic and you know there tuff but this is bad he goes tomorrow for chemo treatment no 3 he sees the doc on tuesday sept 2 i will be with him then i will bring up the size and lets see what he says. then i went yesterday to pick up his medical records to start ssid they have dates wrong and i paid 35.00 for that will be telling them tomorrow to fix that. i have so much to do but i am ready to do what ever it takes. my mom died in 1981 from brain cancer at the age of 49 i did everything for her and will do it for my husband too thnaks for listening
  • apache4
    apache4 Member Posts: 272 Member
    #6
    angelsbaby said:

    scary
    thank you for your reply last nite in bed my husband put my hand down by his pelvis i felt this baseball lump i am scared he needs to tell the doc about this but he does know and there is a possiblity of surgery and a colostomy which he is not wanting my god that felt big i can't imagine the pain he is in. but he's a mechanic and you know there tuff but this is bad he goes tomorrow for chemo treatment no 3 he sees the doc on tuesday sept 2 i will be with him then i will bring up the size and lets see what he says. then i went yesterday to pick up his medical records to start ssid they have dates wrong and i paid 35.00 for that will be telling them tomorrow to fix that. i have so much to do but i am ready to do what ever it takes. my mom died in 1981 from brain cancer at the age of 49 i did everything for her and will do it for my husband too thnaks for listening

    Question
    Has he had surgery to remove the original tumor? Are they trying to shrink it first? Do you guys live in a major metropolitan area near a cancer center?
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #7
    apache4 said:

    Question
    Has he had surgery to remove the original tumor? Are they trying to shrink it first? Do you guys live in a major metropolitan area near a cancer center?

    answer
    in nov he had the tumor removed from the right side chemo stopped in may and a new tumor has grown in the left side now.so now the cancer is in the stomach liver and kidneys plus the tumor on the left side the doctor said he has an aggressive cancer so chemo has started again. we live in phoenix and he goes to the virginia g piper cancer center.
  • jams67
    jams67 Member Posts: 925 Member
    #8
    so sorry
    I am so sorry that the two of you are experiencing so much pain. I will pray for you and your husband to have the courage to withstand whatever happens.
    Jo Ann

Discussion Boards