Need help with Anal Cancer.

luisc6672
luisc6672 Member Posts: 1
edited March 2014 in Colorectal Cancer #1
Hello. I am a 51 years old hiv+ male that has been diagnoised with anal cancer. I had chemo/radiation treatment but another tumor was discovered. My doctors want to remove my anal section completely so that it doesn't come back but I am trying to find out if this is my only option. Please send me any info if you can. Thank you so very much for your help & time.

Comments

  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • Andy5
    Andy5 Member Posts: 18
    #3
    There is a great Yahoo site with people just like you surviving anal cancer who also have hpv or hiv look into yahoo.com under the section GROUPS then type in anal_cancer (that's anal with an underline then cancer). 300 members for this 6 year old list serve and about 500 postings on the average month. I'm almost a 4 year survivor of anal cancer as of 2006
  • foto
    foto Member Posts: 1
    #4
    Luis,
    I am a 35yr old woman with anal carcinoma in situ vin III. I have a wonderful doctor by the name of Dr. Wu that is with the Cleveland Clinic. He has a new procedure that does not involve resecting or colostomy. It is a series of surgeries every two months and then chemo/radiation combo. I start this friday. He is well versed in HIV patients and actually trained in California and New York in the gay society. I am not a male or gay, but he is the only one that would take on my case do to his training. Please give him a call.
  • helpmeob1
    helpmeob1 Member Posts: 6
    #5
    Here is the first thing you need to understand about a cancer cell. It is a cell with amnesia. It's a cell that is cut of from the brain and no longer in communication with the rest of the body. Get a cluster of these together and you have Lord of the Flies at the cellular level.

    There is a compound out there that brings order back to these cells and essentially makes the cell remember or even realize what is was designed to do immediately upon contact. The cell that once lacked purpose and was destructive begins to act and behave with order submitting to the body's authority.

    This is wild stuff I realize. As out there as it sounds if a cancer cell does an about face and aligns itself with the same purpose of the body it lives in it immediately stops being destructive.

    Cheers!

    James

    ireallywishihadthat (at) yahoo.com
  • evrlstnglife
    evrlstnglife Member Posts: 2
    #6
    hello. i just finished recovering from anal cancer and treatments and pain. although i am not an expert i would certainly get a second professional opinion. the agony of this condition i know is discouraging, but always think positively and hold tight to your faith, and literally give it to him as u shall come through unscathed. Be confident when u decide. Check out all options.
  • bobjones
    bobjones Member Posts: 3
    #7
    I also am hiv with anal cancer spread into left groin lymph node, right now I am using aldara cream many other are using it with success here are some links, the pharmacies in San Fran and Europe are now making aldara suppositories, no one yet makes them here in Van. Canada so I would like to make my own, any one know how to do that?

    http://www.aegis.com/news/catie/2006/CATE-N20060206.html

    http://content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowFulltext&ProduktNr=224164&Ausgabe=228425&ArtikelNr=63140

    http://www.ufscc.ufl.edu/Patient/cancernews.aspx?section=cancernews&id=36425
  • youwannaname
    youwannaname Member Posts: 1
    #8
    unknown said:

    This comment has been removed by the Moderator

    hi- am a 51 yr old woman who has had breast cancer with mastectomy(DCIS) and anal cancer. Have recently been told I have a problem and getting yet another lovely colonoscopy- is there anyone in your universe that you know that have had both of these kinds of cancer????also- will probably know that i will need the bag thing- any info on this in terms of having it on a "getup and go girl"???
  • walksinlight
    walksinlight Member Posts: 1
    #9
    I had anal/sphincter cancer which I am happy to say I am free and clear
    However, I had side effects of blowing a fistula and would like to know if someone else has this condition and what they are doing about it?
  • NeverLoseHope2
    NeverLoseHope2 Member Posts: 8
    #10
    youwannaname said:

    hi- am a 51 yr old woman who has had breast cancer with mastectomy(DCIS) and anal cancer. Have recently been told I have a problem and getting yet another lovely colonoscopy- is there anyone in your universe that you know that have had both of these kinds of cancer????also- will probably know that i will need the bag thing- any info on this in terms of having it on a "getup and go girl"???

    Hi, I have had breast cancer, but didnt have a mastectomy, i understood that survival is the same either way, or depending on individual cases some need a mastectomy some women dont, i also had anal cancer 2 yrs ago, and doing well, i go each year for my colonoscopy. So far so good, i also would like to ask you, after they radiated your anal cancer, did they radiate your pelvic organs also? Thats what they did to me, and said i would go into menopause, for 1 yr and 8 mths i had no bleeding, but this passed Nov, i noticed i had spotting, to this day, i have it, on and off, and they gynos, are trying to get a biopsy of my uterus and cant, because of the radiation i had to the outside of the pelvic, are you having this problem? i havent been diagnosed since Nov, because they cant get to this uterus, i would appreciate your response, or any questions you may have for me...thanks!
  • NeverLoseHope2
    NeverLoseHope2 Member Posts: 8
    #11
    Andy5 said:

    There is a great Yahoo site with people just like you surviving anal cancer who also have hpv or hiv look into yahoo.com under the section GROUPS then type in anal_cancer (that's anal with an underline then cancer). 300 members for this 6 year old list serve and about 500 postings on the average month. I'm almost a 4 year survivor of anal cancer as of 2006

    Andy, God Bless You and thanks for that Yahoo site. Im a 2yr anal cancer survivor and 5yr breast cancer survivor. im a female 46 frm ny suburbs! Thanks again!
  • NeverLoseHope2
    NeverLoseHope2 Member Posts: 8
    #12
    Andy5 said:

    There is a great Yahoo site with people just like you surviving anal cancer who also have hpv or hiv look into yahoo.com under the section GROUPS then type in anal_cancer (that's anal with an underline then cancer). 300 members for this 6 year old list serve and about 500 postings on the average month. I'm almost a 4 year survivor of anal cancer as of 2006

    Andy, God Bless You and thanks for that Yahoo site. Im a 2yr anal cancer survivor and 5yr breast cancer survivor. im a female 46 frm ny suburbs! Thanks again!
  • Todd2002
    Todd2002 Member Posts: 1
    #13
    NeverLoseHope2 said:

    Andy, God Bless You and thanks for that Yahoo site. Im a 2yr anal cancer survivor and 5yr breast cancer survivor. im a female 46 frm ny suburbs! Thanks again!

    5 year survivor from anal cancer - found it on my 40th Birthday. So far so good!!!!!
  • MarilynToo
    MarilynToo Member Posts: 1
    #14
    helpmeob1 said:

    Here is the first thing you need to understand about a cancer cell. It is a cell with amnesia. It's a cell that is cut of from the brain and no longer in communication with the rest of the body. Get a cluster of these together and you have Lord of the Flies at the cellular level.

    There is a compound out there that brings order back to these cells and essentially makes the cell remember or even realize what is was designed to do immediately upon contact. The cell that once lacked purpose and was destructive begins to act and behave with order submitting to the body's authority.

    This is wild stuff I realize. As out there as it sounds if a cancer cell does an about face and aligns itself with the same purpose of the body it lives in it immediately stops being destructive.

    Cheers!

    James

    ireallywishihadthat (at) yahoo.com

    What is this called. I'm recovered from anal cancer. I'm curious as to what this is.

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