Pediatric Synovial Cell Sarcoma
jlcwhite
Member Posts: 1
My son was diagnosed with Synovial Cell Sarcoma at 9, and after a very rough year of surgery, chemo, and radiation, he is now done with treatment and his last scans were clean. (Yay!)
However, I've read so much about this particular cancer coming back, or leading to other types of cancer, so I'm not at all feeling like we're out of the water.
His tumor was in the chest wall near the shoulder. He's supposed to go in for chest xrays every 6 weeks now, but I'm not convinced that's good enough.
Is there any maintenance drug available for synovial sarcoma patients who are done with treatment? A parent of an osteosarcoma patient mentioned that there was a breathing treatment available to keep it from metastasizing to the lungs, but I can't find any info on that.
What kind of post-treatment scan regimen do most synovial sarcoma patients have?
However, I've read so much about this particular cancer coming back, or leading to other types of cancer, so I'm not at all feeling like we're out of the water.
His tumor was in the chest wall near the shoulder. He's supposed to go in for chest xrays every 6 weeks now, but I'm not convinced that's good enough.
Is there any maintenance drug available for synovial sarcoma patients who are done with treatment? A parent of an osteosarcoma patient mentioned that there was a breathing treatment available to keep it from metastasizing to the lungs, but I can't find any info on that.
What kind of post-treatment scan regimen do most synovial sarcoma patients have?
0
Comments
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards