Neuroendocrine cancer

maganda8
maganda8 Member Posts: 4
edited March 2014 in Rare and Other Cancers #1
I'm interested in anyone who has consulted with Dr. Oberg in Sweden...need to know chemo meds and progress. We have been to him 1x and want to go back but we need some documented progress to show MD. Thank you, maganda8

Comments

  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #2
    Hello,

    You may want to contact the American Cancer Society's National Cancer Information Center for find out about resources on international physicians. They can be reached 24 hours a day at 1-800-227-2345 or by clicking on the "Contact ACS" link at the top of this page.

    Take care and be well,

    Dana
    CSN Dana
  • enterpryzman
    enterpryzman Member Posts: 4 Member
    #3
    we have met with him in Portland last September.....what state are you in ? We are in Pennsylvania.
  • maganda8
    maganda8 Member Posts: 4
    #4
    enterpryzman said:

    we have met with him in Portland last September.....what state are you in ? We are in Pennsylvania.

    We are in Gergia. Did he help?
  • lparrotto
    lparrotto Member Posts: 1
    #5
    Our daughter has neuroendocrine cancer carcinoid tumors on the liver. After 2 rounds of cisplatin/etoposide, the scan showed shrinkage. After 3 more rounds, it stopped working. She has now had one treatment with Taxol and Avastin and will do another tomorrow. One treatment every three weeks. Looking into German Cancer Clinics where chemo is not as harsh and other modalities are used in conjunction to help the patient's immune system. Anyone out there know anything about them? And, is there further information on Dr. Oberg?
  • carcinoidlady
    carcinoidlady Member Posts: 5
    #6
    lparrotto said:

    Our daughter has neuroendocrine cancer carcinoid tumors on the liver. After 2 rounds of cisplatin/etoposide, the scan showed shrinkage. After 3 more rounds, it stopped working. She has now had one treatment with Taxol and Avastin and will do another tomorrow. One treatment every three weeks. Looking into German Cancer Clinics where chemo is not as harsh and other modalities are used in conjunction to help the patient's immune system. Anyone out there know anything about them? And, is there further information on Dr. Oberg?

    Dr. Oberg with be in Norfolk, Virginia in September at the 2007 North American Carcinoid - Neuroendocrine Conference for Patients and Physicians. The conference web site is: www.carcinoidnetconference.org
    The program schedule is listed, you can register to attend, and the hotel information is all located on the web site.
    Dr. Oberg is just one of the many experts who will be at the conference - Dr. Vinik, an endocrinologist who has worked in this field since the 70's is based in Norfolk at the Eastern Virginia Medical School

    The conference is a 2 and a half day event which features lectures on all areas of needed medical knowledge for carcinoid and other neuroendocrine patients.
  • carcinoidlady
    carcinoidlady Member Posts: 5
    #7
    maganda8 said:

    We are in Gergia. Did he help?

    Dr. Oberg with be in Norfolk, Virginia in September at the 2007 North American Carcinoid - Neuroendocrine Conference for Patients and Physicians. The conference web site is: www.carcinoidnetconference.org

    The program schedule is listed, you can register to attend, and the hotel information is all located on the web site.

    Dr. Oberg is just one of the many experts who will be at the conference - Dr. Vinik, an endocrinologist who has worked in this field since the 70's is based in Norfolk at the Eastern Virginia Medical School

    The conference is a 2 and a half day event which features lectures on all areas of needed medical knowledge for carcinoid and other neuroendocrine patients.

    Dr. Vinik and Dr. Oberg have worked together and in cooperation for many, many years.
  • sandy222
    sandy222 Member Posts: 1
    #8
    lparrotto said:

    Our daughter has neuroendocrine cancer carcinoid tumors on the liver. After 2 rounds of cisplatin/etoposide, the scan showed shrinkage. After 3 more rounds, it stopped working. She has now had one treatment with Taxol and Avastin and will do another tomorrow. One treatment every three weeks. Looking into German Cancer Clinics where chemo is not as harsh and other modalities are used in conjunction to help the patient's immune system. Anyone out there know anything about them? And, is there further information on Dr. Oberg?

    I was diagnosed with a terminal carcinoma 2 years ago and was given Cisplatin + others only to be told In June I have a carcinoid on my liver and the treatment is not CHEMO. It is a homonal drug to manage it. I am waiting for more tests. He told me that Cisplatin does nothing for this type of cancer. Hope this helps
  • alisonm
    alisonm Member Posts: 2
    #9
    lparrotto said:

    Our daughter has neuroendocrine cancer carcinoid tumors on the liver. After 2 rounds of cisplatin/etoposide, the scan showed shrinkage. After 3 more rounds, it stopped working. She has now had one treatment with Taxol and Avastin and will do another tomorrow. One treatment every three weeks. Looking into German Cancer Clinics where chemo is not as harsh and other modalities are used in conjunction to help the patient's immune system. Anyone out there know anything about them? And, is there further information on Dr. Oberg?

    Just curious how your daughter is and how the new chemo regime is working. I have mets to the liver also and have gotten 4 round of Carboplatin/Taxol so will wait to see if the tumors have shrunk after my 6th treatment. Any news on the German clinics?

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