WAITING to find out IF IT'S CANCER

lady342008
lady342008 Member Posts: 82
edited March 2014 in Ovarian Cancer #1
I'm starting this in HOPES of finding others that are possibly facing the diagnosis of Ovarian Cancer or any other cancer. I have been getting Ultra Sounds and had one CT due to problems with Cysts on my right ovary since Sept 2006. I've also had Fibroids in my uterus the entire time. They've all continued to stay the same or grow and now the last Ultra Sound on Feb 12 2008 showed a Complex Cystic Solid Mass on my right ovary. The cysts have continued to grow and the fibroids as well. I was also told now my left ovary has a cyst. I just found out yesterday it too is a Complex Cyst on the left ovary. I'm going on March 13th to a GYN Oncologist referred by my family doctor. She told me he was a GYN specialist. I didn't think anything and so I didn't ask. I later found out it's an oncologist I'm seeing. I'm working on putting together as many questions I can think of that I should ask during next weeks appointment. I've also been asking the American Cancer Society for help with my questions. I'm wondering how many have had this kind of time ahead of them before finding out if they have cancer or not. Meanwhile, I haven't told my husband because he gets SICK with stress. He didn't handle this good when this whole thing started in 2006. I'm NOT up for dealing with him right now, so I've decided to hold off as long as I can with telling him. I have told my sister who lives FAR away. I have one close friend here who also knows. The only thing is she has SO MUCH stuff going on in her life. That's why I'm SO THANKFUL to websites like this that I'm learning about to get me through with all the WONDERFUL people there are out there to walk you through all this stuff. WOW... It's getting to be too long, so I will close this here. I HOPE to hear from ANYBODY that has been faced with the WEEKS of waiting to find out if they do in fact have cancer. THANK YOU IN ADVANCE to all of you who do write to me. I wish you ALL the VERY BEST!!! Blessings!!!

Comments

  • mopar
    mopar Member Posts: 1,972 Member
    #2
    Hi - I posted before in response to this, but I just wanted to say again that you will have lots of support here. I understand holding off telling your husband, but I'm glad you feel comfortable confiding in us and sharing your anxiety.

    In November 1999 I felt this 'bulge' in my tummy when I went to bed one night. I was already scheduled for my yearly gyno appointment in two weeks, so the next two weeks were a little stressful. It was a uterine fibroid and we planned on having it removed. But about a week later my doctor called and said that my CA125 was slightly elevated (could have been caused by my endometriosis), but that he felt better sending me to an oncologist. Of course, I think my heart stopped when I heard that word. But to this day I am so grateful that my doctor had the good knowledge to even take a CA125 test (I had never heard of it before), and to acknowledge that this might be better handled by someone with more expertise in that regard. I wasn't able to get in to the doctor until December, just before Christmas. He had nothing more definitive to tell me as far as cancer goes, but that I definitely needed a hysterctomy and he would try to be conservative by salvaging the ovaries. Well, I didn't have surgery until March 27, 2000. He was going to try to save the ovaries, but one had a 'cyst' on it - he immediately biopsied it, sent it to the lab, and it came back Stage 1C OVCA. So, he removed everything PLUS.

    As you can see, I waited a very long time too for answers. And I'm sure many women here can relate to that. All I can offer is to say that you must take one day at a time. It's fine to be prepared, but don't look too far ahead. You will only create more anxiety and it won't change anything. When and if the time comes that you need to deal with something, you'll realize that all the worrying in the world didn't change anything. Now, we are human, and that means our feelings will get the better of us sometimes. That's the time to visit here, keep a journal, whatever works for you.

    Sending luv, hugs and prayers. And we'll all be watching and waiting for your post after the 13th.
    Take care.
    Monika
  • saundra
    saundra Member Posts: 1,370 Member
    #3
    I started a journal the day I received the report of first CT scan that showed cancer in multiple areas of my abdomen and three tumors in my liver. I keep God very close and He is always with me so I know that I am not alone at any time. There is a lot of waiting and that is hard. Saundra
  • lady342008
    lady342008 Member Posts: 82
    #4
    mopar said:

    Hi - I posted before in response to this, but I just wanted to say again that you will have lots of support here. I understand holding off telling your husband, but I'm glad you feel comfortable confiding in us and sharing your anxiety.

    In November 1999 I felt this 'bulge' in my tummy when I went to bed one night. I was already scheduled for my yearly gyno appointment in two weeks, so the next two weeks were a little stressful. It was a uterine fibroid and we planned on having it removed. But about a week later my doctor called and said that my CA125 was slightly elevated (could have been caused by my endometriosis), but that he felt better sending me to an oncologist. Of course, I think my heart stopped when I heard that word. But to this day I am so grateful that my doctor had the good knowledge to even take a CA125 test (I had never heard of it before), and to acknowledge that this might be better handled by someone with more expertise in that regard. I wasn't able to get in to the doctor until December, just before Christmas. He had nothing more definitive to tell me as far as cancer goes, but that I definitely needed a hysterctomy and he would try to be conservative by salvaging the ovaries. Well, I didn't have surgery until March 27, 2000. He was going to try to save the ovaries, but one had a 'cyst' on it - he immediately biopsied it, sent it to the lab, and it came back Stage 1C OVCA. So, he removed everything PLUS.

    As you can see, I waited a very long time too for answers. And I'm sure many women here can relate to that. All I can offer is to say that you must take one day at a time. It's fine to be prepared, but don't look too far ahead. You will only create more anxiety and it won't change anything. When and if the time comes that you need to deal with something, you'll realize that all the worrying in the world didn't change anything. Now, we are human, and that means our feelings will get the better of us sometimes. That's the time to visit here, keep a journal, whatever works for you.

    Sending luv, hugs and prayers. And we'll all be watching and waiting for your post after the 13th.
    Take care.
    Monika

    Monika, THANK YOU for your reply I TRULY appreciate it.
    It's been many years since you were diagnosed, so how are you doing now? Has it been on ongoing thing for you over all these years?
    Looking forward to hearing more from you. Blessings to you!!!
  • lady342008
    lady342008 Member Posts: 82
    #5
    saundra said:

    I started a journal the day I received the report of first CT scan that showed cancer in multiple areas of my abdomen and three tumors in my liver. I keep God very close and He is always with me so I know that I am not alone at any time. There is a lot of waiting and that is hard. Saundra

    Saundra, Thank you. I have a notebook and thought about writing all my thoughts and feelings down as well. I've started writing about this website and those of you that I've spoke with. I lost my Mom July 4, 2005 to pancious cancer. Losing her is still very new for me. I know some may think it's been awhile, but everyone is different. I totally support everyone in however they experience their loses. Anyway, I would love so much to know now all that my Mom went through with all her issue's. It all happened fast for us with my Mom though. She was diagnosed in May 2005 and we lost her 2 months later, so it was EXTREMELY TOUGH on us all.
    I think a journal is a great thing not only for ourselves, but maybe one day for our loved ones.
    Thank you and have a Blessed Day. :-D
  • curlyq1971
    curlyq1971 Member Posts: 56
    #6
    Hi Lady,
    I wanted to say HI and Welcome you to the board, as you already know there are a bunch of wonderful women on this website and I hope that you will find comfort and peace with their words. I was dx with Stage 2 OVACA in August of 2005 at the tender age of 34. I didn't have to wait long between appointments, I went to my dr for a routine exam, had a ultrasound the next day, and the day after that went to see a gynecologist had a CT Scan and blood tests, and two days later was seeing a gyne/oncologist and a week after that I underwent a complete hysterectomy where I had everything removed plus my omentum and 9 lymph nodes which all tested negative for cancer. I started chemo in September of 2005 and had my last treatment in January of 2006 and have been cancer free since then. I hope that yours is a benign situation, but if it is cancer, we are all here for you and will walk the walk with you and support you every step of the way. I think that you should tell your husband because you are going to need him and I can almost bet that he will want to be there for you as well. My husband was there from the very begining and he was my rock, I needed him to go to the doctor appt's with me so that he could tell me exactly what the dr had said since I was in a fog half the time. I think that he would be more upset if you didn't tell him what was going on. I know how you are feeling the not knowing can drive you crazy, but try to take one day at a time and keep a positive attitude, and whatever the outcome, you will be alright, listen to your doctors, and never ever lose FAITH!!!!

    Please let us know what happens on the 13th, and just remember we are all here for you to offer support and alot of hugz. If you ever have anything that you need to talk about or have any questions I am here. Sending a HUGE HUG your way!!!

    Take Care,
    Leslie
  • lady342008
    lady342008 Member Posts: 82
    #7
    curlyq1971 said:

    Hi Lady,
    I wanted to say HI and Welcome you to the board, as you already know there are a bunch of wonderful women on this website and I hope that you will find comfort and peace with their words. I was dx with Stage 2 OVACA in August of 2005 at the tender age of 34. I didn't have to wait long between appointments, I went to my dr for a routine exam, had a ultrasound the next day, and the day after that went to see a gynecologist had a CT Scan and blood tests, and two days later was seeing a gyne/oncologist and a week after that I underwent a complete hysterectomy where I had everything removed plus my omentum and 9 lymph nodes which all tested negative for cancer. I started chemo in September of 2005 and had my last treatment in January of 2006 and have been cancer free since then. I hope that yours is a benign situation, but if it is cancer, we are all here for you and will walk the walk with you and support you every step of the way. I think that you should tell your husband because you are going to need him and I can almost bet that he will want to be there for you as well. My husband was there from the very begining and he was my rock, I needed him to go to the doctor appt's with me so that he could tell me exactly what the dr had said since I was in a fog half the time. I think that he would be more upset if you didn't tell him what was going on. I know how you are feeling the not knowing can drive you crazy, but try to take one day at a time and keep a positive attitude, and whatever the outcome, you will be alright, listen to your doctors, and never ever lose FAITH!!!!

    Please let us know what happens on the 13th, and just remember we are all here for you to offer support and alot of hugz. If you ever have anything that you need to talk about or have any questions I am here. Sending a HUGE HUG your way!!!

    Take Care,
    Leslie

    Hi Leslie, yes you're definately right about this support group on here EVERYONE is AWESOME!!! I'm Thankful to each and everyone!!!
    I don't have time to spend on here today, but I wanted to be sure and drop in a Hello and THANK YOU for writing me.
    As for my husband going with me to everything he can't. He drives a dump truck and things are REALLY BAD at work right now. Things are SO SLOW everywhere and prices of everything have gone up so high everyone is hurting. Trucking company's everywhere are going from Salary pay or hourly pays to paying only a SMALL percentage of revenue off each load that's delivered!!! It's really bad when you're in a very populated area and you have to deal with:
    TRAFFIC
    ACCIDENTS
    TRUCK BREAKING DOWN AND WAITING FOR REPAIRS.
    GETTING STUCK AND WAITING FOR HELP TO PULL YOU OUT. Normally your buddies would stop and help, but now everyone is out for themselves.
    Plus, your in line behind all the other trucking companies WAITING sometimes 45 minutes or longer for the people at the job sites to even come to receive the long line of trucks to DUMP their stuff.
    This is why this whole situation is so difficult for me. I'm not anywhere near any family. All my close friends have moved away in the last 1 1/2 years. My husband HAS TO WORK for the bills and I have a 12 yr old son to be concerned about as well. There's SO MUCH going on in my head it's not funny. This is the one support system I do have, but if it comes to needing physical help that's something I just don't have available to me.
    Gotta get going on my to do list. Thanks Again for writing. Have a Blessed Day. :-)
  • JohanMic
    JohanMic Member Posts: 3
    #8
    Please take a look at this:

    http://tinyurl.com/2y8nr8

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