any support groups out there?

char1970 said:

hi there... i'm sorry to hear you're having a hard time dealing with things. i've been in your shoes and can say it wasn't until i connected with fellow bone cancer survivors that i felt understood and truly cared about. it took me 9 yrs to find this but now that i have, my life is so much more fullfilling.

there are a couple online support groups that I know of the first is www.abcsurvivors.net, for adult bone cancer survivors. and the other id www.acor.org, online cancer resources which has various groups, ex. otsteo gr and depression. also, depending on where you live there are programs like Gilda's Club and the Wellness Center which are for anyone whose life has been touched by cancer.

keep on keeping on... char

Don't know about support groups, but I am searching for another person who had a sacral chordoma. You did, right? Please e-mail me at rzoesch@aol.com. I would love to hear from you. I received all my cancer treatments at Massachusetts General Hospital. Surgery 12/14/04, with 2 rounds of radiation, one before and one after surgery, both proton and photon beam radiation. I live in Akron, Ohio, but since Mass. General had a protocol treatment plan for chordoma patients, I went there. Luckily, I had friends who retired from Akron, Ohio to Watertown, Mass., just across the Charles River from Mass. General, so it was financially possible. I stayed with them for up to 2 months at one point. I call them my "Earth Angels"! I am 61 years old, female, 60 at time of diagnosis. How are you doing now, Char? I have urinary incontinence as a result of my cancer treatments and have to catheterize myself daily. I have had 7 UTIs (Urinary Tract Infections) since December of 2004, when I had my tailbone, S-4 and S-5 removed. My tumor was at the very end of my tailbone. Would love to start e-mailing with you and compare notes. Thanks. - Robin (RockinRobin in the cancer chat room)