bad taste after pump removal

liverpoolgirl
liverpoolgirl Member Posts: 44 Member
edited March 2014 in Colorectal Cancer #1
Hello all
Its been a while since i posted, but i do check in daily and read up on all the post, get my positive vibes from you all. I have a question, my husband (Hayes) gets a pretty bad taste after his pump removal, he is on the folfri (sp) regime right now, could only tolerate oxipl for 5 session, they replaced oxipl. with camptosar. Any suggestion would be a great help, he has the sour hard candies but thats stopped working. On another note he has his CT Scan today (scary time as you all know). He had mets to his lungs (inoperable) but he is doing pretty good, been on chemo since June 05, his mets were diagnosed May 05 2-years after his surgery (perm.colostomy and tumor removal). Just wanted to get your imput on the bad taste thing and see if any one else has any suggestions. Keep up the good fight
Debbie
aka "The English Chick"

Comments

  • taraHK
    taraHK Member Posts: 1,952 Member
    #2
    Hi Julie,
    I think I know what he is talking about. I had a very bad taste in my mouth after each FOLFOX treatment -- a metallic taste. I'm not sure I have any great suggestions for getting rid of it. Mine usually faded after a few days. I ate candied ginger for nausea and that helped a bit with the bad taste, too. Also, I drank a lot of peppermint tea (also for nausea, but might help). Can he eat raw veg? Some people say chewing on parsley helps bad breath (not that your husband has that!) -- I wonder if that might help???? Just thoughts.....Best of luck to him and to you.
    Tara
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #3
    Hi Debbie,
    I still have my pump in so I can't help on that, and I had FOLFOX at one point. That didn't leave so much a bad taste as it made food taste very bland. It got better the further I was away from each treatment. I too have lung mets that are responding very well to Eribtux. Is you husband on that?
    Sending prayers and love
    Phil
  • oneagleswings
    oneagleswings Member Posts: 425 Member
    #4
    Hi- My husband is on Folfiri with a pump as well and has found what helps is a combination of mints and most important- rinsing his mouth 5 times a day with club soda...hope it helps and hope his CT scan comes back with good results.
    BEv
  • liverpoolgirl
    liverpoolgirl Member Posts: 44 Member
    #5
    PhillieG said:

    Hi Debbie,
    I still have my pump in so I can't help on that, and I had FOLFOX at one point. That didn't leave so much a bad taste as it made food taste very bland. It got better the further I was away from each treatment. I too have lung mets that are responding very well to Eribtux. Is you husband on that?
    Sending prayers and love
    Phil

    Hi Phil
    My husband Hayes is on Folfori w/Avistan, still waiting for the CT results, he had that scan done yesterday and we all know what the waiting game is like, he goes inbetween his chemo to get shots to keep his wbc up, so i wouldnt be surprised if they let him know the results on one of those occasions, which makes me kinda mad as i want to be with him when he gets the results. My husband is so hard headed when it comes to his chemo infusion and shots, he wants to do it alone and does not think i should be there when he has that done, go figure.... but i have to abide by what he wants, i know when he wants me with him he will let me know, but i think i will be calling the clinic to follow up,
    keep up the good fight and glad that your doing good on your cocktail :-)
    Debbie
    aka "The English Chick"

Discussion Boards