surgery cancelled
My surgery was cancelled. The PET scan, finally got the results today (delayed results because of hurricane Rita evacuation). The PET scan shows positive lymph nodes up the entire hilar region on the right side, meaning the only effective surgery would be an entire right pneumonectomy (remove the entire right lung). We were rushing to try to prevent this, but it is already advanced to involve the right upper lobe.
The thoracic surgeon feels the surgery is too risky. It has a 5% mortality when you remove a side of lung (1 in 20 people) and the cancer may blossom further. If I do chemo first, hopefully the tumor can be stabilized or even shrink and then I can get resection later, anywhere from 6 months to 3 years later, depending on what the chemo does.
My husband is freaking a little. I feel OK. The rushed surgery was hard to deal with. I am scared to have my entire right lung removed. The doc said I would be able to do about 90% function without my right lung, but not working out as much, and I could get short of breath at times.
HOLY COW. So, no surgery tomorrow, but I am meeting with my oncologist first thing in the am and then going to work to try to get my mind off all this cancer stuff.
Thanks to everyone for all your kindness. It has been quite a stressful 2 wks. But I am feeling stronger and ready to fight!!!!
j
Comments
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Hey honey!!!!!
First thank you for your very sweet email. I am thrilled that you have more time to fathom and process your options. Hurricane Rita really threw a curve ball in there. I am so glad your house was fine when you got back home. That is God watching out for you honey. Please let me know if I can help you in any way. Have you ever thought about doing the PH testing with your body, or juicing, or other supplements to help your body out. I would love to talk to you about if you like. Just send me your phone number and a good time to call on my email and I will be there. Hell, none of us know how to beat the **** cells but learning from each other is a good thing I think. I also think "our current" approach to health is changing and the "answers" may very well be with a more integrative approach of healing for the individual using a variety of licensed professionals.
Again, Scout and I send out sloppy wet puppy dog kisses and I think you know I will do my damnest to be there for you my friend!!!!!
Hugs, Lisa P.0 -
Jana,
I hope that you were able to relax on your w/e. I don't know what to say, but I am sending hugs and positive thoughts your way. I will pray that the chemo stops that cancer in its tracks and that you will be able to have a successful surgery later on. I know what you mean about working, it kept my mind off of the whole cancer thing.
I will be rooting for you.
Maureen0 -
Jana,
I know you'll get through this "bump" in the road, and of course, you know we'll all be here for you.
I'll be back to Houston Oct. 29 - Nov. 3, so we'll have to get together once again. You have my number, call if you need to talk.....I'm a little shaky about my next scan since my last one came back with some activity in my pelvic area, so we'll commiserate together.
Jana, you are in my thoughts and prayers.
Fondly,
Kerry0 -
I had you listed for surgery on the 28th Jana and was going to post wishing you the best from us. Then I saw your post!Jen and I hope and pray sweetie that chemo can be effective for you. If you and Kerry get together we want a pic. Oh...and Kerry!! Give Jana a cyber hugg for us please!Moesimo said:Jana,
I hope that you were able to relax on your w/e. I don't know what to say, but I am sending hugs and positive thoughts your way. I will pray that the chemo stops that cancer in its tracks and that you will be able to have a successful surgery later on. I know what you mean about working, it kept my mind off of the whole cancer thing.
I will be rooting for you.
Maureen
(I'll repay you with phone hugg later Kerry)
From us in oz Jana,
Ross(((((((((((((((Jana))))))))))))))))Jen0 -
Jana,kangatoo said:I had you listed for surgery on the 28th Jana and was going to post wishing you the best from us. Then I saw your post!Jen and I hope and pray sweetie that chemo can be effective for you. If you and Kerry get together we want a pic. Oh...and Kerry!! Give Jana a cyber hugg for us please!
(I'll repay you with phone hugg later Kerry)
From us in oz Jana,
Ross(((((((((((((((Jana))))))))))))))))Jen
You sound so calm and put together. I'm sure I'd be there right along with your husband and freaking out. I'm glad that you are able to face this with a fighting attitude. That will make all of the difference.
I'm so sorry that you have to go through this in the first place. Just know that we're all cheering for NED to be in your future soon.
Take care,
Patricia0 -
Hi Jana:
Hoping and praying that the chemo will do the trick and allow for a safer surgery down the road- what chemo will you be on?
Keep strong- it sounds like you have an amazing attitude with all this-
Bev0 -
Dear Jana,
I think there have been only a few times in my life where I remember really hoping for a rewind button to push; I truly wish that I could push one right now -- that you would never have experienced the spread of this disease, the frustration and the worry. The only consolation I feel, and I do mean this very sincerely, is that you strike me as an incredibly strong-willed person; you are certainly ready to fight like hell and I wish to applaud your strength and fortitude.
I am not qualified to give you any words of wisdom as I truly do not know you at all; but I hope you do not mind hearing my rampant thoughts. These are a few things which I have learned somewhat slowly through the process of having cancer.
First, pull out all of the stops. Enlist all of the help and expertise that is around you. Sometimes, a callaborative effort is the best approach and this may just be one of those times; maybe a very good pulmonologist to consult with about how the lung functions? Maybe your gastroenterologist or surgeon as well? Secondly, I might really push yourself to think outside the treatment-box. I do not know if a nutritional approach -- with or after chemo -- is something you might consider, but I would not discount any route which produces a systemic environment where cancer has a hard time flourishing. Third -- and I think you are probably doing this already -- allow yourself to be human and to lean on those around you for support while you periodically rest; it really will allow you to regroup -- boosting your strength and clarity.
Please know that these are merely suggestions and I see you as such a bright person that you have probably covered these and other bases.
My thoughts and prayers are with you for the immediate as well as the future. Right now, I wish you many walks with your husband and dogs. All the best to you and thank you for sharing your personal struggle. You may not know it, but you are inspirational and motivating to the rest of us. Take good care and know that every day, maybe in the smallest of ways, you are receiving a little blessing. Maura0 -
What a rollercoaster!! You must be reeling. The delay sounds like a good decision. I had heard that removal of an entire lung results in relatively minor reduction in function (90%), but I wasn't so aware of the mortality rates. Let us hope that a good blast of chemo will radically improve the situation. Please keep us posted. THINKING OF YOU!!
Love, Tara0 -
insert - a collaborative effort. Oh, and I forgot to mention enjoying a glass of wine with your husband -- and maybe some really good chocolate.CAMaura said:Dear Jana,
I think there have been only a few times in my life where I remember really hoping for a rewind button to push; I truly wish that I could push one right now -- that you would never have experienced the spread of this disease, the frustration and the worry. The only consolation I feel, and I do mean this very sincerely, is that you strike me as an incredibly strong-willed person; you are certainly ready to fight like hell and I wish to applaud your strength and fortitude.
I am not qualified to give you any words of wisdom as I truly do not know you at all; but I hope you do not mind hearing my rampant thoughts. These are a few things which I have learned somewhat slowly through the process of having cancer.
First, pull out all of the stops. Enlist all of the help and expertise that is around you. Sometimes, a callaborative effort is the best approach and this may just be one of those times; maybe a very good pulmonologist to consult with about how the lung functions? Maybe your gastroenterologist or surgeon as well? Secondly, I might really push yourself to think outside the treatment-box. I do not know if a nutritional approach -- with or after chemo -- is something you might consider, but I would not discount any route which produces a systemic environment where cancer has a hard time flourishing. Third -- and I think you are probably doing this already -- allow yourself to be human and to lean on those around you for support while you periodically rest; it really will allow you to regroup -- boosting your strength and clarity.
Please know that these are merely suggestions and I see you as such a bright person that you have probably covered these and other bases.
My thoughts and prayers are with you for the immediate as well as the future. Right now, I wish you many walks with your husband and dogs. All the best to you and thank you for sharing your personal struggle. You may not know it, but you are inspirational and motivating to the rest of us. Take good care and know that every day, maybe in the smallest of ways, you are receiving a little blessing. Maura0 -
Jana,
Thinking of you and waiting to hear about the oncologist appt. A friend had a similar experience with a primary lung "poorly differentiated" tumor. He is now 6 months post surgery after chemo, lost part of a lobe but all clear. Your spirit is amazing; sending many positive thoughts your way. Judy0 -
Hi,
I was dianosed with lung cancer at 36 and i had to have my whole right lung out. It has been a year and a half, the breathing is hard at times,,i can't do alot of heavy lifting, or bringing laudry upstairs but for the most part,,i feel good. More days then not, i feel normal(i think, its been so long since i have felt that way,,haha) But if you need someone to talk to that has been through what you going to do, i'm here for you. It very scary and i had no family around me, i think they think its a disease they don't want to catch. So for the most part,you need to be strong, and keep fighting. Tc and God Bless,, thoughts and prayers are with you:)0
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