disuse colitiis/ what do to now??

Hello everyone. Even though I do not post as often I do read the messages. I feel as though everyone here is family and my heart goes out to each and everyone of you. To briefly update I was dx. with CA/COLON AUG. 2003. 8/20 lymph nodes positive. Right colon and terminal ileum removed left with an illeostomy on the right side. Part of the colon disconnected on the left side. Sigmoid colon removed. Rectum closed off with a hartmann pouch. Recent petscan in July 2003 as well as MRI's of abdomen and MRCP of bile ducts due to elevated pancreatic enzymes have been normal Thank God. Now left with MDS (myloid dysplastic syndrome) which is the pelvic bone marrow is now working properly possibly due to pelvic radiation. I am tranfusion dependent every 6- 8 weeks and have developed iron-overload from the transfusions. I now have developed severe lower back spasms which phsyicians feel it is muscular/skeletal because of the weakened muscles in the abdominal area. Also I have osteoporosis of the lower spine and tend to get insufficiency fractures in the right pelvic area as that is where the radiation was mostly targeted. Since the operation I have developed this disuse colitis in the rectum as well as the draining mucous fistula which is actually part of the disconncected colon. The GI Dr. calls it disuse colitis and that is all he says. I now placed a call to the surgeon in Manhattan and scheduled an appt. to discuss what to do with this rectum and remaining part of the colon. I am betwixed and between of going thru an operation now to re-connect in 2 areas at the same time. Surgeon will not know until he goes in how much damage has been done by the radiation. Also I have had previous surgeries before this cancer dx. for severe endometriosis in which I have received a total hysterectomy in 1999 and back then the surgeon stated the scar tissue was like drilling thru cement. So with all this in mind and now this disuse colitis which is bloody at times I am thinking of removing the remaining part of the rectum and colon. Not too sure until I see the Dr.
in Manhattan. I think I can handle living w/an illesotomy as opposed to facing the consequences of a double re-connection and not healing properly
due to much scar tissue which I already had. I also had many complications after the first surgery including being re-opened up 3 weeks after colon operation for adhesions. Then developed DVT and pulmonary embolisms. The tought of surgery right now scares the hell out of me.
I do know from this site many of you out there had reversals. Any advise would be appreciated. I do use the Shaz's ostomy support group site as well. Your friend Fran from Long Island