can anyone guide me? my father has metastatic liver cancer

Bree29
Bree29 Member Posts: 2
edited March 2014 in Liver Cancer #1
my father was diagnosed 7 months ago.after my father had Avastin therapie, and then Erbitux and now Campto, our doctor says there is nothing more to do after this.Is that all there is?... Can anyone help. my father has his full liver with tumors (from primary colon cancer) so my doctor doesnt give us choices of other therapies, only chemo.

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  • norarose
    norarose Member Posts: 1
    Bree29 My father was diagnosed with esophageal cancer that spread to the liver and they also said it was full of tumors. Diagnosing it as liver metastases.

    He has went completely vegetarian and also organic. He is on the strongest chemo there is and he is doing really good. He was given 8 months and it has been 10 months and so far so good.

    They don't see the cancer in the esophagus any more but the liver is still covered but much smaller now. Hope this helps and encourages you don't ever give up there are to many thing out there to help you through this.

    Good Luck and God Bless You
    norarose
  • dlpkuhn08
    dlpkuhn08 Member Posts: 8
    Bree29,

    Just wanted to let you know that I too have liver mets that was full of tumors. I went through all the chemo's and then became a candiate for a hypatic liver pump. This is a device that is surgically implanted after removal of your galbladder. It is then filled with chemo (FUDR) and runs for two weeks at a time. The chemo only goes into your liver. I also had to have systemic chemo at the same time because of my colon cancer. My is a stage 1V.

    Hope this opens another door for your dad.

    Diana
  • hopefulone
    hopefulone Member Posts: 1,043 Member
    Sorry I got to this post late, but please check under colorectal cancer. You'll find many stage IV survivors with liver mets. (My husband is stage IV also with mets, however just had a resection after being told inoperable for 8 mos)Investigate theraspheres for the liver and rfa etc and definately get another opinion. God Bless
    Diane
  • Skassis1
    Skassis1 Member Posts: 1
    Metastatic Liver Cancer
    My husband was diagnosed with metastatic liver cancer, unk primary. He has been treating with Cisplatin and Gemzar chemotherapy since March 08. The liver tumors have shrunk over 50% so the results are great. We have not been given a choice of surgery or anything else- chemo was the only option. Recently there was tumors noticed on his cervical, lumbar and on his right hip bone- he just had radiation for the right hip. They are only watching the cervical and lumbar as it does not seem to be growing at all. Right now we are having good results from the chemo but we do plan on looking at other treatment, just don't know what yet. Hope this helps and if you have any specific questions I would be happy to answer.
  • kaynunes
    kaynunes Member Posts: 8
    Skassis1 said:

    Metastatic Liver Cancer
    My husband was diagnosed with metastatic liver cancer, unk primary. He has been treating with Cisplatin and Gemzar chemotherapy since March 08. The liver tumors have shrunk over 50% so the results are great. We have not been given a choice of surgery or anything else- chemo was the only option. Recently there was tumors noticed on his cervical, lumbar and on his right hip bone- he just had radiation for the right hip. They are only watching the cervical and lumbar as it does not seem to be growing at all. Right now we are having good results from the chemo but we do plan on looking at other treatment, just don't know what yet. Hope this helps and if you have any specific questions I would be happy to answer.

    liver cancer
    hi, i read your reply to Bree......have a question. i too have a liver full of cancer that came over from the colon. i had surgery and part of the colon removed with a large tumor. i am a woman 75....i am receiving avastin and chemo...altho a small dose i think, i have no side effects. they said it cannot be cured, only controlled, maybe.....my question, how did they see the liver to know that the tumors had shrunk??? I dont know how they can check on it. I had a pet scan that showed 3 tumors on the liver, when the liver specialist went in, he said it was coveredd with small ones, so he did nothing. actually i feel good. am thinking the oncologist may decide to bump up my chemo. i have a power port......i heard theycan put a tiny camera down there. know anything about that.?
    thanks, kay nunes. (i have a post here also.....kay@coopsweb.com.
  • kaynunes
    kaynunes Member Posts: 8
    liver cancer
    Bree, i am a lady 75. had surgery for large colon cancer, but it had gone to my liver and it is full.....i am on avastin with chemo once a week. i have had no side effects and tolerate it well, it may be a small dose only to control, cannot be cured. my oncologist said no to radiation (glad for that)...its a tough situation, for the kids too. i have 3 grown daughters and it hurts them. i try to keep a positive attitude, God is really carrying me. pray a lot. i dont know why the dr. dont add a little chemo to the avastin......, but how did they see the liver to know the tumors had shrunk??? i would like to know that. kay nunes
    my lette is there also
    kay@coopsweb.com
  • Sincere
    Sincere Member Posts: 1
    kaynunes said:

    liver cancer
    hi, i read your reply to Bree......have a question. i too have a liver full of cancer that came over from the colon. i had surgery and part of the colon removed with a large tumor. i am a woman 75....i am receiving avastin and chemo...altho a small dose i think, i have no side effects. they said it cannot be cured, only controlled, maybe.....my question, how did they see the liver to know that the tumors had shrunk??? I dont know how they can check on it. I had a pet scan that showed 3 tumors on the liver, when the liver specialist went in, he said it was coveredd with small ones, so he did nothing. actually i feel good. am thinking the oncologist may decide to bump up my chemo. i have a power port......i heard theycan put a tiny camera down there. know anything about that.?
    thanks, kay nunes. (i have a post here also.....kay@coopsweb.com.

    liver cancer
    Hi, I also have a liver with 2 tumors and was told by my doctor after having a pet scan that they had shrunk...they compared the pet scan to the one 4 months prior..i have 2 grown daughters and a 7 year old daughter (they are the reason i continue to fight and God gives me the strength)....i have a post here t.bailey321@yahoo.com
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    kaynunes said:

    liver cancer
    Bree, i am a lady 75. had surgery for large colon cancer, but it had gone to my liver and it is full.....i am on avastin with chemo once a week. i have had no side effects and tolerate it well, it may be a small dose only to control, cannot be cured. my oncologist said no to radiation (glad for that)...its a tough situation, for the kids too. i have 3 grown daughters and it hurts them. i try to keep a positive attitude, God is really carrying me. pray a lot. i dont know why the dr. dont add a little chemo to the avastin......, but how did they see the liver to know the tumors had shrunk??? i would like to know that. kay nunes
    my lette is there also
    kay@coopsweb.com

    Hi, Kay

    I had metastatic colon cancer to the liver.

    I was on Oxaliplatin (platinum based 3rd generation chemo) and also was on Avastin at the same time. Also did the Xeloda pills with varying cycles due to the toxicity.

    Interesting why he will not give you chemo. Avastin and Oxaliplatin make a pretty good one-two punch. And he could have you taking Xeloda too.

    Check in with him, if he does not agree - seek a 2nd opionion.

    I'm 5-years into my fight at only 47 - we're investigating 2 spots on the pleura of my lung right now.

    Hope this helps some...Craig
  • elainey7
    elainey7 Member Posts: 11
    Sundanceh said:

    Hi, Kay

    I had metastatic colon cancer to the liver.

    I was on Oxaliplatin (platinum based 3rd generation chemo) and also was on Avastin at the same time. Also did the Xeloda pills with varying cycles due to the toxicity.

    Interesting why he will not give you chemo. Avastin and Oxaliplatin make a pretty good one-two punch. And he could have you taking Xeloda too.

    Check in with him, if he does not agree - seek a 2nd opionion.

    I'm 5-years into my fight at only 47 - we're investigating 2 spots on the pleura of my lung right now.

    Hope this helps some...Craig

    Sundanceh
    Thanks for being a SURVIVOR of this awful disease. I just got diagnosed and my oncologist were not proactive enough to catch it before my Stage IIIA breast cancer spread to my liver. Long story but basically my markers were up, I was in pain, and after all my complaining I finally got a PET/CT scan over a year after my initial treatment started.

    I depend on a Mighty and Wonderful Savior and Healer, Jesus Christ to get me through this. Also, I increased my raw fruits/veggies and did a detox using epsom salt, fresh lemon juice, and olive oil. My BP has dropped, my pain level is gone, and I sleep a lot better now.

    There's a website www.healingcancernaturally.com that is AWESOME and worth checking out in your spare time.

    I am so very thankful that you are here to encourage us who are new to this or struggling when all we see on the Internet are the negative stuff out there about our condition. Keep fighting and hold on because God is able to heal when man (doctors )reaches his limit.

    I am praying for you and everyone else out there battling this disease called cancer. Don't you ever, ever, ever, never give up... (:> Ellen Elaine
  • elainey7
    elainey7 Member Posts: 11
    Sincere said:

    liver cancer
    Hi, I also have a liver with 2 tumors and was told by my doctor after having a pet scan that they had shrunk...they compared the pet scan to the one 4 months prior..i have 2 grown daughters and a 7 year old daughter (they are the reason i continue to fight and God gives me the strength)....i have a post here t.bailey321@yahoo.com

    Keep your head up!
    The Lord will continue to give you strength. Eat right, sleep right, and pray right! I'll pray on my end as well. I'm new to this met liver cancer but I'm ready to do my part to help and encourage others. God loves you and don't you ever forget it... Ellen Elaine
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    elainey7 said:

    Sundanceh
    Thanks for being a SURVIVOR of this awful disease. I just got diagnosed and my oncologist were not proactive enough to catch it before my Stage IIIA breast cancer spread to my liver. Long story but basically my markers were up, I was in pain, and after all my complaining I finally got a PET/CT scan over a year after my initial treatment started.

    I depend on a Mighty and Wonderful Savior and Healer, Jesus Christ to get me through this. Also, I increased my raw fruits/veggies and did a detox using epsom salt, fresh lemon juice, and olive oil. My BP has dropped, my pain level is gone, and I sleep a lot better now.

    There's a website www.healingcancernaturally.com that is AWESOME and worth checking out in your spare time.

    I am so very thankful that you are here to encourage us who are new to this or struggling when all we see on the Internet are the negative stuff out there about our condition. Keep fighting and hold on because God is able to heal when man (doctors )reaches his limit.

    I am praying for you and everyone else out there battling this disease called cancer. Don't you ever, ever, ever, never give up... (:> Ellen Elaine

    Thank you, Ellen
    Thank you, Ellen
    You are so sweet and your words have touched my heart and gave me a warm feeling that words can hardly express!

    Click on my name of this post and you can read what I've been through - it's been challenging to be sure. I'm so glad that I was able to be of some kind of help to you. That's what I'm trying to do is help people with what I've learned and been through.

    Let me know if you have any questions. I post out on the colorectal board as well.

    We're looking at spots on the lung now, which concerns me, but we're seeing what the new doctor comes back with and then go from there.

    Thanks so much for brightening up my day - it's people like you and your responses that make it all worthwhile.

    All the best - Craig
  • Lady Bug
    Lady Bug Member Posts: 2
    Skassis1 said:

    Metastatic Liver Cancer
    My husband was diagnosed with metastatic liver cancer, unk primary. He has been treating with Cisplatin and Gemzar chemotherapy since March 08. The liver tumors have shrunk over 50% so the results are great. We have not been given a choice of surgery or anything else- chemo was the only option. Recently there was tumors noticed on his cervical, lumbar and on his right hip bone- he just had radiation for the right hip. They are only watching the cervical and lumbar as it does not seem to be growing at all. Right now we are having good results from the chemo but we do plan on looking at other treatment, just don't know what yet. Hope this helps and if you have any specific questions I would be happy to answer.

    Same
    My 16 year old son was diagnosed with the same type of cancer in May of this year. They say it's neuroendocrine with mets to the right femur,lumbar spine and his liver with the majority of ther cancer in his liver. The primary is unknow at this point. He was treated with cisplatin and etoposide with no improvemnet so far. Please let me know what your husband is being treated with so I can present it to my son's oncologist. Thanks
  • jkabk1980
    jkabk1980 Member Posts: 2
    elainey7 said:

    Sundanceh
    Thanks for being a SURVIVOR of this awful disease. I just got diagnosed and my oncologist were not proactive enough to catch it before my Stage IIIA breast cancer spread to my liver. Long story but basically my markers were up, I was in pain, and after all my complaining I finally got a PET/CT scan over a year after my initial treatment started.

    I depend on a Mighty and Wonderful Savior and Healer, Jesus Christ to get me through this. Also, I increased my raw fruits/veggies and did a detox using epsom salt, fresh lemon juice, and olive oil. My BP has dropped, my pain level is gone, and I sleep a lot better now.

    There's a website www.healingcancernaturally.com that is AWESOME and worth checking out in your spare time.

    I am so very thankful that you are here to encourage us who are new to this or struggling when all we see on the Internet are the negative stuff out there about our condition. Keep fighting and hold on because God is able to heal when man (doctors )reaches his limit.

    I am praying for you and everyone else out there battling this disease called cancer. Don't you ever, ever, ever, never give up... (:> Ellen Elaine

    brother and sister in law with cancer. brother's met to liver
    Hello. I am a sister of an active duty airforce (36). He was assigned to Iraq in May 08.
    He returned in Aug 08 with Paranasal sinus cancer (head & neck). He started out at stage
    IV. After extensive radiation and cancer treatment for 8 months, in Washington D.C.,
    everything looked good and the cancer seems to have gone away. In May, he had is PET scan
    and was told that the cancer at met to the liver. He had most of his liver removed about
    six weeks ago. Two days before his surgery to remove the effected areas of the liver,
    his wife (34) was diagnosed with stomach cancer. We were blowed away. A week after my
    brother's surgery, she was operated on to remove part of her stomach. Surgery for both
    of them were good. So, we thought. My sister-in-law is having severe pains in her
    stomach and back. She can not stand straigt, can't eat, can't diegest and basically the
    entire system is not working properly. The doctors don't seem to know why she is in so
    much pain. They haven't directed her what diet and how to get enough nutrients in her
    body. She is weighting less than a 100 lbs. The surgery for her seems to have gone well
    but, why can't she eat ad process food so that she can heal? She starts her radiation
    tomorrow.
    Yesterday, got a call from my sister in law that new cancer has been detected in the
    remaining liver for my brother. They opted to post pond his treatment until she was done with her radiation due to their kids. Time is not on our side. I am taking their two kids (2 &5) with me over 5thousand miles away so that my brother and sister in law can get their treatment ASAP.
    It's getting over whelming for our family to say the least.

    We don't know what to expect and how he will do? Faith is getting weaker and our
    resources to support are getting weaker as the cancer gets stronger.

    How do we handle this? It's so hard to watch them go through this and I can't fix it.
    Once I leave with the kids tomorrow, they won't see their parents for a month or more
    if everything goes well. My brother and sister in law will be on their own to fight this.
    They have no support where they are and we are too far away. We are hoping for a miracle
    to help them.

    If there is anyone with any advise or suggestion or even anything. Please let me know.
    God Bless you all.

    Jen
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  • hopefulone
    hopefulone Member Posts: 1,043 Member
    other Options
    Hi. If there are MANY tumors throughout the liver , Theraspheres for the liver may be an option. Also known as SirSpheres and Ytrium 90 . Do a search for clinical trials in your state. Check with interventional radiologists at hospitals also to see if it's performed near you. If you haven't done so already, get second and third opinions. Whatever it takes, but do not stop investigating options! Finding an aggressive doctor can make a huge difference in treatment options. God Bless, Diane
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