other shoe fell

lindatn
lindatn Member Posts: 229
edited March 2014 in Breast Cancer #1
Yes I have two or three liver mets, maybe one in lymph node. Have a port on Monday, Muga scan, and liver biopsy. We have hopes that the tumors will respond to some of the many chemos she will try and they won't kill me. Rememeber I am the gal who went no sugar, no meat no dairy I told you I would let you know if it worked, well it didn't. Three years to the day after I finished radiation I got to start over. If there is anyone out there who had liver mets and are still alive four years down the road please write. If you don't I will assume four years isn't going to happen. She tells me there are many new drugs to keep us alive but what quality of life will I have. I feel good tonight almost feel like just running away and see how long the body can stay alive without being killed off with drugs. Yes I am down as we had just started to relax that maybe they had got it all the first time. Prayers to everyone. Linda

Comments

  • Susan956
    Susan956 Member Posts: 510
    #2
    Hope things go better than you expect. I know it must be devastating to have the cancer come back. I will add you to my prayer list. Take Care..
  • livin
    livin Member Posts: 318 Member
    #3
    Oh Linda I am sorry to hear your results. Hopefully they are small and chemo can take care of them. If not the fight goes on never ever give up you have came to far. My Prayers are with you. I understand how you feel at this point as to restarting again. Livin
  • BBK
    BBK Member Posts: 53
    #4
    I'm so sorry to hear your news. I'm about 3 years out of my bc dx, and my doctors have been watching something with my liver, too. How did you know? Were there symptoms? With me, my liver panel is elevated. We haven't moved toward biopsy. But, I have had a CT scan and ultrasound...both of which have so far come back negative. found out I have a cyst on a kidney, though. And, I'm concerned about bone mets. If you had some sort of symptoms, though, I'd like to know. I'll be praying for you as you start the next round of treatments. Keep your head up, and make the most of each day. Take care.
  • lindatn
    lindatn Member Posts: 229
    #5
    BBK said:

    I'm so sorry to hear your news. I'm about 3 years out of my bc dx, and my doctors have been watching something with my liver, too. How did you know? Were there symptoms? With me, my liver panel is elevated. We haven't moved toward biopsy. But, I have had a CT scan and ultrasound...both of which have so far come back negative. found out I have a cyst on a kidney, though. And, I'm concerned about bone mets. If you had some sort of symptoms, though, I'd like to know. I'll be praying for you as you start the next round of treatments. Keep your head up, and make the most of each day. Take care.

    With the ct and ultrasound showing nothing we can pray you are fine. I was three years to the date of having finished radiation when I had the ultrasound. I thought it was pain from a gall bladder attack. Should of known better as it didn't stop hurting in my upper right back and right below my breast bones. My tumor markers were all fine in early Oct so that tells you how worthless they are. I also have night sweats terrible. Not sure how much chemo they plan to give me but a lot from the sounds of it. I am very depressed as everything had gone so well, we were back to doing everything we had done before a little traveling, showing our dogs who probably will have to find new homes. I try to find out from the Dr how long I might have and she says wait until we see how the chemo will work, also there is something new everyday coming down the road, clinical trials etc. Well best of luck to you. Linda
  • kathya
    kathya Member Posts: 5
    #6
    Linda, I just joined in order to reply to your posting. I have not survived liver mets for 4 years but ... ... ... I have had good results so far with liver,lung and bone mets dx on May 1st. I have been taking Taxotere, Herceptin and Carboplatium for the past 7 months. (Stopped Carbo after 13 weeks because of advers reaction.) If your not Her2Nu the Herceptin is of no use but everything I've read about Taxotere is very positive. On Dec 1 I had a CT that showed NO O O O Liver Mets, reduced if not gone Lung Mets and stable Bone Mets. This is very encouraging. The side effects for me have been diarrhea and nail discoloration along with toe nail loss and some numbness in toes and fingers and some blockage of tear ducts NONE of which have slowed me down much. Don't get me wrong I have my bad days but generally speaking the treatment isn't that bad. My first round two years ago with CEF followed by Taxol was much worse. You can check out taxotere on the web just Google it. There is tons of info and postitve patient responses. The 7 months were worth it and however many months it now gives me will certainly be worth it. In May the time line was maybe 6 months I got that beat already. I hope this helps and thanks for getting me involved.
  • lindatn
    lindatn Member Posts: 229
    #7
    Thank you all for writing, Kathya you are doing wonderful! How often do you have chemo? She memtioned if I responded well about immune therpy also. What age are you? I am 61 but sure have a lot more living to do. Also sure hope I can continue to take care of my dogs with husband help. He has prostate cancer but is in remission hopefully for a long time. God Bless you all. Linda
  • kathya
    kathya Member Posts: 5
    #8
    lindatn said:

    Thank you all for writing, Kathya you are doing wonderful! How often do you have chemo? She memtioned if I responded well about immune therpy also. What age are you? I am 61 but sure have a lot more living to do. Also sure hope I can continue to take care of my dogs with husband help. He has prostate cancer but is in remission hopefully for a long time. God Bless you all. Linda

    Linda, I'm 60 and I was having chemo every week. The first three months were very difficult because of the Carbo. I also got an infection in my port which had to be removed and another one was put in on the other side of my chest. This along with the dx was very frustrating. I demanded a break from the Chemo in August. (10 days) Well, I cried and the tears made my oncologist give in and let me have some time off. After I stopped the Carbo (13 weeks) things became much easier. The taxotere with herceptin was not bad for me and the herceptin is nothing at all. Keep on fighting.

    Merry Christmas and Happy Holydays to everyone.
  • lindatn
    lindatn Member Posts: 229
    #9
    Hi kathya, I would love to email you. I know they tell us not to send our email address but since mine is all over the computer with ads for puppies I am not worried. Please write me at: elton@twlakes.net. Linda
  • vanvis
    vanvis Member Posts: 2
    #10
    My mother has liver mets. She went through 12 weeks of Taxotere (which was so tough on her) and now she is on Xeloda (oral chemo) and she is responding to this drug and handling it very well. Good quality of life. After 2 cycles of it, her tumors are shrinking and we pray this continues. Her oncologist says there are many more drugs that are close to being approved that could also work for her as well - so we are all praying that this one continues to work at least until the others are approved.

    I've very close with my mother - EXTREMELY CLOSE to her. My sisters and I all love her so much so we feel that we are going through this with her as well. She's not in it alone. 5 years ago she had breast cancer (pre stage I). She had a lumpectomy and then radiation and then given Tamoxifin. 3 years after that she was diagnosed with endometrial cancer which they say may have been caused from the Tamoxifin. She had a full histerectomy and more radiation - external and internal. Now, only a few months later - they found some tumors in her liver. Even after doing the biopsy on the tumors, they are not positive if it's breast cancer - could be colon cancer? They aren't sure. The cancer cells from her lumpectomy don't exactly match the ones in her liver. It's possible that they morphed but after going to NYU medical center, Sloan Kettering and now we're at North Shore Hospital - we are following what our new oncologist is saying and taking it one day at a time. We would love to know where the cancer is definitely coming from - but we've done just about every test there is to do. We are just happy now that she is responding to this treatment.
    Sorry for rambling on - you'll get through this.

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