Third reoccurrence/Avastin-Cytoxan
stryj
Member Posts: 4
My wife had a power port removed last week and her orignal smaller unit put back in its place. When her Gyn/Onc surgeon talked to me he congratulated us on our 5 year anniversary. It was 5 years to the date from her first operation/diagnosis of Stage 4 OC. When diagnosed it had already spread through lymphnodes to liver. Anyway, I guess it hit me hard when he said my wife is amazing since most women in her orignal condition/diagnosis do not fare so well. It really brought it home for me, She has had two major operations and three seperate rounds of Chemotherapy and now she is on Avastin/Cytoxan. Remarkably, her CA125 after two rounds has gone from 98 to 48. Still scared...it seems like Avastin is the last resort when all else no longer will work.
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Comments
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Welcome to the Board, although I wish we had met under diffrent circumstances. It's definitely wonderful that your wife has been through so much and yet continues to perservere and remain strong. But don't take that as a 'negative' connotation. ALL of us have been told and continue to be told that we are fighters and survivors, and it's true. It doesn't matter if you are stage 1C and a two-time survivor as I am , or someone such as several on this board who have been going strong for five years plus. Considering all the surgeries, chemos, side affects, etc., it is not a statement that's meant to diminish your hope or faith. And that's important - never give up hope. There are many options and many women here who can attest to that. Your wife's drop in CA125 is also good reason not to give up hope!
Five years is definitely a milestone, and again it shows how strong your wife has been and continues to be. Have you or your wife ever considered alternate forms of treatment, namely 'alternative medicine'? It's something to think about, in conjunction with what she is currently receiving. If so, research carefully, get the opinions of others who have been through it, and decide for yourselves.
In the meantime, my best to both of you. Your wife is an inspiriation to others. Maybe someday when she feels up to it she can visit us and share her experiences. It not only helps others here, but sometimes it helps to openly express what's going on, especially when you find that you are not alone in this battle.
Love, hugs and prayers to you both!
Monika0 -
I am too, Stage IV with mets to the liver. I have sent you an e-mail. What an inspiration to hear of a Five Year anniversary and it gives me such hope! It is strange to know that different statements from different sources hit husbands and wives hard at different times. I don't know if they mean to hit us between the eyes or it is just time for us to hear it with all of the fears that swarm around this disease. Welcome to this discussion group and stay in touch. You are not the only husband to visit. What a great group of strong men you all are. (((HUGS)))0
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Stryj,
Five years!!!! Wow, that is amazing and wonderful. I'm sure you are both excited about this news. I'm at 3 1/2 years right now and am on my 2nd recurence. My Onc said there are plenty more chemos out there, and after I used them all up,we'll start using them over again!!! So don't think your wife is on her last type of chemo. I'm glad that Avastin is working for her..I have heard alot of good things about it. Have a great Easter....and keep up that positive attitude!!((((hugz)))~~Joanne0 -
Congradulations on those 5 years, my Mom is stage 3c and on 2nd recurrence currently being treated with Avastin and Genoxal wich is the same component.. you have now scared me we have been not told that Avastin is the last resource.. did the Dr. tell you that? God bless. Liz0
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