experiment..

nanuk
nanuk Member Posts: 1,358 Member
edited March 2014 in Colorectal Cancer #1
this is an experiment to see if I could keep these threads in the forefront (page 1) a little longer so new posters could see them..sorry for the redundancy, Jose..
nanuk
03-23-2005
11:41 PM EST ASCO Guidelines For Surveillance of Col... [reply]

An amazing database, although somewhat technical and

at times depressing.

http://www.jco.org/cgi/content/full/17/4/1312#TBL31312

Thread: first msg | prev msg | next msg

nanuk
03-23-2005
11:41 PM EST ASCO Guidelines For Surveillance of Col... [reply]

An amazing database, although somewhat technical and

at times depressing.

http://www.jco.org/cgi/content/full/17/4/1312#TBL31312


Kanort
03-24-2005
09:46 AM EST Re: ASCO Guidelines For Surveillance of... [reply]

Many thanks, Bud! I'm printing it out as I type. I will go back for my nine month checkup in two weeks armed with information!

Kay


steved
03-24-2005
09:56 AM EST Re: ASCO Guidelines For Surveillance of... [reply]

They make intereseting reading. The bottom line seems to be there is little evidence to support alomst any surveillance except CEA and 3-5 yearly colonoscopy accompanied by regular physical exam. CT doesn't come out favourably which is inteesting as it along with US scans still seem to be regularly used. No discussion of role of PET scans though.

Just goes to show patient vigilance of symptoms is robably the best thing and in fact empowers us to be active in our own surveillance.

Steve


judiths
03-24-2005
09:02 PM EST Re: ASCO Guidelines For Surveillance of... [reply]

Hi Bud, Good to see you posting regularly again. Hope all is well with you. I made note of the site; I will check it out before my next 3 month checkup. My onc keeps saying that they will do the bloodwork, including CEA, but he wants me to listen to my body and be sure to report anything that seems different or out of the ordinary for my new clinical baseline.

A very good friend has just been diagnosed with oral-pharygeal cancer; very tough road ahead for him. It all seems so scary at times.

Regards, Judy


judiths
03-24-2005
09:30 PM EST Re: ASCO Guidelines For Surveillance of... [reply]

Reply #2...Hi Bud, Just printed out the report. I am amazed! VERY interesting, (and technical) and, your right, somewhat depressing. Looks like the search for possible recurrance is a crapshoot...no pun intended. I now have my reading for the night (or next few nights!) It is great to have such a thorough review available. Hope they keep working on this.

Here's hoping for good outcomes for us all.

Judy


judiths
03-24-2005
09:43 PM EST Re: ASCO Guidelines For Surveillance of... [reply]

Sorry, reply #3. This report is dated 1999. Do you think there have been any advances in the area of followup and detection of recurrance since then? Sure gives me PLENTY of stuff to ask my onc, who loves all questions.

Thanks again, Judy


nanuk
03-25-2005
03:04 PM EST Re: ASCO Guidelines For Surveillance of... [reply]

dunno about the date, but would be interested in your Onc's response..I think Crap-shoot is a very appropriate pun..I believe 5fu was developed from

mustard gas..they were giving it to my wife 20 years ago, and as far as I know, it's the same stuff they are using today.. Bud

Comments

  • scouty
    scouty Member Posts: 1,965 Member
    #2
    Hi Bud,

    You are right about 5FU, my Mom had a 5FU ointment for skin cancer 25 years ago too.

    Colonoscopies seem to be the best bet for early detection, prevention with poloyp removal, and finding reoccurances so somehow doctors need to learn to recommend them more ofter. With the US insurance the way it is, your primary care doctor has got to support it or it won't be payed for. That has got to change.

    At one of the Comprehensive Cancer Centers close to me in honor of March being colon cancer awareness month, they gave out free fecal occult test kits. DUH!!!!!! We just found out they miss colon cancer 95% of the time, so why the heck would they do such a thing. I read it in our local paper and told my primary care doctor about how worthless the tests has proven to be and he didn't even know!!!!! He was a little embarassed and then I lectured him on recommending colonoscopies more often. He tried that "it's such an expensive test" crap and I blew him away with how much my chemo treatments were. Pay a little now, or pay a lot later. It makes sense to me, why not the medical industry?

    Have a great Easter everyone!!!!

    Lisa P.
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    #3
    scouty said:

    Hi Bud,

    You are right about 5FU, my Mom had a 5FU ointment for skin cancer 25 years ago too.

    Colonoscopies seem to be the best bet for early detection, prevention with poloyp removal, and finding reoccurances so somehow doctors need to learn to recommend them more ofter. With the US insurance the way it is, your primary care doctor has got to support it or it won't be payed for. That has got to change.

    At one of the Comprehensive Cancer Centers close to me in honor of March being colon cancer awareness month, they gave out free fecal occult test kits. DUH!!!!!! We just found out they miss colon cancer 95% of the time, so why the heck would they do such a thing. I read it in our local paper and told my primary care doctor about how worthless the tests has proven to be and he didn't even know!!!!! He was a little embarassed and then I lectured him on recommending colonoscopies more often. He tried that "it's such an expensive test" crap and I blew him away with how much my chemo treatments were. Pay a little now, or pay a lot later. It makes sense to me, why not the medical industry?

    Have a great Easter everyone!!!!

    Lisa P.

    Hiya Bud. I read the article with quite a bit of interest...and ....seeing how I read it about 3am I was hoping it would make me sleepy. Aww..no such luck!
    I have to agree with Scouty that the only really accurate way of testing is colonoscopy's and an age preference for testing would be advisable. But then what age would be a good start point considering that a lot of bowel cancers seem to have struck early in life as well?
    Over here in OZ it seems that doctors are reluctant to do follow-ups with CT'S etc. Maybe it does have something to do with cost? My 2 monthly CEA tests are the norm with also ultrasounds every 3 months and colonoscopy yearly--or at least for the first 3 years.
    My specialist in ultrasounds told me any tumour needs to be about 1/2 to 1 centimetre in size for them to pick it up,(geez.is that too late?) baring in mind my ultrasounds are concentrated on the liver and they also look at the upper abdomen. Ie; spleen, kidneys, pancreas etc.
    As far as us semi-colons monitoring our bodies I would be interested to know what symptoms to look for, for instance liver metastisis? Maybe someone can answer this?.....Scares tha **** outa me!
    Thanks for the link Bud..be well, stay safe buddy, kanga n Jen
  • nanuk
    nanuk Member Posts: 1,358 Member
    #4
    It never ceases to amaze me that there is so much
    variance in diagnostics-ie; my doctor(s) have never mentioned ultrasound-(in four years), although Kanga's Dr. says it can see under 1mm..I've heard that CT doesn't see under 1mm, and PET can't see much under 2mm..can anybody weigh in on this?
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    #5
    nanuk said:

    It never ceases to amaze me that there is so much
    variance in diagnostics-ie; my doctor(s) have never mentioned ultrasound-(in four years), although Kanga's Dr. says it can see under 1mm..I've heard that CT doesn't see under 1mm, and PET can't see much under 2mm..can anybody weigh in on this?

    Is old age or snow blindness gettin to yah Bud? lol!
    I believe I said 1/2 to 1 "centimetre"?
    Actually the radiologist said that anything under 1 centimetre could be seen but would be very difficult to pick up. She said that when she is doing the ultrasound she is very thorough. I would suggest she is considering the time it takes and the many different angles I have to shift my body during the sounding.
    They do spend considerable time looking at the liver.
    cheers, kanga

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