suggestion

kangatoo
kangatoo Member Posts: 2,105 Member
edited March 2014 in Colorectal Cancer #1
Hiya all....I hate to take up line room here but I think most would agree that it is extremely valuable to us all for members here to make use of the "personal web pages". Many of us who have been coming to CSN for quite some time have seen a large influx of newly diagnosed people(actually less people here would be nice....no cancer at all would be great!)Sorry,Jose,Dana, Greta and Carherine...you would be out of a job!Nonetheless, however much we hate to see others being beset by cancer we are fortunate to be able to support each other in this way. There is a valuable resource to all of us by way of the personal pages. By each person, be it cancer patient or carer, taking a lttle time to register their own web page for others to read, we all will benefit a great deal more. Over time it is much easier to be able to form a closer bond with each other with help from the info supplied on those pages. We get to know in a little more detail each persons original dx and their history. This helps with answering questions and giving advice. We have a lot more people coming here for help and trying to keep an "honest outlook" on each individual can be difficult. Help us to tender better advice and support by building a website guys n gals....it is very simple to do.
Oh.....and it helps those of us with chemo brain that have 100+ notes taped all over our puta screens(I lost my screen months ago.....lol!)
nuph from me n my big mouth...
Ross n Jen

Comments

  • kangatoo
    kangatoo Member Posts: 2,105 Member
    #2
    Oh...I should clarify myself here. I don't HATE new people coming here. I love that you have found us....I just hate that cancer has made that necessary....grrrrrrrrrrr!
  • KathiM
    KathiM Member Posts: 8,028 Member
    #3
    Awwww, kangathong, what would we do without you?
    But, I must admit, if I chat with someone for the first time, I check out the page, too. It's so frustration to keep everyone straight. I get a little frustrated when there isn't one.
    I, too, HATE the fact that the beast still claims people....
    Hugs,
    Kathi
  • nanuk
    nanuk Member Posts: 1,358 Member
    #4
    following Kangathong's "coat tails", I would like to see expansion of the hot links on the home page to take a person to specific topics-eg; "Alternative Treatment", Chemotherapy, juicing, etc. with associated links. Bud
  • JADot
    JADot Member Posts: 709 Member
    #5
    Hi Kanga:

    Definitely agree w/ you. A while back I suggested that we are allowed a group-wide info page with a care package for newbies, so that we don't have to re-write the tomes that we do each time when a newbie comes along. I contact the the ASN admin but they were hesitant to have anything that looks like advice, outside of a strictly personal chat. Spongebob recommended another web site we can do but alas I've just not had the time jogging working, chemo and tapeworm anecdotes. So I've been thinging the same exact thing, which is using our personal pages.

    So I am off constructing my page now :)

    Cheers,
    JADot
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    #6
    JADot said:

    Hi Kanga:

    Definitely agree w/ you. A while back I suggested that we are allowed a group-wide info page with a care package for newbies, so that we don't have to re-write the tomes that we do each time when a newbie comes along. I contact the the ASN admin but they were hesitant to have anything that looks like advice, outside of a strictly personal chat. Spongebob recommended another web site we can do but alas I've just not had the time jogging working, chemo and tapeworm anecdotes. So I've been thinging the same exact thing, which is using our personal pages.

    So I am off constructing my page now :)

    Cheers,
    JADot

    I can understand your suggestion Ying but also understand the admins. position re; giving advice outside of chat or discussion rooms. In this day of libel problems their stance is understandable. The influx of new people here on CSN is welcome...it is just very hard to remember or note down relevant cancer info that allows us all to help as many as we can. The creation of personal webpages I personaly would encourage and I would find it beneficial and quick reference to help others.Sometimes I feel I cannot reply to someones post simply because I am unable to find their original dx and the treatment they have/had recvd.
    So come on those who have not created a "personal page"......help us please to help you.
    cheers, Ross n Jen
  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    #7
    kangatoo said:

    I can understand your suggestion Ying but also understand the admins. position re; giving advice outside of chat or discussion rooms. In this day of libel problems their stance is understandable. The influx of new people here on CSN is welcome...it is just very hard to remember or note down relevant cancer info that allows us all to help as many as we can. The creation of personal webpages I personaly would encourage and I would find it beneficial and quick reference to help others.Sometimes I feel I cannot reply to someones post simply because I am unable to find their original dx and the treatment they have/had recvd.
    So come on those who have not created a "personal page"......help us please to help you.
    cheers, Ross n Jen

    Ross -

    I am missing something. I have created a web page (no pics yet - sorry). But yesterday I went looking for a particular individual's web page and didn't see how to do that. I put the name in a search box and got nothing, forget all else I tried, but nothing worked. I am supposed to be computer saavy since software is my business, but I have missed something. Chemo brain? Maybe. Let me know how you would locate the web page for "kangatoo" for example. Then if it it doesn't work for me I'll contact Jose.

    Thanks and sorry for sounding dumb - usually not a word that is applied to me, but I am stumped at the moment here.

    Betsy
  • debralla
    debralla Member Posts: 203 Member
    #8
    Betsydoglover said:

    Ross -

    I am missing something. I have created a web page (no pics yet - sorry). But yesterday I went looking for a particular individual's web page and didn't see how to do that. I put the name in a search box and got nothing, forget all else I tried, but nothing worked. I am supposed to be computer saavy since software is my business, but I have missed something. Chemo brain? Maybe. Let me know how you would locate the web page for "kangatoo" for example. Then if it it doesn't work for me I'll contact Jose.

    Thanks and sorry for sounding dumb - usually not a word that is applied to me, but I am stumped at the moment here.

    Betsy

    Kanga
    You mentioned that you read my web page the other day . Well I didn't have one yet . You must of read Jerseysue web page . So today I created my own personal web page . You are right it is nice to go and read the personal web pages . Although I have the same problem as Besty .How do you go about finding someone's page . It took me all day of clicking on different peoples pages I just kept clicking on there friends list which finally took me to yours .Anyways I now have a web page (And my girlie parts). Athough my husband might say other wise as they just don't feel like coming out to play .
    TAKE CARE AND GOD BLESS
    DEBRA
  • KathiM
    KathiM Member Posts: 8,028 Member
    #9
    Betsydoglover said:

    Ross -

    I am missing something. I have created a web page (no pics yet - sorry). But yesterday I went looking for a particular individual's web page and didn't see how to do that. I put the name in a search box and got nothing, forget all else I tried, but nothing worked. I am supposed to be computer saavy since software is my business, but I have missed something. Chemo brain? Maybe. Let me know how you would locate the web page for "kangatoo" for example. Then if it it doesn't work for me I'll contact Jose.

    Thanks and sorry for sounding dumb - usually not a word that is applied to me, but I am stumped at the moment here.

    Betsy

    Betsy,
    I use the User Directory link.
    Although, it is CASE sensitive.
    Once I got this down, it leads directly to a user page.
    Kathi
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    #10
    KathiM said:

    Betsy,
    I use the User Directory link.
    Although, it is CASE sensitive.
    Once I got this down, it leads directly to a user page.
    Kathi

    personal pages
    Betsy...here's the link for my page;
    http://www.acscsn.org/webpages/view?object_id=csn:rel:wallace435266688011077107602

    As for others...click on "personal web pages" located to the left here in the menu. This will bring you onto a search page, then enter the members "pen name", ie for me "kangatoo", then hit search.
    The only problem I encounter here is that sometimes the search will not work if the pen name is not typed correctly or capitals are used/not used....at least that is the problem I have.
    Debralla,Betsydoglover,I tried both your pen names and get no response for a personal page. Have you used any other alternative spelling at all? Anyway for some reason typing a user name does not always get a person's page up, even if they do have one. For example, I am VERY sure "musiclover" has a page but I am unable to find it again? I just tried mine by typing in "kangatoo" and it works ok. Mmmmmm, maybe Jose has an answer to why some do and some don't come up.
    Oh Jose.........."Houston, we have a problem!"
  • well
    well Member Posts: 26
    #11
    Betsydoglover said:

    Ross -

    I am missing something. I have created a web page (no pics yet - sorry). But yesterday I went looking for a particular individual's web page and didn't see how to do that. I put the name in a search box and got nothing, forget all else I tried, but nothing worked. I am supposed to be computer saavy since software is my business, but I have missed something. Chemo brain? Maybe. Let me know how you would locate the web page for "kangatoo" for example. Then if it it doesn't work for me I'll contact Jose.

    Thanks and sorry for sounding dumb - usually not a word that is applied to me, but I am stumped at the moment here.

    Betsy

    Alternate technique:

    See Personal Web Pages over on the top left, under Expressions Gallery? I go there, then enter kangatoo in the "Word or Phrase" box at the bottom, next to the Search button. Press the search button and voila.

    Again, it is a CaSe-SeNsItIvE search though, but maybe that can be changed some day. This will sometimes fail for reasons I have yet to determine, but usually works.

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