Coping help

bear2222
bear2222 Member Posts: 7
edited March 2014 in Brain Cancer #1
Please help with any information that you can. I really would appreciate it. If you have a glioblastoma I know the nature is to sleep most of the time especially with radiation and chemo theraphy going on together. My question is how much does this tumor, (right and left temporal lobes), effect your understanding of things. I know apathy is taken away but do you truly understand and care about things? Is it alright to sleep most of the time and just get up to eat and watch a little t.v. or sit outside for a few minutes. One says do what you want another says sleeping is alright. This is in stage IV. MRI confirms this but biospy had to much nercrosis to say this. Trauma center says 3-6, radiation center says 6-12. No one knows but does the patient really care or understand situations as little as what do you want to eat or do you want to see your mother? Ability to make discisons. Thanks for your help and I am a believer and will keep fighting even though my husband refuses to talk to me about this condition 2 months later. Even when we talk he will forget what we are talking about and say what. But I am determined to get this man up and help him realize we will go on.

Comments

  • mistral
    mistral Member Posts: 2
    #2
    Chers,
    I am new to this site and I am a GBM 4 patient. I am a male, age 64 and in excellent physical condition. I was diagnosed 0n 10-29-07 after experiencing severe headaches. The tumor was removed on 11-9-07 and was followed one month later with Chemo. and radiation for 6 weeks. I am feeling great and have resumed all my normal activities. Based on the info. I have been able to gather patients react differently to this condition depending on many factors, including size and location of the tumor, physical condition and attitude. I strongly believe that maintaining good physical condition and a positive attitude are critical. With optimal therapy,(removal of tumor, chemo. and radiation)survival is usually about one year. Get your husband up and out and seek professional help to help him cope with his emotional feelings. I hope you can both find some peace and comfort in dealing with this difficult situation. I think your determination is admirable. I truly wish that I could offer you more advice.
  • bear2222
    bear2222 Member Posts: 7
    #3
    mistral said:

    Chers,
    I am new to this site and I am a GBM 4 patient. I am a male, age 64 and in excellent physical condition. I was diagnosed 0n 10-29-07 after experiencing severe headaches. The tumor was removed on 11-9-07 and was followed one month later with Chemo. and radiation for 6 weeks. I am feeling great and have resumed all my normal activities. Based on the info. I have been able to gather patients react differently to this condition depending on many factors, including size and location of the tumor, physical condition and attitude. I strongly believe that maintaining good physical condition and a positive attitude are critical. With optimal therapy,(removal of tumor, chemo. and radiation)survival is usually about one year. Get your husband up and out and seek professional help to help him cope with his emotional feelings. I hope you can both find some peace and comfort in dealing with this difficult situation. I think your determination is admirable. I truly wish that I could offer you more advice.

    Thanks for the advice and I wish you the best. Unfortunatley, my husbands tumor is inoperatable and is located in his right and left temperoal lobes wich effect emotions. If your is located in that area do you total and always understand what is being said? And if so knowing your body can not allow you to show emotion do you have any feelings after you may say or do something? Do you know when you are telling the truth? Thanks and we have sought professional help and he is on medication to help him now, but the nature of the tumor makes it so emotions are not what they should be. Keep on pushing and when you are in the valley head for the mountain and continue to climb and let no one bring you down!
  • mistral
    mistral Member Posts: 2
    #4
    bear2222 said:

    Thanks for the advice and I wish you the best. Unfortunatley, my husbands tumor is inoperatable and is located in his right and left temperoal lobes wich effect emotions. If your is located in that area do you total and always understand what is being said? And if so knowing your body can not allow you to show emotion do you have any feelings after you may say or do something? Do you know when you are telling the truth? Thanks and we have sought professional help and he is on medication to help him now, but the nature of the tumor makes it so emotions are not what they should be. Keep on pushing and when you are in the valley head for the mountain and continue to climb and let no one bring you down!

    Chers,
    My tumor was located in the right temporal lobe. Prior to and following it's removal I had no neurological or physical deficits and this remains so today. However, I will eventually experience what your husband is going through and I have been trying to keep my family informed about what to expect. Shareing your experiences and feelings is helping me understand what I too will experience. Chers, I'm climbing.
  • bear2222
    bear2222 Member Posts: 7
    #5
    mistral said:

    Chers,
    My tumor was located in the right temporal lobe. Prior to and following it's removal I had no neurological or physical deficits and this remains so today. However, I will eventually experience what your husband is going through and I have been trying to keep my family informed about what to expect. Shareing your experiences and feelings is helping me understand what I too will experience. Chers, I'm climbing.

    Radiation and Chemo
    I would like to know if anyone with glioblastoma has gone through radiation and chemo could you pleaseeeeeeeeeeeee tell me if trouble seeing, balance and EXTREME tiredness is one of the effect. I want to know as the disease progresses are their certain symptoms that occur. This is a frontal lobe stage IV glioblastoma multiforme. Thanks for all your help and support. May each day be filled with sunshine.

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