please add to options list

oneagleswings
oneagleswings Member Posts: 425 Member
edited March 2014 in Colorectal Cancer #1
I would really appreciate it both to help our situation and others here on this board if we could come up with a list of treatment options, available and in trial..as well as alternatives.
Sometimes I wonder if just knowing all the options there are helps psychologically as well as may assist when talking with an Onc...so here goes..please add to it..thank you so much

Chemo
-xeloda
-xeloda and oxaliplatin (xelox)
-xeloda oxaliplation and avastin
-oxaliplation and 5FU (folfox)
-oxaliplatin,5FU and avastin
-5FU and irinotecan (camptosar) (folfiri)
-5FU, iriniotecan and avastin
-erbitux and camptosar

Trials
-panitumumab

Non chemo
-radio frequency ablation
-stereotactic radio therapy (?) SRT
-sir spheres (trial?)

Alternatives
-Cancer Battle Plan
-whatever Scouty is doing..Scouty help!!

Thanks everyone for adding to this
Bev

Comments

  • goldfinch
    goldfinch Member Posts: 735
    #2
    ~ Irinotecan, erbitux, and avastin

    ~ Mitomycin C (an oldie, I'm told, but if everything else fails, worth considering) with avastin and xeloda.

    Mary
  • houseofclay
    houseofclay Member Posts: 63
    #3
    As of 9/27, panitumumab is no longer a trial because the FDA approved it. The market name is Vectibix and should be available starting 10/10.
  • goldfinch
    goldfinch Member Posts: 735
    #4
    goldfinch said:

    ~ Irinotecan, erbitux, and avastin

    ~ Mitomycin C (an oldie, I'm told, but if everything else fails, worth considering) with avastin and xeloda.

    Mary

    after looking it up, looks like mitomycin c is for rectal ca rather than colon ca.
  • goldfinch
    goldfinch Member Posts: 735
    #5
    houseofclay said:

    As of 9/27, panitumumab is no longer a trial because the FDA approved it. The market name is Vectibix and should be available starting 10/10.

    that's good news!!! though i asked the doc at dana farber about it as an option for me and he told me that it is a sister drug of erbitux and if erbitux was inneffective this would be too for me.
    Mary
  • houseofclay
    houseofclay Member Posts: 63
    #6
    goldfinch said:

    that's good news!!! though i asked the doc at dana farber about it as an option for me and he told me that it is a sister drug of erbitux and if erbitux was inneffective this would be too for me.
    Mary

    Vectibix and Erbitux are both monoclonal antibodies, so they both work the same way. Vectibix is being priced a bit lower and Amgen's Oncology Assistance program looks promising. Sorry it might be of particular help to you, though.
  • chynabear
    chynabear Member Posts: 481 Member
    #7
    houseofclay said:

    Vectibix and Erbitux are both monoclonal antibodies, so they both work the same way. Vectibix is being priced a bit lower and Amgen's Oncology Assistance program looks promising. Sorry it might be of particular help to you, though.

    I had oxaliplation and 5FU and Leucovorin (sp?) going on 2 years ago. I thought this treatment was refered to as folfox, or am I wrong. I thought Oxaliplation and 5fu was folfiri or however you spell it.
  • scouty
    scouty Member Posts: 1,965 Member
    #8
    Hi Bev,

    When I went to my Clinical Nutritonist (she also has degrees in homepathy and naturopathy medicines) my first appointment was 3 hours long (such a deal for $50.00!!!!!). She had my latest blood work and the results of urine sample. She took a hair sample and some other tests. Then she took all the results and tailor made my protocol just for my specific issues (not all were cancer related). What I did is VERY different from X amount of a chemo drug per kilogram of weight. I would be willing to bet that if 10 of us with the exact same kind of cancer went to see my doctor no 2 of us would be on the exact same protocols.

    I don't know how to tell you what to list it as. Anybody have an idea????????

    Lisa P.
  • scouty
    scouty Member Posts: 1,965 Member
    #9
    Hi Bev,

    When I went to my Clinical Nutritonist (she also has degrees in homepathy and naturopathy medicines) my first appointment was 3 hours long (such a deal for $50.00!!!!!). She had my latest blood work and the results of a urine sample. She took a hair sample and did some other tests. Then she took all the results and tailor made my protocol just for my specific issues (not all were cancer related). What I did is VERY different from X amount of a chemo drug per kilogram of weight. I would be willing to bet that if 10 of us with the exact same kind of cancer went to see my doctor no 2 of us would be on the exact same protocols.

    I don't know how to tell you what to list it as. Anybody have an idea????????

    Lisa P.
  • HowardJ
    HowardJ Member Posts: 474
    #10
    Here are some good links:

    Clinical Trials--
    www.clinicaltrials.gov

    NCI--
    http://www.cancer.gov/

    ASCO People Living With Cancer web site--
    http://www.plwc.org/portal/site/PLWC

    Also, the ACS home page has some good links as well.

    Howard
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #11
    The book "Outsmart your cancer: alternative non-toxic treatments that work" by Tanya Harter Pierce. Very interesting and lists few good methods. Protocel being one of them. There is a post on the 2nd page about it. I highly recommend this book.
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    #12
    Good Idea!

    Alternatives suggestions:

    The Gerson Therapy--juicing

    macrobiotics (When Hope Never Dies--Marlene McKenna; The Cancer Prevention Diet by Michio Kushi)

    Essiac Tea

    Medicinal Mushrooms

    Intravenous Vit C

    to name just a few.....

    There is a good book that I have called Cancer Options by Richard Walter It lists a whole bunch of good alternatives. I HIGHLY recommend it!!

    peace, emily who is back in action! woohoo!
  • carmen07
    carmen07 Member Posts: 120 Member
    #13
    New combination of Chemo Combination for Advanced
    XeloxA: Xeloda/Eloxatin/Avastin.
    Also Xeloda/Avastin another combo used for recurrent.
    Information on www.cancerconsultants.com. (Patient info). List all chemo combinations for Phase including Recurrent.

    New Drugs in Trial now for Colon Cancer can be found on Same web site -www.cancerconsultants.com. Go to physician area and you will see the link for drugs in the pipeline by Cancer Type. It list at least two pages of drugs and the Phase of the Trial.
    Cofactor is an interesting new drug.
  • levensweg
    levensweg Member Posts: 55
    #14
    Is Cryosurgey, where a needle is placed into the tumor to freeze still being done or explored for advanced cancer?
  • levensweg
    levensweg Member Posts: 55
    #15
    carmen07 said:

    New combination of Chemo Combination for Advanced
    XeloxA: Xeloda/Eloxatin/Avastin.
    Also Xeloda/Avastin another combo used for recurrent.
    Information on www.cancerconsultants.com. (Patient info). List all chemo combinations for Phase including Recurrent.

    New Drugs in Trial now for Colon Cancer can be found on Same web site -www.cancerconsultants.com. Go to physician area and you will see the link for drugs in the pipeline by Cancer Type. It list at least two pages of drugs and the Phase of the Trial.
    Cofactor is an interesting new drug.

    Is Cryosurgery, where a needle is inserted into the tumor to freeze it still used in advanced cases?
  • topoha
    topoha Member Posts: 1
    #16
    goldfinch said:

    that's good news!!! though i asked the doc at dana farber about it as an option for me and he told me that it is a sister drug of erbitux and if erbitux was inneffective this would be too for me.
    Mary

    not necessarily true. Erbitux contains mouse antibodies whereas panitumumab is made up of human antibodies. My understanding from my Dr is there is potential value in moving from erbetux to panitumumab once erbitux has stopped being effective. They both give the rash, however. Figures, huh.
    Do some research yourself before you decide it won't work.

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