First oxaliplatin treatment

terril
terril Member Posts: 296
edited March 2014 in Colorectal Cancer #1
Hello everybody!!!
My first oxaliplatin treatment went well. I am also on 5-FU and the pump. Very little nausea, but a tad bit of neuropathy. I was an idiot...eating Eddie's ice cream and holding the little cold container...a few minutes later OUCH!!!! THe hospital gave me a care bag of goodies. This included a tote bag of oxali stuff: a blanket, scarf, and gloves. Talk about preparing me for the fur to fly down the road!!!!
I pray that this drug works. If it doesn't, I have got to make some big decisions about my survival. Bless you all!! Terri

Comments

  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #2
    Wishing you the best with this treatment.

    Eleonora
  • vinny3
    vinny3 Member Posts: 928 Member
    #3
    I just finished my 4th cycle of Folfox and find that the cold intolerance improves by about 3 days after finishing the treatment and by the next week I can even have a drink if I want to. My hospital didn't give me anything like gloves but socks and gloves are certainly required the week of treatment.
    Good luck with it.
    ****
  • scouty
    scouty Member Posts: 1,965 Member
    #4
    I wish you the best on Oxal. I read about something today that I ordered for myself. It is PEA, a natural mood elevator that also helps the adrenal system and most importantly the immune systems killer cells. You can goggle it and see what you think. The name of the compound is phenylethylamine (PEA for short) and it is the same compound found in smaller amounts in chocolate (that all us girls and most boys love) and researchers are just starting to think it is what gives the body the feelings of the "runners high", by promoting the release of endorphines. The ingredients should have no impact on your chemo but to be safe, ask you onc if it is okay.

    Lisa P.

    Who will continue to find alternatives so she never has to take the poisons again (I hope and pray!!!!!!).
  • KathiM
    KathiM Member Posts: 8,028 Member
    #5
    scouty said:

    I wish you the best on Oxal. I read about something today that I ordered for myself. It is PEA, a natural mood elevator that also helps the adrenal system and most importantly the immune systems killer cells. You can goggle it and see what you think. The name of the compound is phenylethylamine (PEA for short) and it is the same compound found in smaller amounts in chocolate (that all us girls and most boys love) and researchers are just starting to think it is what gives the body the feelings of the "runners high", by promoting the release of endorphines. The ingredients should have no impact on your chemo but to be safe, ask you onc if it is okay.

    Lisa P.

    Who will continue to find alternatives so she never has to take the poisons again (I hope and pray!!!!!!).

    ANYTHING involving CHOCOLATE sounds good to me!!!!

    You know, MY center didn't give me ANYTHING except a swift KICK after attaching the pump....I went home, almost Christmas, and had to brave the shopping rush to get an electric BLANKET, for heaven's sake...sigh...never told about the cold being a side...sigh again....thought it was just me....

    Hugs, Terri for a smooth ride!!!!

    Kathi
  • Kanort
    Kanort Member Posts: 1,272 Member
    #6
    Hi Terri,

    Best wishes for a great response on oxaliplatin. I can still remember the pain from holding something cold. Try and remember to use those gloves....even in this heat.

    I pray, too, that oxaliplatin is your answer to complete healing.

    Hugs,

    Kay
  • jams67
    jams67 Member Posts: 925 Member
    #7
    I never had to use the gloves, but I did wear socks to bed a few times. I made the mistake of drinking a shake on the way home from treatment once, and it made my mouth totally numb. My tongue was so dead I couldn't even talk. It does wear off enough in a few days so that you can have the milkshake and now after 4 months off everything tastes so good that I'm having to be careful not to eat so much. jams
  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    #8
    Terri -

    Best of luck with the treatment. The cold sensitivity is very strange, but the worst of it does not last that long. You'll probably be able to sip iced drinks by next week.

    Wishing you a good response.
    Betsy
  • JADot
    JADot Member Posts: 709 Member
    #9
    Hi Terri:

    The care pacakge from your onc is so thoughtful! It's good to know that they are really looking after you!

    For nerve protection etc, I took 200mg of B6, which I think really helps. You might want to ask your onc about this!

    Best of luck w/ your treatment regimen!

    Cheers,
    Ying
  • lfondots63
    lfondots63 Member Posts: 818 Member
    #10
    Hi Terri,

    I just want to send hugs to you! I think the Oxi has the most annoying side effects. Like someone said by the time I was going for my next treatment, I could drink or eat stuff that was cool (not cold). I had to let icecream melt some before eating (still tasted good). Just a warning. If you get numb in feet or hands and it doesn't go away, tell your onc. This has happened to me and I had to stop chemo. Here is to hoping you only have mild reactions. HUGS and take care.

    Lisa F

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