Calling All 4's..

24

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  • alta29
    alta29 Member Posts: 435 Member
    #22
    1/16/05 stage IV...recurrance 12/12/06. Taking Avastin/cpt11 and 5FU..stable on last ct..next one next week..please pray....
  • hicarm
    hicarm Member Posts: 57
    #23
    Dad-lives in Hong Kong and us in Phily. DX in November 2005 stage 4 with liver mets.
    Colon resection-December 2005
    8 rounds of Xeloda,Avastin,Oxiliplatin.
    Liver resection #1 April 2006 with HAI pump installed
    Completed more chemo till Oct, 5FU in pump, Xeloda, Avastin,Oxy.
    NED till Jan 07
    REcurrence with liver mets 5 cm and 3 cm
    Liver resection#2 in Feb.
    Now is recovering from that surgery. Doctor discovered water in lungs.
    Cat scan next week.
    More chemo on HAI pump with 5-FUDR for April if water in lung is taken care of.
  • jams67
    jams67 Member Posts: 925 Member
    #24
    dx stage iv 8/05 in transverse colon and with 10 of 36 lymph nodes and mets to liver.
    Removed: 12 inches of colon, lymph nodes and 1 lobe, plus part of the other.
    5FU + Oxaliplatin + Avastin for 10 of 12 treatments.
    NED since surgery 8/05.
    New CT Monday and as always I'm a little stressed. I haven't had one for 6 mo. However, I feel so much better after a year without chemo and I haven't taken any meds for cancer since 3/06.
    Jo Ann
  • AveriRN
    AveriRN Member Posts: 61
    #25
    Dx Nov 15,03 cc w/liver mets- CEA never elevated

    colon resection Dec 10,03 ?-no colostomy

    Liver resection Jan 23,04

    5.5 wks rads starting Mar 1,04
    with 5FU fanny pack 24-7

    April started FOLFOX regimine

    NED Oct 28,04
    continued Folfox till end Jan 05

    NED all of 05-took Thalidomide until insurance wouldn't pay for it anymore in October-no other therapy at this time then...

    Jan 06 back in liver

    Feb 06 second liver resection and back to NED

    April started CPT-11,Avastin,Xeloda
    Finished this in August 06 except continue on Avastin as maintenance therapy

    Scans in Jan 07 say NED!!
  • crazylady
    crazylady Member Posts: 543 Member
    #26
    diagnosed march 2004 large rectal tumor, no other involvement. 5 and a half weeks of chemo and radiation followed with surgery resulting in a permanent colostomy. 6 months of xeloda. NED until Oct. 2005 when cancer showed up in several places in right lung. 6 months of folfox. NED until August 2006, back in right lung. Had surgery and went back on Folfox + Avastin for 6 sessions. Had last scans in February and remain NED. I am now completely off chemo.
    Jamie
  • taraHK
    taraHK Member Posts: 1,952 Member
    #27
    Diagnosed Dec 2002, rectal cancer, stage 3

    2003: 6 weeks chemoradiation followed by surgery (with permanent colostomy) followed by 4 mos 5FU + leucovorin

    2005: solitary lung met. Surgery followed by FOLFOX. Completed 11 out of 12.

    2007: Another lung met. Surgery. Now on FOLFOX + Avastin.
    It's a bummer to be on chemo for the 3rd time in five years. On the other hand, I"M ALIVE! And I've been able to see my boys grow from 10 and 12 year olds to magnificant 14 and 16 year olds - --
  • katefm
    katefm Member Posts: 112 Member
    #28
    only54 said:

    DX with Stage IV on 3/17/06. Found in lymph nodes in neck. Had colonoscopy in Dec 05. Showed
    all good - another colonoscopy in April 06 found
    tumor in cecum. Since it had already spread to distant lymph nodes - not a surgical candidate.
    12 rounds of Folfox w/avastin - significant shrinkage. Then 3 month of xeloda - showed progression. 4 more Folfox with increased Avastin. Will decide at next appointment what to do next - take a break or xeloda with Avastin. Still looking for other people who are not surgical candidates - I surely can't be the only one!

    Rita in Kansas

    Rita-

    Jim's not a surgical candidate. He's got mets to liver, ohmentum, and one possible near his rectum. He's receiving systemic chemo until he clears up the little ones, and then we're hoping for a liver resection. It's going to take a little time - he's got tumors on both sides of his liver. In my mind, no surgery now doesn't mean no surgery later!

    Hope this helps.
    Kate
  • levensweg
    levensweg Member Posts: 55
    #29
    -Diagnosed 1/21/05 stage 4 mets to liver, five positive lymph nodes.
    -resection of Ascending Colon 1/22
    -resection of liver 2/22
    -6 months of chemo: folfox w/ avaston completed 10/15/05

    currently N.E.D. my last scan was 2 weeks ago.

    Other notes:
    I am 35 years old. I eat healthy. I used to smoke.No family history of cc. The PET scan did not pick up my tumor on the liver! My highest cea was 200. I had heartburn and fatigue for years before my diagnosis. Some friends still think I had liver cancer and colon cancer and some aren't exactly sure what a colon is...arghh. Nanuk, thanks for doing this. I appreciate hearing everyones descriptions.

    -Reuben
  • dash4
    dash4 Member Posts: 303 Member
    #30
    My husband - John -diagnosed 10/04 Stage IV

    11/04 - 6 weeks 5 FU, irinotecan, leucovorin, avastin

    12/21/04 liver resection, liver ablation, colon resection

    2/05 - 6 months of 5 FU,irinotecan, leucovorin, and avastin

    NED for 3 months
    Reoccurence node in abdomen and 2 in chest
    11/05 irinotecan and erbitux weekly till 2/07 surgery for small bowel blockage...will start in 6 weeks back on chemo. All is stable at this time.

    John experiences quite a bit of pain that no one has ever been able to understand why, so he deals with that along with the chemo. He is always positive and upbeat about the future and our life revolves around it all. We are very grateful for all the advice and support that comes from this board.

    Dash
  • NWmom
    NWmom Member Posts: 80
    #31
    Carl diagnosed 10/12/06 stage IV rectal cancer, mets to liver. CEA 18.

    Colon and liver resection 10/21/06 found 12 positive nodes out of 34. CEA 1.1

    5 rounds of FOLFOX + Avastin. CEA 2.3

    Just started 5 weeks chemo radiation on Monday 3/5. 5-FU 24/7 and that seems to be making him pretty sick. He's been on nausea meds everyday. We were hoping he wouldn't need them on the lower dose. Oh well....

    He is supposed to have 5 more rounds of FOLFOX after the rads.

    He has a great attitude and is the most positive person I know.If anyone can beat this he can.

    Heather
  • valeriec
    valeriec Member Posts: 348 Member
    #32
    My mom...63 yrs old. Diagnosed 5-15-06 stage 3.
    4 treatments of Folfox. Treatments were stopped briefly in late July because my mom had severe depression and failure to thrive. PET showed 5 new tumors. Restaged at 4 in August 06.
    10 cycles of Xeloda and 12 cycles Avastin. Initial response was good, but then in late Jan 07, scans showed progression. She has tumors on both her adrenal glands.

    Her third line chemo would have been CPT 11 with Erbitux. My mom decided not to do this line of treatment.

    March 07-Went Boulder Colorado to Rocky Mountain Cyberknife. The placed fudicials in my mom's tumors that are on both of her adrenal glands and next week she will do 5 days of treatment. I'll let you know how this goes.
    God bless-
    Valerie
  • valeriec
    valeriec Member Posts: 348 Member
    #33
    valeriec said:

    My mom...63 yrs old. Diagnosed 5-15-06 stage 3.
    4 treatments of Folfox. Treatments were stopped briefly in late July because my mom had severe depression and failure to thrive. PET showed 5 new tumors. Restaged at 4 in August 06.
    10 cycles of Xeloda and 12 cycles Avastin. Initial response was good, but then in late Jan 07, scans showed progression. She has tumors on both her adrenal glands.

    Her third line chemo would have been CPT 11 with Erbitux. My mom decided not to do this line of treatment.

    March 07-Went Boulder Colorado to Rocky Mountain Cyberknife. The placed fudicials in my mom's tumors that are on both of her adrenal glands and next week she will do 5 days of treatment. I'll let you know how this goes.
    God bless-
    Valerie

    I forgot...She has not been NED yet, but we are still praying for that.
    Time since diagnosed-10 months.

    Thanks for doing this Bud, in my book you're a CHAMP!!!
  • SueS
    SueS Member Posts: 14
    #34
    Jim was dx 6/06 StageIV colon cancer that matastersized to testicle. 1 out of 27 lymph nodes postive. 12 treatments of oxaliplatin, 5FU, Leucovorin. 3 treatments delayed due to white count. nupergen shots. Just finished chemo treatments three weeks ago. Cat and pet scans scheduled for March 20th and sooo looking forward to meeting ned.

    hugs to all
    SueS
  • KFalvey
    KFalvey Member Posts: 118 Member
    #35
    Stage IIIc originally 2/05; Surgery ,Folfox4 completed 9/05.
    Recurrance 2/06; left ovary and small tumor between vag. and rectum removed surgically; Folfori with Avastin-completed 11/06.
    1/31/07 all clear. Next scans 5/14. Hopefully still NED. Kandy
  • carmen07
    carmen07 Member Posts: 120 Member
    #36
    Husband - Stage IV 2003 - Liver mets-Surgery Colon 10/03.
    Liver Resection 6/04.
    Reoccurrence 2005 - Left ureter small mass (very rare since original cancer was not rectum.
    Hoping to have surgery.
    Treatments -

    Oxi/Leco/5fu/Avastin
    Erbitux/Irrotecan
    Radiation/5fu
    Vercitibex
  • impactzone
    impactzone Member Posts: 555 Member
    #37
    Hello all. Her is a quick history: dx stage 4 colon cancer on 8/28/06. Colon surgery on 9/1 removed 21 nodes, 1 positive. I had a CEA of 17. I had a 3 cm tumor located in right posterior lobe of the liver, by CT and PET. I went on 6 months of chemo (xeloda, erbitux, oxyliplatin) interrupted by a Thanksgiving pulmonary embolism where I was hospitalized. The tumor shrank and going into liver surgery Wed 2/28/07, I had a CEA of less than 1.0 and nothing showed on PET.

    Liver surgery is tougher coming back from as they dissected the liver and flipped it over to remove the 1 cm tumer. No other spots were found even though they had seen other spots on CT. Radiologist said cysts and hemangianomia.

    Now I am 6 weeks off and then 3 cycles of chemo after that. I don't know if they will change protocol or add Avastin. I feel hopeful as I am NED but obviously very early in this long process. I went a different path than most (chemo first to see the effect on the tumor and then surgery and I was sweating more tumors showing up.

    God bless all of you. As a 48 year old dad (birthday a couple of weeks ago), I feel like I might see my kids graduate high school.

    For liver surgery, I was suprised how low my appetite is, how gummed up I feel (I do get stool softeners) and how painful the cut and drains were. They used glue to sew me up with other sutures under the skin. Any suprises waiting me those of you with experience?

    thanks to all

    impactzone
  • FLmel
    FLmel Member Posts: 4
    #38
    11/2004 - Dx Stage IV, 14 lesions on liver, 4 positive lymph nodes, Ascending colon resection.

    12/04 - started chemo - Oxal. 5fu, lecovrin, Avastin - 1 year

    10/05 - NED per PET scan

    09/06 - 2 spots on liver per PET scan, tumor markers normal - started on Xeloda 2 week cycles

    12/06 - radiation ablation for spots

    1/07 - restarted on Xeloda 2 week cycles

    3/2/07 - PET scan - negative NED, will continue Xeloda for 6 months til July.
  • tennislover
    tennislover Member Posts: 64
    #39
    Hello! I am a stage IV survivor! It has been 1 year, I am on Folfox with Avastin. NED since November!
  • AnnieM939
    AnnieM939 Member Posts: 38
    #40
    Diagnosed with Stage IV colon cancer (mets to liver and lungs) on August 17, 2006. Colon resection on August 31st and started chemo (Avastin, Leucovorin, 5-FU, Oxaliplatin) on October 2nd. Will have the 12th of 12 cycles on March 22-24 and the plan then is Avastin maintenance. Oncologist is very optimistic, as my tumor marker and CEA levels have been steadily decreasing. CT Scan in December showed all tumors shrinking.

    I can't wait until this is all over (one way or the other).

    God Bless You All
  • pink05
    pink05 Member Posts: 550
    #41
    My father was diagnosed with cc Dec., 05. He had surgery in Jan., 06. Initially scans showed no mets anywhere-only spread to lymph nodes, however, two months later, another scan showed two liver mets. Dad did six months of chemo and was considered NED in July. He stopped chemo beginning of Sept., and just found out today that he continues to be NED.

    Treatment: Folfox+avastin (5 months), then xeloda+avastin (1 month). Dad is also on some supplements. He has changed some aspects of his diet but could definitely improve his eating habits. I also believe that prayer was part of the healing process and has helped him A LOT!!!

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