daughter w/myxoid liposarcoma

You all have probably heard these stories a million times. I am, basically, the momma trying to cope. In this instance. My 12 year old daughter was finally diagnosed and had surgery on Oct. 1st of this year. It took them 2 months to decide it was this type of cancer. This is all very new to me. I am scared, worried and all the info is even scary-er. They have said my daughter was an oddity. Her tumor was between her bladder and pelvic wall and was 13mm round with a 1mm skin. They said it was fully self-contained and there is almost no change that it will reoccur or that there is any left. Alot of what I have read on the internet talks about adults having this type of cancer and most all having radiation treatment. These doctors just want to see her back in 3 months! I feel like every day is a blessing, and each day a gift. While I am having a difficult time dealing with this - my daughter and husband are just fine and are excited she is being "written up" since her situation was so rare (supposed to have none on record for her age, location, size of tumor). I really don't care about the write up. I care that is was malignant and about her treatment. I don't trust the HMO's to provide her with all the care she will need. I would like to know about any resources I can read or go to that will explain in plain english how to proceed and what this stuff really is. thanks for listening, mondy