Asking for good thoughts ...

kris43
kris43 Member Posts: 275
edited March 2014 in Ovarian Cancer #1
Hi everyone. I am waiting to go and get blood work drawn this morning and am praying that my numbers are good this week. They canceled my IV/IP treatment last Wed because my white count and platelets were too low. Not only am I frustrated I just feel as if I'm a complete failure sometimes at this whole chemo thing. Not one thing has gone according to plan since I had surgery on July 18th.

So today I am asking for some extra prayers so that my blood work is good and I get the go for Wednesday to FINALLY start these treatments. It is hard enough to not know what will really happen with the IP treatment (thanks to those of you who did respond though) - but having to wait and wait is too much.

My best to you all. Kris

Comments

  • challen14
    challen14 Member Posts: 29
    #2
    Hi Kris. I'm so sorry to hear that your treatment has been dalayed. I know the waiting has got to be hard. My white counts were too low one time, and I had to wait a week and if I 'd had any hair left, I'd have certainly pulled it out. After every cycle now I get a shot of neulasta. I think that's how it's spelled. It's been good every time since. I will be thinking of you, hoping and praying for good test results. I can tell you're tough by your past posts, so hang in there. I think we all have felt like failures at one time or another when it comes to this chemo thing. You are not alone. Take care and try to get as much rest as possible.
    Charlotte
  • mopar
    mopar Member Posts: 1,972 Member
    #3
    I will hold the good thoughts, send up a bunch of prayers, and ship some huge hugs to you! Hang in there.
    Monika
  • ginahmk
    ginahmk Member Posts: 5
    #4
    Dear Kris,
    I am truly wishing the best for you. You must be so frustrated with the waiting and wanting to do something. You are not a failure! I would hope that your counts are better by now. In the future, they may treat change a few things. Sometimes they will reduce the chemo dose or they could give you Neulasta shots for the white cell counts. Maybe you have had the shot already? I got Neulasta so that my white count could stay within a reasonable safe range and I could stay on schedule. When my white counts went low, less than 500 neutrophils, I wound up in the hospital with a fever and suspected infection. No fun. The Neulasta prevented that from happening again. Hang in there. My prayers are with you.

    Gina
  • illiniclemson
    illiniclemson Member Posts: 1
    #5
    Hi Kris, I know how you are feeling as my first several attempts at chemo were 'failures' too. I felt so inadequate as if somehow the problems were my fault. But then chemo plans were changed and I fell into a routine that had me smiling, relieved that finally we were working on this cancer.

    I will pray for you, that your numbers improve and that you won't feel so frustrated. Kathy
  • Susan523
    Susan523 Member Posts: 231 Member
    #6
    Dear Kris,

    I am sending good thoughts & prayers your way.

    I think that these setbacks are normal; I also had to postpone my chemo a couple of times due to my blood count.

    I think what helped me through those "waiting" times was writing in a journal. And once I started chemo, I logged how I felt each day after the treatment; so that I would have a record of how I might feel after the next treatment; and could sort of "plan my life" around it (although that's hard to do, as you never know when you'll have these setbacks). But I did use my journal later as a reference, and although my chemo ended last Dec (but soon to start again), I still write in my journal. It's a good release. You can keep it private, or share it with family. It's up to you.

    Take care, and hang in there.

    (((Hugs))) ~Susan
  • kris43
    kris43 Member Posts: 275
    #7
    Susan523 said:

    Dear Kris,

    I am sending good thoughts & prayers your way.

    I think that these setbacks are normal; I also had to postpone my chemo a couple of times due to my blood count.

    I think what helped me through those "waiting" times was writing in a journal. And once I started chemo, I logged how I felt each day after the treatment; so that I would have a record of how I might feel after the next treatment; and could sort of "plan my life" around it (although that's hard to do, as you never know when you'll have these setbacks). But I did use my journal later as a reference, and although my chemo ended last Dec (but soon to start again), I still write in my journal. It's a good release. You can keep it private, or share it with family. It's up to you.

    Take care, and hang in there.

    (((Hugs))) ~Susan

    Thanks for everyone's input. I did get good news last night and will be able to proceed with treatment tomorrow as scheduled. The doctor has also talked about the Neulasta shot - but I read all the side effects and am contemplating whether to go ahead with it. I have so many medicine allergies that being injected with stuff has freaked me out since I was young. Will probably go ahead with it though because I do not want any more delays. Am really looking forward to being done with treatments the week before Christmas!

    I do journal. I have a caring bridge site that I write on every day and that helps me a lot and also allows my friends & family to read about what is going on without having to answer the same questions day in and day out.

    Again, thank you for all of the prayers and good thoughts sent my way. I am glad to be able to have my 3rd treatment over and know I am 1/2 way done. Hugs to you all. Kris
  • lindachris
    lindachris Member Posts: 173
    #8
    kris43 said:

    Thanks for everyone's input. I did get good news last night and will be able to proceed with treatment tomorrow as scheduled. The doctor has also talked about the Neulasta shot - but I read all the side effects and am contemplating whether to go ahead with it. I have so many medicine allergies that being injected with stuff has freaked me out since I was young. Will probably go ahead with it though because I do not want any more delays. Am really looking forward to being done with treatments the week before Christmas!

    I do journal. I have a caring bridge site that I write on every day and that helps me a lot and also allows my friends & family to read about what is going on without having to answer the same questions day in and day out.

    Again, thank you for all of the prayers and good thoughts sent my way. I am glad to be able to have my 3rd treatment over and know I am 1/2 way done. Hugs to you all. Kris

    My wife Linda used Neulasta during her 8 rounds of IV and 3 rounds of IP and either we were naive or there were no side effects to use of that medication. My wife's counts stayed up the entire regimen. That said, I guess everyone's "good thoughts" had a good effect. And good luck with your next treatment.
  • saundra
    saundra Member Posts: 1,370 Member
    #9
    kris43 said:

    Thanks for everyone's input. I did get good news last night and will be able to proceed with treatment tomorrow as scheduled. The doctor has also talked about the Neulasta shot - but I read all the side effects and am contemplating whether to go ahead with it. I have so many medicine allergies that being injected with stuff has freaked me out since I was young. Will probably go ahead with it though because I do not want any more delays. Am really looking forward to being done with treatments the week before Christmas!

    I do journal. I have a caring bridge site that I write on every day and that helps me a lot and also allows my friends & family to read about what is going on without having to answer the same questions day in and day out.

    Again, thank you for all of the prayers and good thoughts sent my way. I am glad to be able to have my 3rd treatment over and know I am 1/2 way done. Hugs to you all. Kris

    Prayers and good thoughts coming your way that this treatment will kill those bad cells and you will bounce back fast.
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #10
    Kris, I am saying extra prayers for you also. Remember if you find you bloodwork still a bit low, this is your bodies time to rejuvinate so it can help the chemo kick cancer's butt. :-)

    Now may God's peace and grace pour abundantly upon you. May you rest gentely in His arms as needed and be filled with renewed energy and strength as you await all your tests and treatments.

    Prayers N Hugs Bonnie

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