Traveling to Zion

kbienapfl
kbienapfl Member Posts: 61
edited March 2014 in Colorectal Cancer #1
Hello all.... Recent CT scan shows that my Folfox6/Erbitux regiment is not working. My lung mets have spread and grown...bummer.

Guess I need to hit this hard (as if I haven't been). There have been many people asking about Cancer Treatment Centers of America. Well, I'm on my way and I will let you know what I learn. Leaving on Tuesday and may be there for approximately five days.

Have an appointment with Mayo September 13 - 14. It will be interesting to compare the two and decide which route I am going to take. The alternative route sounds more interesting and promising.

Any idea what my options are after the Folfox6/Erbitux regiment?

This journey just keeps getting more and more interesting.

Wish me luck!

My best to all of you.

Comments

  • shmurciakova
    shmurciakova Member Posts: 906 Member
    #2
    Hello,
    I do wish you all the luck in the world. I will be anxiously awaiting what you think of Cancer Centers of America. I believe wholeheartedly in taking an integrative approach to your treatment. I think that many doctors are missing the big picture and it seems that the more specialized they are, the more they tend to get tunnel vision....
    I hope you will find a solution to your dilema and start to see some real results.
    Best wishes,
    Susan H.

    P.S. I do know of one man, here locally, who had Hodgkins lymphoma and is now in remission after getting treated at Cancer Centers in Oklahoma. He had nothing but good things to say. I know he completely changed his diet to macrobiotics. So, apparently, you have to be willing to do the hard work, but it's worth it.
  • spongebob
    spongebob Member Posts: 2,565 Member
    #3
    Ahoy!

    Sounds like you are taking control and that's fantastic. I remember the one thing that I needed most when I was "sick" was to have some sense that my body was not controlling me; that it was the other way around.

    I, too, have heard nothing but great things about the Cancer Centers of America. And, of course, the Mayo clinic is world famous - that's where they treat cancer by slathering you in mayonaise,right? I wish you the very best on your journey to healing. Don't let them use the low-fat mayo on you!

    Keeping you in my prayers.

    - SpongeBob
  • kbienapfl
    kbienapfl Member Posts: 61
    #4
    spongebob said:

    Ahoy!

    Sounds like you are taking control and that's fantastic. I remember the one thing that I needed most when I was "sick" was to have some sense that my body was not controlling me; that it was the other way around.

    I, too, have heard nothing but great things about the Cancer Centers of America. And, of course, the Mayo clinic is world famous - that's where they treat cancer by slathering you in mayonaise,right? I wish you the very best on your journey to healing. Don't let them use the low-fat mayo on you!

    Keeping you in my prayers.

    - SpongeBob

    SpongeBob! I haven't laughed that hard in a long time!!! Fantastic!!!

    The thing that makes me pause is Zion, Illinois is the town I was raised in. I grew up blocks away from the little home town hospital which is now CTCA. I have lived in Minneapolis for 23 years.

    Wouldn't it be ironic if Zion came through with an answer? Just like Dorothy in the Wizard of Oz..."The next time I go looking for my heart's desire I'll look no further than my own back yard..."

    Thank you for the laugh!

    Kathy
  • Faith4Cure
    Faith4Cure Member Posts: 405 Member
    #5
    Sorry to hear about your recent test results, but with your persistence I am sure you will get the best treatment available. I will be very curious to hear about the comparison between the Mayo and Cancer Treatment Center. My thoughts and prayers are with you in hopes that you find the answer and the best treatment to fight this. Keep us posted!

    Faith
  • betina61
    betina61 Member Posts: 642 Member
    #6
    I don't have any idea to give you,I think you have a good plan ahead of you,just to tell you to believe with all your heart that whatever new treatment you are going to be in, that is going to be the one that will work for you,I willl be praying for you.
  • spongebob
    spongebob Member Posts: 2,565 Member
    #7
    kbienapfl said:

    SpongeBob! I haven't laughed that hard in a long time!!! Fantastic!!!

    The thing that makes me pause is Zion, Illinois is the town I was raised in. I grew up blocks away from the little home town hospital which is now CTCA. I have lived in Minneapolis for 23 years.

    Wouldn't it be ironic if Zion came through with an answer? Just like Dorothy in the Wizard of Oz..."The next time I go looking for my heart's desire I'll look no further than my own back yard..."

    Thank you for the laugh!

    Kathy

    Wow... that's a trip. I know Zion. I lived in Chatham, IL for about 6 years as a kid. Maybe instead of that long drive from MN, you can just click the heels of your ruby slippers together whilst you say "There's no place like home"
  • KathiM
    KathiM Member Posts: 8,028 Member
    #8
    I ALWAYS believed that a 3-prong approach was the secret of my success....Traditional medicine, complementary medicine, and faith with attitude!

    Keep us posted, please...sending good vibes!

    Hugs, Kathi
  • vinny3
    vinny3 Member Posts: 928 Member
    #9
    Hope all goes well for you on your journey Kathy. Let us know what you find out and what you decide. ****
  • mrsriderman
    mrsriderman Member Posts: 48
    #10
    i too, am wodering what the difference between C.T.C.A.and Mayo. i almost went in aug.-- sorry to ear about your CT scan. -- possitive attitude will help keep going. good luck lisa r.

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