just diagnosed

impactzone
impactzone Member Posts: 555 Member
edited March 2014 in Colorectal Cancer #1
Found people here. I have a sigmoid colon cancer, 47 years old. CT scan shows one possible spot on the liver. Obviously scared with 2 young kids at home. I meet wih my dr in Santa Barbara today and then surgery is Friday. Please any suggestions?

Comments

  • mindy10
    mindy10 Member Posts: 182 Member
    My suggestion is to just take day by day and try not to let it rule your life. There alot of colon cancer survirors on this site that will give you such strength and hope. Try to stay as positive as you can. You will get alot of advice on this forum. Mindy
  • betina61
    betina61 Member Posts: 642 Member
    Hi! I was there where you are about two month ago, so I know exactly how you are feeling,try not to worry at this point about the spot that showed on the liver, I have been reading from so many survivors on this site that a spot not necessarily means cancer, so be as optimistic as you can be, I am sure you will be feeling better emotionnaly as time passes, at least for me that first days after diagnosis where the worst, right now that I had my surgery and just started treatment, most of the days I feel peaceful I pray for that every single day. Here you are going to find lots of friends that will be on your side through this journey that you just started, I'll be one of them. I will be praying for you ,especially this coming Friday, lots of hugs, BETINA
  • lfondots63
    lfondots63 Member Posts: 818 Member
    Hi Impactzone,

    You came to the right place but sorry you have to be here. Is your tumor going to be removed Friday? Keep heart about the spot on the liver. If they didn't do a PET scan it might be just a cyst. That has happened to others. After surgery once you are allowed make sure you walk a lot to "wake up" the bowels. The faster this happens the faster you go home. Also don't skimp on pain meds. Being in pain will tire you out if you do. Take it easy when in the hospital. You will be there about 5 days. Think of it as a time to rest and recoup. HUGS and we have all been through this. After surgery you will be a fellow "semi-colon". LOL. Very proud group.

    Lisa F.
  • Patrusha
    Patrusha Member Posts: 487
    HI. I am 49 with Stage II. My CT scan showed two spots on the liver and an enlarged ovary. An MRI ruled the liver spots to be cysts, and surgery removed the ovaries and, again, it was cysts. So stay positive. Not all "spots" are cancers. Ask if they can do an MRI to determine before surgery if the spot is anything serious. They will also check the liver when they do the surgery to remove the cancer in the colon. Ask if they can do the surgery laparoscopically, which is less invasive. Good luck! Let us know how it goes today!
  • pink05
    pink05 Member Posts: 550
    Hi,

    I know the pain you are feeling right now. This will probably be the most difficult week for you, but it does get better. My dad has colon cancer and the first day we found out was the worst day of my life. That first week was so stressful, but after surgery, things seemed to calm down. They also saw a spot on his liver which turned out to be a cyst. Two months later, they found two more spots which did end up being cancerous. My point is that the liver is a very fatty organ and it is not uncommon to find cysts or dense areas during scans.

    Also, my dad had his surgery laporscopically. He got out of the hospital in 3 days and barely had any pain. It is a wonderful procedure. I would ask your surgeon about it if you haven't already.

    I will be praying for you. Let us know how everything goes.

    God bless you,

    -Lee-
  • themis01
    themis01 Member Posts: 167
    The main things I have learned through my mom is to always get a second opinion, especially in the beginning..and if they can get the cancer out surgically do it, but if they can't there are still lots of optins especially for the liver so don't give up.
    Erika
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    Hello,

    I know you are very scared now. But know that God is with you through this most difficult time. May your surgery be successful and the recovery speedy.

    Please do let us know of the outcome. We are praying for you.

    Best Wishes and God Bless,
    Eleonora
  • jams67
    jams67 Member Posts: 925 Member
    Be sure to get a CT scan and/or a PET scan so that you are sure about what you have in your liver before your surgery. I had surgery scheculed for colon cancer, and they weren't sure whether there was cancer in the liver. I got advice from a friend's brother, a liver surgeon, and he suggested a doctor who specialized in liver surgery. This doc was able to resection my liver, removing 50% and resection my colon, removing 12 inches. If the other doctor had done the surgery, more than likely I would have had to have two surgeries. Not likely that you have cancer in your liver, but you want to be prepared for whatever. I'm sorry that you are haveing to go through all of this. I'll keep you in my prayers. jams
  • Kanort
    Kanort Member Posts: 1,272 Member
    Hi,

    I hope by now that you have met with your doctor and he/she has answered some of your many questions. Please keep up posted on your progress after your surgery. We are here for you and will keep you in our hearts and prayers.

    Hugs,

    Kay
  • LOUSWIFT
    LOUSWIFT Member Posts: 371 Member
    I just finished radiation/chemo/surgery/chemo about nine months worth. If I learned anything it is from day one stay on top of what is going on with you. Don't expect the doctors to call with test results or to be direct with you about your situation. Keep your files; keep your labs; force the doctors to treat you like an adult and get info and info. For example my onc insisted on a pet-scan with long arguments with insurance company but I got one. I was told results would be back in 3-5 days...not a word from anyone for ten days. I finally called my onc nurse and she said let me read the results. She did and then said oh you better come see the doctor. Now that will scare the %$#@*& out of you! My pet scan showed some suspicious spots by my stomach. But both my doctors said it was what they call false positives or low grade images that are 99% likely nothing. My surgery confirmed there was nothing there while poking around doing the colon tumor removal. My point is you take care of you. I don't blame the docs there are just too many of us. Don't worry about being scared I was and will always be scared just don't let it overwhelm you. Lots of help from everyone here from knowledge to support - use it.
  • KathiM
    KathiM Member Posts: 8,028 Member
    49 when dx. rectal cancer...stage III....3 'spots' on liver....chemo/rads first...surgery 'looked at' liver..just spots...
    over 1 year later....NED, no colostomy....

    Cut and dried....

    Fuzzy, warm hugs (bet you didn't expect THAT, huh? hehehehehe)
    Kathi

    And PLEASE keep us posted!!!
  • JADot
    JADot Member Posts: 709 Member
    Hi there,

    Sorry to hear what you're going through now. But hey, can't remember who said it - I have cancer, cancer doesn't have me! That's what you've got to believe. All of us on this site are survivors and winners and soon you will be one too. Yes, it ia all really overwhelming in the first few weeks. Jsut try to live one day at a time, and do the next right thing that's obvious. I am sure you will, like all of us have, find the strength to fight the beast and win.

    After the surgery, remember to walk walk walk. The sooner you walk, the sooner your colon will wake up, the sooner you can eat, the sooner you'll poop and the sooner you'll go home. Whew, run on sentence that was :)

    Best of luck to you! Take care and keep us posted on how you do.

    Cheers,
    Ying
  • jerseysue
    jerseysue Member Posts: 624 Member
    Keep asking questions here and at your doctors office. Read back thru some of these posts you may find that helpful.
  • jsabol
    jsabol Member Posts: 1,145 Member
    Sorry to hear that you have need of this site; but glad you found us. Getting that diagnosis (age 53)sure took my breath away for a long time. The surgery is not too bad (remember GOOD pain control and walking) and the adjuvant treatments, if needed, are something most of us have experienced and gotten through OK.
    I had 3 spots on my liver; they are "cystic in nature" and have gone no where in nearly 3 years. My surgery revealed one positive node, chemo for 6 months, now 2 years out of treatment and No Evidence of Disease.
    As I was told when I forst found this site, YOU WILL GET THROUGH THIS, one day at a time, one breath at a time. Be your own best advocate and accept EVERY offer of help anyone gives you....meals, babysitting, shopping, driving (makes friends feel better, too.
    Take care of yourself, keep us posted; best of luck on Friday. Judy
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    jsabol said:

    Sorry to hear that you have need of this site; but glad you found us. Getting that diagnosis (age 53)sure took my breath away for a long time. The surgery is not too bad (remember GOOD pain control and walking) and the adjuvant treatments, if needed, are something most of us have experienced and gotten through OK.
    I had 3 spots on my liver; they are "cystic in nature" and have gone no where in nearly 3 years. My surgery revealed one positive node, chemo for 6 months, now 2 years out of treatment and No Evidence of Disease.
    As I was told when I forst found this site, YOU WILL GET THROUGH THIS, one day at a time, one breath at a time. Be your own best advocate and accept EVERY offer of help anyone gives you....meals, babysitting, shopping, driving (makes friends feel better, too.
    Take care of yourself, keep us posted; best of luck on Friday. Judy

    Hi....just some words of encouragement. I was stage 2 sigmoid cancer with surgery then chemo.I am now 2 1/2 years NED(no evidence disease). Understand your fear but know this....you may have a journey to make but there is hope for good prognosis...BELIEVE!!!!!
    Ross n Jen
  • impactzone
    impactzone Member Posts: 555 Member
    Thank you so much. It does seem overwhelming. I meet with the surgeon. He is certified from American colo -rectal, very respected, checked his references and feel good. He said surgery is necessary, and quicker is better than any waiting. I was concerned about doing this in Santa Barbara or perhaps going to someplace like the City of Hope with a larger facility and perhaps more experience but the surgeon felt this step could be accomplished here and he has extensive experience. If I desired to look there for a comprehensive plan after pathology report of the nodes that is great. He said he will laproscope it first, then go to open if needed. He will look at the liver if open and wedge any obvious tumor out. I have not had a PET scan or MRI yet. The colon is almost obstructed and this must get out. I am talking to an oncologist today but the surgeon said wait until the pathology report comes back about nodes before we start the Pet scans, treatment options, etc. He said that he still needs to see the outside of the tumor, and any involvment with other tissues. Does this sound resonable?
  • ruggersocks
    ruggersocks Member Posts: 78 Member
    I'm so sorry to hear about your diagnosis. All the encouragement and advice you've gotten here has been wonderful. Nothing more to add except my prayers and a big Hug. Cheryl