Hi All-
God bless-
ValerieC
Comments
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Hi Valerie,
I was just thinking of you and your mom yesterday. You, your mom and your family are always in my thoughts. I'm glad you checked in, but sorry to hear your tough news.
My mom said at one point that she didn't want to do another round of chemo...I harkened back to my childhood days and threw a tantrum. Mom caved, toughed it out and is now doing very well. I hope your mom decides to go for it too. If not, it's understandable. I'm sure living with such pain is daunting....for all of you.
Know that you are in my thoughts and prayers always. Stay in touch and let us know how your mom is...and how you are.
Warm hugs,
Katie0 -
Hi Katie-usakat said:Hi Valerie,
I was just thinking of you and your mom yesterday. You, your mom and your family are always in my thoughts. I'm glad you checked in, but sorry to hear your tough news.
My mom said at one point that she didn't want to do another round of chemo...I harkened back to my childhood days and threw a tantrum. Mom caved, toughed it out and is now doing very well. I hope your mom decides to go for it too. If not, it's understandable. I'm sure living with such pain is daunting....for all of you.
Know that you are in my thoughts and prayers always. Stay in touch and let us know how your mom is...and how you are.
Warm hugs,
Katie
Believe me, I have been seriously thinking about a tantrum. I just wish that she would try because I still believe with all my heart that she could beat this cancer. The problem is...my mom does not believe that anymore. I am not sure that she ever believed it. I know she does not want to leave us, but she also lacks the will to fight. It is understandable, but still very hard.
I am glad to hear things are well with your mom. I hope you and SB have settled into your new lives. My family is still living in the caretakers. We won't be in our new house until MAYBE???? October. Talk soon and thanks for the support.
God bless,
Valerie0 -
Valerie,
I also lit up from my neck to my abdomen when I had a PET scan. My lymph nodes that were involved were in my neck, around my thyroid, all the way down my breast bone, around my aorta and throughout my abdomen. That was my recurrance! I decided right then to fight it...I went through a regimen of chemo for a year and then radiation and then more chemo and 3 years later and a 3 month period of NED, I'm still here. I also had a spot on my liver, which is now gone.
My point, if your Mom's major organs are still clean, she can fight this disease. At this point the doctors treat it as a chronic disease and they can extend life for several years. Some days are tougher than others, but life is good, no matter what.
You and your family will be in my thoughts and prayers. It is your mothers choice and if she chooses not to fight and does not have the positive attitude that is almost half the battle, there is little you can do but support her decision.
No one understands how cancer hurts, unless you've been there. Unfortunately, caregivers never really understand.
my very best to you and your family,
Kerry0 -
Valerie,
I too am a caregiver and can't imagine having to sit back and let my husband give up, but I guess as Kerry says it is their choice even if we think it is a bad one. Please know you and your family are in my prayers and hoping that your mom finds the strenght and determination to fight back.
God Bless
Sandy0 -
Hi Kerry,kerry said:Valerie,
I also lit up from my neck to my abdomen when I had a PET scan. My lymph nodes that were involved were in my neck, around my thyroid, all the way down my breast bone, around my aorta and throughout my abdomen. That was my recurrance! I decided right then to fight it...I went through a regimen of chemo for a year and then radiation and then more chemo and 3 years later and a 3 month period of NED, I'm still here. I also had a spot on my liver, which is now gone.
My point, if your Mom's major organs are still clean, she can fight this disease. At this point the doctors treat it as a chronic disease and they can extend life for several years. Some days are tougher than others, but life is good, no matter what.
You and your family will be in my thoughts and prayers. It is your mothers choice and if she chooses not to fight and does not have the positive attitude that is almost half the battle, there is little you can do but support her decision.
No one understands how cancer hurts, unless you've been there. Unfortunately, caregivers never really understand.
my very best to you and your family,
Kerry
I always enjoy hearing from you, and I do agree with what you say. I know that I could never understand what my mom is going through, but I do know that I love her and I will support any decision that she makes. That being said, it still does not make this any easier. And I know it is hardest on her and my dad.
God bless-
ValerieC0 -
Hi Valerie,so sad to see what you and your family are going through,I hope too that something happens that will make your Mom change her mind and go ahead with the chemo,I do believe for what you are telling us,that she has a chance to make it, I will pray for that,you are very special Valerie,and I admire all the support that you have given to your Mom with so much love.Lots of hugs for all of you.0
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You guys are all so great. I do not know what I would do with out you!!betina61 said:Hi Valerie,so sad to see what you and your family are going through,I hope too that something happens that will make your Mom change her mind and go ahead with the chemo,I do believe for what you are telling us,that she has a chance to make it, I will pray for that,you are very special Valerie,and I admire all the support that you have given to your Mom with so much love.Lots of hugs for all of you.
Last night I thought about showing my mom Kerry's post because it was so inspirational. I am going to talk to my dad today and see what he thinks.
I have shortened my prayer to "Thy will be done." I know God will take care of us, and if my mom is supposed to do the chemo, she will.
Again, you guys ROCK!
God bless-
ValerieC0 -
Hi Valerie,
I believe my husband's story may give your mom hope. The short version is: Severe pain increasing daily started 8/04-could not lay down-slept in chair...finally diagnosed Stage IV colon cancer 10/04, one month 5FU avastin, leucovorin. irinotecan, colon resection-liver resection and liver ablation, then 6 more months of chemo. The pain had stopped during chemo-started 2 weeks after stopping chemo in 7/05. Found reoccurence of cancer 11/05 in abdomen and chest...started CPT-11 and erbitux 11/05 every week......and still going. The amazing part which John's oncologist is amazed by is that John's pain is manageable when he is on chemo. For different reasons he has had some breaks from chemo and his pain goes out of control. John had emergency surgery in 2/07 for a blockage....he had been on 60 mg oxy 3x a day with breakthrough meds very rarely. Once off chemo he went up to 120 mg 3x day and up to 250 mg in breakthrough and still not comfortable. He went back on chemo and is now down to 80 mg 3x a day and back to his old self. I will gladly answer any questions for you, but just maybe your mom's pain could also be helped with the chemo.....and if she decides to start it-I will let you know how they have controlled JOhn's rash too. Good luck!! You are in my prayers!!I know you posted this yesterday-hope you read this.
Dash0 -
My heart goes out to you and your mom. I hope she changes her mind , but I respect her decision also and I know how stressful it must be for you. Your both in my prayers . God Bless
Diane0
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