sutent

indian
indian Member Posts: 1
edited March 2014 in Kidney Cancer #1
I am in my first round of sutent (22nd day) and have developed a rash on my face, neck, hands, and arms. Has anyone experienced this and have you found a lotion that will help?

Comments

  • LSzabo
    LSzabo Member Posts: 2
    #2
    Dear Indian,
    My name is Liz Szabo, and I cover cancer for USA TODAY. I'd like to write about Sutent and other new therapies for kidney cancer. Would you mind talking to me about how you're doing with this drug? It would be great to hear from some real patients. Please give me a ring or email if you might feel comfortable discussing this in our newspaper. Thanks for your time. I wish you the very best in your cancer fight.
    Liz Szabo
    USA TODAY
    703-854-5455 PHONE
    1-800-872-3410 TOLL FREE
    lszabo@usatoday.com
  • praz2him
    praz2him Member Posts: 12
    #3
    I too am on my first go round with sutent(sunitinib).I am on pill #22 and over the past few days I have noticed my face starting to break out,especially on the sides of my nose.I've got a rash on my butt too (lol).I have been using vaseline intensive care w/aloe. Seems to be helping. I was in the sun alot this week and I think that's what started the rash.I have also lost my taste for food.Everything tastes like plastic.Have you had any other side effects?My 30 pills cost $7000 but luckily my insurance covered all but $15.00.I have renal cell cancer.started with my kidney and spread to my lungs and brain.But I am doing great and enjoying my life.
  • gingee_2
    gingee_2 Member Posts: 2
    #4
    My Father is on his 3'rd month of Sutent & was doing the IL2 treatments before that, both of which are rough on the skin. His Dr.s recommended the medicated Aveeno. It's worked very well for him. The Dr.s also recommended steering clear of any lotions w/ steroids in them.

    Hemp Body butter from The Body shop is good stuff too. Good luck. :)
  • Marla1246
    Marla1246 Member Posts: 2
    #5
    praz2him said:

    I too am on my first go round with sutent(sunitinib).I am on pill #22 and over the past few days I have noticed my face starting to break out,especially on the sides of my nose.I've got a rash on my butt too (lol).I have been using vaseline intensive care w/aloe. Seems to be helping. I was in the sun alot this week and I think that's what started the rash.I have also lost my taste for food.Everything tastes like plastic.Have you had any other side effects?My 30 pills cost $7000 but luckily my insurance covered all but $15.00.I have renal cell cancer.started with my kidney and spread to my lungs and brain.But I am doing great and enjoying my life.

    How are you doing now...in August, 2006. My wife has the same type cancer that you have and is also on Sutent. Can you respond to my email (hra246@aol.com)as well?
  • bushra
    bushra Member Posts: 2
    #6
    praz2him said:

    I too am on my first go round with sutent(sunitinib).I am on pill #22 and over the past few days I have noticed my face starting to break out,especially on the sides of my nose.I've got a rash on my butt too (lol).I have been using vaseline intensive care w/aloe. Seems to be helping. I was in the sun alot this week and I think that's what started the rash.I have also lost my taste for food.Everything tastes like plastic.Have you had any other side effects?My 30 pills cost $7000 but luckily my insurance covered all but $15.00.I have renal cell cancer.started with my kidney and spread to my lungs and brain.But I am doing great and enjoying my life.

    hi. im on my 3rd round of sutent. i had lost my taste but i was told to gargle with (1 tsp baking soda to 1 cup of water 2 times a day and then gargle with half hydrogen peroxide and half water. it has helped me. i know how frustrating it is. also you can try brushing your tongue with a tongue cleaner. i do this twice a day and it had helped.
  • Leonard1905
    Leonard1905 Member Posts: 2
    #7
    praz2him said:

    I too am on my first go round with sutent(sunitinib).I am on pill #22 and over the past few days I have noticed my face starting to break out,especially on the sides of my nose.I've got a rash on my butt too (lol).I have been using vaseline intensive care w/aloe. Seems to be helping. I was in the sun alot this week and I think that's what started the rash.I have also lost my taste for food.Everything tastes like plastic.Have you had any other side effects?My 30 pills cost $7000 but luckily my insurance covered all but $15.00.I have renal cell cancer.started with my kidney and spread to my lungs and brain.But I am doing great and enjoying my life.

    My father is on pill #11 now. Cancer spread to his lungs and lymph nodes. He had rushes too, but it turned out that other medications (strong heart medication - amiodorin in particular) were causing rushes. We observed that Sutent may not be the only cause of side effects. Otherwise he feels little better already. By the way, we were also told not to be out on the sun.
    Could you share if your doctor recommended to remove cancerous kidney? Our concern is that it may take longer to cure the tumor if kidney is not removed. I can be emailed directly at sapadvisor@yahoo.com (I also opened a discussion on this topic). Thanks, and my best wishes!
  • NoSurrender
    NoSurrender Member Posts: 3
    #8
    My husband is on his third cycle of Sutent and has experienced all the possible side effects, most problematic is high blood pressure so they have changed the combination of his bp pills. He is using "bag balm" like the farmers use for their cows! and it is working great - no blister but some redness. He also has red spots that come and go on his face and other body parts but they disappear after two or three days. Are you on the "4 weeks on and 2 weeks off" or "3 weeks on and 1 week off"?
  • mefrog
    mefrog Member Posts: 2
    #9
    NoSurrender said:

    My husband is on his third cycle of Sutent and has experienced all the possible side effects, most problematic is high blood pressure so they have changed the combination of his bp pills. He is using "bag balm" like the farmers use for their cows! and it is working great - no blister but some redness. He also has red spots that come and go on his face and other body parts but they disappear after two or three days. Are you on the "4 weeks on and 2 weeks off" or "3 weeks on and 1 week off"?

    I just finished my 3rd cycle and have some rash, not to bad.I had a kidney removed due to cancer 17 years ago, it laid dormant all that time and then bit me in the but. I am fortunate that I live only two hours away from Duke University and am being treated there. Good news is tumors seem to be shrinking, however I still feel like crap.keep up the fight
  • lucy120
    lucy120 Member Posts: 5
    #10
    mefrog said:

    I just finished my 3rd cycle and have some rash, not to bad.I had a kidney removed due to cancer 17 years ago, it laid dormant all that time and then bit me in the but. I am fortunate that I live only two hours away from Duke University and am being treated there. Good news is tumors seem to be shrinking, however I still feel like crap.keep up the fight

    I had a very similar experience, Kidney removed 3 years ago today. No treatment. Now it has spread to my brain and lungs. I had surgery to remove one ot the tumors in my brain and radiation on the other. I have been taking Nexavar (sorafenib)for just over 3 weeks.
    These two drugs are similar. I have the rash on my face and a very itchy scalp. For the rash I was told to use a lotion with urea - it just keeps the skin soft doesn't do anything for the redness. The itch is very annoying, I am now taking Zyrtec, an antihistimine. The jury is still out on the zyrtec. What do you mean by 'cycle'? Is that after each CT?
  • dwilcox56
    dwilcox56 Member Posts: 1
    #11
    Dear Indian
    My wife just fineshed her second round with sutent.She will not eat ,she only drinks instent
    breakfast. Can you suggest any thing that might
    tast good to her?
    Dave Wilcox
    dwilcox355@stny.rr.com
  • Unknown
    Unknown
    #12
    This comment has been removed by the Moderator

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