My husband Just diagnosed

LLLady
LLLady Member Posts: 67
edited March 2014 in Colorectal Cancer #1
8/9/06 With colon cancer
I have been to other sites asking to speak to anyone who has survived but I have gotten no reply. He has a appointment on Tues to meet with a surgeon to discuss taking the blockage(tumor) out. His colon is almost compeletly blocked. he's 41 we have been together for 21 years. He is the love of my life
I'm so scared and break down when ever I'm alone.
I just want as much information as I can get. Any one who has any information for me Please let me know.
Thank you
LLLady~*

Comments

  • Patrusha
    Patrusha Member Posts: 487
    LLLady,

    There are plenty of colon cancer survivors out there, even some who began their journey in Stage III or even Stage IV. There is always hope! So never give up.

    I started my journey as a survivor five weeks ago with surgery and now I tell people I "HAD" cancer. Attitude is everything. I was diagnosed Stage II yet still need to make a decision whether to do chemo or not.

    You're in a scary place right now, but be assured there is plenty of help here for you.

    When is your husband's surgery? Are they doing the surgery first, or are they recomending radiation or chemo beforehand?

    God bless!
  • vinny3
    vinny3 Member Posts: 928 Member
    Hi LLLady,
    There are alot of survivors here. What part of the colon is the tumor in? That makes some difference in what the treatment is. If it is almost completely blocking they may need to do surgery first. I had rectal cancer and had chemoradiation first to shrink the tumor. At your husband's young age you may want to have him get some gene testing especially if you have children.
    Good luck and keep asking questions. Our prayers are with you.
    ****
  • KathiM
    KathiM Member Posts: 8,028 Member
    Well, my dear, we are technically all survivors from the day of diagnosis....
    That said, Stage III rectal here....first rectal fold....chemo/rads first, not completely blocked. Then resection that removed my rectum, sigmoid colon, and total hysterectomy (something your hubby just won't need to worry about...hehehehe).

    Officially, as of July 12, 2006, I am something called NED (No Evidence of Disease)...as close to 'cancer free' as I can get!!!!!!

    Hugs to you, dear caregiver...you are the real angel!

    Depending on the stage, and all sorts of things, treatment will be different...but probably the first thing is to relieve this blockage. I also specialize in bowel obstructions (5 so far), so I can imagine the pain he must be in!!!!

    Hugs that you found us. We are officially the semi-colons...and have quite a bit to say on any subject you care to bring up....rofl!!!!!

    I have a SPECIAL place in my heart for caregivers....I was first one of those before my 2 battles with the beast (I beat stage II breast cancer after the rectal...NED there, too)!!!!

    Hugs to you both.....
    Kathi
  • tennislover
    tennislover Member Posts: 64
    Hang in there. I am 28 with stage IV, I am a single mother of a 5 and 7 year old. I have had chemo and radiation, surgery and now I am on chemo. Being emotional is so normal, I still have my mood swings, the most important thing for me has really been my family and friends. Being there for your husband will make all the difference in the world. Like others have said, Attitude is everything and I believe that with all my heart. Fight this thing!!!! Make sure that you have someone that you can talk to about what you are going through, you always have us here! I will keep your family in my prayers.
  • JADot
    JADot Member Posts: 709 Member
    Hi LLLady:

    I am so sorry that you and your husband are having to face this.

    I went through my trial last year, 1 day after x'mas, at 39. But ya know what, 8 months later, I am thankful for everything that happened. Yes, I had cancer, then I had surgery and chemo. Along the way I found so much kindness, so much love, so much support, and the soul of strength and kindess that is my husband. I think I am the luckiest person alive.

    All of us on this site are survivors. Colon cancer is very treatable and beatable. I know you have a lot of unknowns at this point, just live one day at a time, all of us will see you through the process with help, information and good dose of postive thinking and positive attitude. Like Lance said, attitude is everything.

    You're doing the right thing by talking w/ a surgeon. Get that cancer out as soon as possible, without a second's delay.

    The best thing you can do for your husband is letting him know what he's not alone in this, and that you and all of us will be there with him in his fight.

    Best of luck to you!

    Ying
  • LLLady
    LLLady Member Posts: 67

    Hang in there. I am 28 with stage IV, I am a single mother of a 5 and 7 year old. I have had chemo and radiation, surgery and now I am on chemo. Being emotional is so normal, I still have my mood swings, the most important thing for me has really been my family and friends. Being there for your husband will make all the difference in the world. Like others have said, Attitude is everything and I believe that with all my heart. Fight this thing!!!! Make sure that you have someone that you can talk to about what you are going through, you always have us here! I will keep your family in my prayers.

    I'm glad I found you people, Thank you so much and I wish you all the best Hugs!
    We don't even know what stage my husband in yet. But I do know the blockage is very low below his belly button on his left side the doctor could not get passed it to finish the colonoscopy.
    I'm reading a few books. They talk about the immune system and vitamins he needs to take and cleaning his liver. but I also see he can't take vitamin C while on chemo. I wonder why
    Oh did I mention I'm a heart attack survivor 11/17/01
    Our youngest son is 15 and taking it pretty hard he wont talk about it at all. He gets very mad if you try to talk to him about how he's feeling. I have 2 other boys that my husband raised but they are not his kids. They are 23, and 27 they are very upset. We don't have a surgery date yet, We are meeting with the surgeon this Tuesday.
    Anyway I thank you all for being here for me when I really need you. xoxo Take care sweetheart's
    LLLady~*
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    Sorry to hear what you ar going through. However, you have found the right place. I know first hand how scared you are now. Last year I faced the same thing. My husband too had a tumor that almost completely bocked the colon. Due to the size of the tumor, the doctor could not complete the colonscopy. The tumor was successfully removed with 12 inches of colon. (this length of colon removal is fairly common.)

    Chemo may be in your future depending on several factors. As chemo goes, it is ok. My husband works in a factory and works every day except the day he receives chemo. If you have more questions, always feel free to ask. I found that reading this site almost daily helped so much. It helped me to understand things the doctor discussed. I was able to share success stories with my husband. I understand your fears. I cried almost daily for a long time. My husband is stage 4 so there are still many days of tears but not in his presence. Please know that I totally understand where you are. My prayers are with you both. Keep us posted. If I can help you in any way, please feel free to ask.

    Betty
  • KathiM
    KathiM Member Posts: 8,028 Member
    LLLady said:

    I'm glad I found you people, Thank you so much and I wish you all the best Hugs!
    We don't even know what stage my husband in yet. But I do know the blockage is very low below his belly button on his left side the doctor could not get passed it to finish the colonoscopy.
    I'm reading a few books. They talk about the immune system and vitamins he needs to take and cleaning his liver. but I also see he can't take vitamin C while on chemo. I wonder why
    Oh did I mention I'm a heart attack survivor 11/17/01
    Our youngest son is 15 and taking it pretty hard he wont talk about it at all. He gets very mad if you try to talk to him about how he's feeling. I have 2 other boys that my husband raised but they are not his kids. They are 23, and 27 they are very upset. We don't have a surgery date yet, We are meeting with the surgeon this Tuesday.
    Anyway I thank you all for being here for me when I really need you. xoxo Take care sweetheart's
    LLLady~*

    Vitamin C is an anti-oxident....some oncs believe that it interferes with the chemo, some don't. Mine said I shouldn't drink green tea, yet in the treatment center, there was a continuous pot of...yup....green tea for we survivors.
    Cancer is no longer a death sentence. FYI ONLY (sigh, the caregiver gets the WHOLE STORY...) hubby's son should be prepared for his first scope at 31....10 years before his dad's diagnosis...sigh...my grandfather died at 55 from this cancer, had I been scoped at 45, well, maybe I would have only been Stage I or II....
    I am a FIRM believer in the old immune system....and learning as much as you can...

    Hugs, for all your research!

    Kathi
  • This comment has been removed by the Moderator
  • PaulaLozano
    PaulaLozano Member Posts: 4
    Good morning, I'm so sorry to hear about your husband. I will say, people do survive this. My grandmother survived 15 years and the colon cancer was not the reason for her passing (she was 89). My mom had her colon cancer removed in April. She has emphysema and tolerated the surgery very well. I'm sure after the surgery they will be able to tell you much more. They usually biopsy the lymph nodes during surgery and then they can tell if further treatment is needed. I can only imagine how hard this is for you. The best thing you can do is just take things one step at a time. I will pray for you both and please remember people DO survive this, so hang in there. Hugs, Paula
  • lfondots63
    lfondots63 Member Posts: 818 Member
    Hi LLLady,

    I wanted to just say that I'm glad you found us. This site and the people have been a godsend since I found it last december when I had my tumor out. I'm now an official semi-colon. I just also finished chemo and I'm 42. Please print out some success stories and give them to your hubby to read. There will be lots of questions so please come back here to ask them. HUGS to you and hubby because I know that this is a very confusing time. Just know we are all here for you.

    Lisa F.
  • sandyjg
    sandyjg Member Posts: 71
    My husband was dx stage IV (positive lympn nodes and lots of small tumors in the liver) July 05. He was 52 at the time and we were newlyweds of 6 months. What a shock, after crying for 9 days in the hospital, I got it together. He had emergency surgery to remove the blockage. He was told by oncologist at the hospital that the average life expectancy for his condition was 22 months. Well, it has been 13 months and he is doing fabulous. He had to initially have a colostomy bag for 4 months, we did OK with that, I took care of it initially as he was a bit freaked out, and sure enough after a few weeks he took care of it. He started hitting golf balls about 2 days after released from hospital, not very far, and not very hard, but enough to give him hope.
    He has had lots of chemo in every way shape and form. I had prepared myself for the worst. He did fabulous, after round 1 of chemo the tumors in liver shrunk about 20%, but despite almost non-stop chemo, they have not shrunk anymore, on the GOOD side, they have not grown nor has the cancer spread. He had surgery to reverse the colostomy, that was much worse than anticipated, but he made it through it. Our wonderful surgeon gave us a wonderful piece of advise when he gave us the horrible cancer news, he said you can either focus on living, or focus on dying. We chose living and for the most part live in the moment. We travel, spend lots of time with family, have lots and lots of sex (even with the colostomy bag). He is still on chemo, however now just the avastin 1 time every 3 weeks and oral chemo xeloda 2 weeks on, 1 week off. The chemo slows him down maybe 10%, hardly at all, the surgeries took some bouncing back from, but what would you expect. We have such faith that if we can keep in this holding pattern, the new drugs will be approved and we will be ready for them.

    On the subject of supplements. My hubby takes a lot of them, lots for the immune system. If you want info, email me direct sandyjg@comcast.net. We hope these supplements will help shrink the tumors, but at the minimum, my husband has an excellent quality of life. He still works full time, does take lots of days off for trips. He plans to retire early next year. We realize life is too short and we want to enjoy life. God bless you. please write if you need to. I always want to ask people questions, of course sometimes I am afraid of the answers.
  • pink05
    pink05 Member Posts: 550
    LLL Lady,

    I know that what your going through is so difficult. It is probably one of the most difficult things you will have to deal with in your life. Your husband is so lucky to have you by his side. You sound like a very strong person and you will both get through this together. Just to give you a bit of background: This year, for me has been crazy. It started off with my 1st child being born, to finding out my dad had colon cancer, to later finding out that he had liver mets, to my mom having a severe heart attack a couple of months ago (she's fine now). Yeah, life can really throw you some punches, but I have to believe that God will get us through the difficult times. Try to have faith. At this point, try to take a deep breath, talk to the surgeon and take things one day at a time (easier said than done, I know). Maybe your husband will only need surgery. My husband's aunt had a tumor that was completely blocking her colon and no lymph node involvement. Two years later, she is doing great (without any chemo). Try to focus on the positive stories. There are so many of them. Please keep us posted.

    God bless you and your family,

    -Lee-
  • ron50
    ron50 Member Posts: 1,723 Member
    Hi LLLady,
    I was 48 at dx . I had a tumor in the descending colon (left side) that they couldn't get the scope through. They removed the tumor as well as 13 lymph nodes,six of which were cancerous. There were no mets anywhere else so that made me stage 3. I had 48 sessions of chemo over a year. This coming Jan will be the end of my 9th year clear of ca. Best of luck to your husband and you, hope you share the same good fortune,Ron.
  • StacyGleaso
    StacyGleaso Member Posts: 1,233 Member
    ron50 said:

    Hi LLLady,
    I was 48 at dx . I had a tumor in the descending colon (left side) that they couldn't get the scope through. They removed the tumor as well as 13 lymph nodes,six of which were cancerous. There were no mets anywhere else so that made me stage 3. I had 48 sessions of chemo over a year. This coming Jan will be the end of my 9th year clear of ca. Best of luck to your husband and you, hope you share the same good fortune,Ron.

    Ron, you continue to remain one of my personal heroes today! When I grow up, I wanna be just like you!

    Keep up the good work!!!!!!!!!

    Stacy (wimpy stage 4 who is only 5 yrs clear this October)
  • LLLady
    LLLady Member Posts: 67
    ron50 said:

    Hi LLLady,
    I was 48 at dx . I had a tumor in the descending colon (left side) that they couldn't get the scope through. They removed the tumor as well as 13 lymph nodes,six of which were cancerous. There were no mets anywhere else so that made me stage 3. I had 48 sessions of chemo over a year. This coming Jan will be the end of my 9th year clear of ca. Best of luck to your husband and you, hope you share the same good fortune,Ron.

    That's so awesome to hear, I'm so happy for you
    Ron that is the same area as my husband's blockage
    Thank you for sharing that with me. I know he's gonna be fine.
    xoxo
  • nanuk
    nanuk Member Posts: 1,358 Member
    Welcome; you have definitely come to the right place; we have been through it all.there is always somebody who has been down the road. Your surgeon will likely schedule him for surgery immediately. Until then, you won't know what to expect, other than some sort of adjuvent therapy.
    Meanwhile brush up on boosting the immune system,possible diet changes, etc. There is little you can know until after the surgery, so concentrate on that. Your 15 yr old is obviously in denial..the more information he can get the better he will understand. Keep him involved somehow..maybe a support group or let him post questions here, which might be less threatening.

    One day at a time; tomorrow hasn't happened yet, and nothing much to do about yesterday.. Bud
  • nanuk
    nanuk Member Posts: 1,358 Member
    Welcome; you have definitely come to the right place; we have been through it all.there is always somebody who has been down the road. Your surgeon will likely schedule him for surgery immediately. Until then, you won't know what to expect, other than some sort of adjuvent therapy.
    Meanwhile brush up on boosting the immune system,possible diet changes, etc. There is little you can know until after the surgery, so concentrate on that. Your 15 yr old is obviously in denial..the more information he can get the better he will understand. Keep him involved somehow..maybe a support group or let him post questions here, which might be less threatening.

    One day at a time; tomorrow hasn't happened yet, and nothing much to do about yesterday.. Bud
  • nanuk
    nanuk Member Posts: 1,358 Member
    Welcome; you have definitely come to the right place; we have been through it all.there is always somebody who has been down the road. Your surgeon will likely schedule him for surgery immediately. Until then, you won't know what to expect, other than some sort of adjuvent therapy.
    Meanwhile brush up on boosting the immune system,possible diet changes, etc. There is little you can know until after the surgery, so concentrate on that. Your 15 yr old is obviously in denial..the more information he can get the better he will understand. Keep him involved somehow..maybe a support group or let him post questions here, which might be less threatening.

    One day at a time; tomorrow hasn't happened yet, and nothing much to do about yesterday.. Bud
  • lenawade
    lenawade Member Posts: 3
    I am a 46 years old woman with stage III colon cancer. Initially I was going for a gastric bypass surgery (for weight loss) when my pre-op blood tests showed I was iron deficient. I had a colonoscopy on May 2, 2006 and the colectomy on May 22, 2006. I am a colong cancer survivor. I had the right side of my colon removed along with the tumor and my appendix. My surgeon removed 40 lymph nodes and the cancer had only spread to one. I am into my 3rd chemo treatment. I have to do this for 6 months. Good Luck to you and your husband. You have to take one day at a time.