Ampullary cancer survivors?

Hello,

You may want to do a search of personal web pages to see if you find someone with a similar experience that you wish to contact. To do this, click on "Personal Web Pages" on the left hand side of the page. Put in your search criteria and browse the web pages. If you find someone you would like to contact you can do so through the internal CSN email.

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I hope this information has been helpful.

Take care and be well,

Dana
CSN Dana

YES, THAT IS ME. EMAIL ME PLEASE AT golfwrench@msn.com My name is Jim and I was diagnosed in December 2004. thanks

two and a half year ampullary cancer survivor
I had stage 2a ampullary cancer. Had a whipple, radiation and chemo. It has been two and a half years since surgery.

mrslar said:

Brother has ampullary cancer
My brother had a Whipple's procedure for ampullary cancer on 03/12/10 at Johns Hopkins. There was one lymph node that was cancerous and he will be starting chemo and radiation in about 5 weeks. Any words of wisdom, advice, etc, that I may give him to get him through this? He is only 43 years old. Originally thought he had bile duct cancer, but he was officially told that it was ampullary cancer at his appointment last week.

Ampullary Cancer
Does anyone use juicing in addition to traditional methods of treatment? I was reading a lot about this and was wondering what type of juicers are being used.

brotzdesart said:

two and a half year ampullary cancer survivor
I had stage 2a ampullary cancer. Had a whipple, radiation and chemo. It has been two and a half years since surgery.

How are you doing?
My husband is in the hospital as I write in Nashville TN Had the whipple.3 days ago..feels sick right now...took out 6 nodes and it was in one. What about you? He is almost 55 years old. Smoker if that makes any difference in this type cancer. I am praying he will quit now! Is there somewhere to go for treatment that is better than all the rest? MD Anderson?

mrslar said:

How is your husband doing,
How is your husband doing, jaheath? Is he getting stronger and feeling better each day? My brother also had one positive node. He had his surgery at Johns Hopkins, did his first round of chemo at our local hospital but went to Hopkins for 6 weeks to do his radiation. He is starting his last round of chemo next week and then we pray he is cancer free for a long, long time.

My brother is 43 and withstood the chemo and radiation very well so far. We attribute it to his age.

Ampullary
I had one positive node (regional) and negative margins of tumor and node. Whipple on 5/25/10 and finished chemo and radiation 9/3/10. Feeling much better now that I through with treatments. Doc recommended Gemzar infused after completing the Xeloda, and I am delclining that treatment for now. My surgeon states my case is the earliest he has seen ampullary cancer caught so I trust the one round of Xeloda cleared up microscopic cells, and I had toxcicity build up on Xeloda due to my age (77), so did not want to risk
more damage from treatments.
Have your brother request an evaluation of his heart prior to treatment and after and possibly during treatment if on one recommends. I had the echocardiogram for clearance for surgery in May and at wife's sugesstion had one in August due to low blood pressure and discovered aortic valve calcification. That is one of the factors in my decision NOT to take the Gemzar.
my best to you and your family!
Regards, Ray / North Caroina

rapjaguar said:

My mother with ampullary cancer
My mother who is only 56 years old was diagnosed a year and a half ago and now the cancer is back. I just need to talk with someone who understands. I have so many questions and was hoping you would be willing to talk.
I hope your doing well!
Many Regards,
Rejeana

To Rejeana...
I'm sorry, I do not have cancer so can not answer your questions. I came here to seek information, but your post caught my eye. Two years ago I had a pre-cancerous tumor removed from my Ampulla of Vater. I am also 56 years old! They did not do a Whipple, but did remove the tumor and reroute the bile and pancreatic ducts. All has been going well until my follow-up biopsy this year. My cells are changing again, but my doctor feels we have some time and will biopsy again early next year.

How is your mother doing? How did they get the cancer the first time (surgery, chemo)?

brotzdesart said:

two and a half year ampullary cancer survivor
I had stage 2a ampullary cancer. Had a whipple, radiation and chemo. It has been two and a half years since surgery.

four year survivor
I am now a four year survivor of ampullary cancer. I am starting a facebook page for people affected by ampullary cancer to gather.

brotzdesart said:

four year survivor
I am now a four year survivor of ampullary cancer. I am starting a facebook page for people affected by ampullary cancer to gather.

Facebook
I was diagnosed with AC in Nov '07. I also had whipple surgery & a total of 16 months of chemo. I'd like to get on the FB page. What is it called? Seems like a great idea!