Bad News

Btrcup
Btrcup Member Posts: 286
edited March 2014 in Colorectal Cancer #1
Hi all, hope everyone is doing well. You are all in our prayers.

Well we had meeting with surgical oncologist yesterday. We were to find out if Scott was a candidate for the Intraoperative Peritoneal Chemo treatments (same as Fitlisa). He is not. His cancer is spreading at a rapid rate. They said to go in now would only make things worse. He has to consider is quality of life. Least to say we are devastated. Scott just turned 43 last week. We spent the rest of the day together after his appointment and, it was weird but we had a great day! We talked and laughed like we did when we were dating. Then we would stop and look at each other and say "are we crazy"!! It was like we were in denial, but I'm glad we had a nice day. Did normal things...got the car fixed, got our taxes done, went to lunch. It was really hard when we went home with the kids. Scott was so good with them...playing and laughing and we watched Shark Tales. Then after they went to bed, that's when it hit us. We started thinking about all the things we have to do. It's going to be a rough ride. I'm sorry I'm rambling, just a million thoughts going through my head.

We will discuss other options with his oncologist this week. We may be able to try another round of chemo to prolong, but we know it's not for cure. He wants to look into the "all natural route" too.

I'm sorry to bring everyone down. You all have been great. This discussion board has been my release as well as my source of information. God Bless you all.

Linda (Baltimore)

Comments

  • kerry
    kerry Member Posts: 1,313 Member
    #2
    Linda,

    As I read your post, I began weeping. All of us fighting this disease have to face our mortality and it is never easy. Miracles do happen and you and Scott will be put on my church's prayer list.

    I am so glad you had a great day together and with the children. I hope you will enjoy many many more.

    Please know that you are in my thoughts and prayers daily.

    Kerry
  • Unknown
    Unknown
    #3
    This comment has been removed by the Moderator
  • alihamilton
    alihamilton Member Posts: 347 Member
    #4
    Linda, I am so sorry to hear the news you and Scott are getting. I agree though that you must not give up...we have heard of so many who were told there was nothing more to be done and yet are doing well today. Do continue to enjoy each other though...none of us know how long we have and it is important that we make the most of every day we have together. Do keep us posted.

    Love, Ali
  • rejoyous
    rejoyous Member Posts: 259
    #5
    Dear Scott and Linda,

    Thank you for writing and letting us be a part of this difficult process. I'm so sorry to hear your news, and moved by your ability to find joy in the midst of all this. It keeps hitting me over and over--the paradox of how facing the tenuousness of our lives also intensifies life's sweetness.

    How old are your kids? Mine are 13 and 16. Watching my kids try to handle this journey has been the hardest part for me.

    Anyway, no apology necessary for "rambling." You know we're here for you to say what you need to say. And I wish you all the best in letting your love and enjoyment of each other and your kids keep you on track. I don' t think I ever found watching a TV show with my kids as deeply pleasurable as in the past nine months.
  • andreae
    andreae Member Posts: 236
    #6
    Dearest Linda,

    First of all, I send you, Scott and the kids the BIGGEST, BADDEST hug. Re-read your post. The incredible strength and love of your family is obvious and just shines through your writing. I wish I could tell you everything is going to be just fine, but I can't. I can tell you that hope is not lost. Scott is a young man and can still tolerate treatment. Certainly, the oncologist will treat. It may not be a cure, but more time is not only a gift in itself but could bring more therapeutic options. As hard as it may be to believe right now, miracles can and do happen. Contact scouty or Emily about natural options. I wish I could do more, but please know that you and your family will be in my heart, thoughts and prayers. Please keep us posted and know that we are always here for you.

    Lots and lots of love from cold Montreal,
    Andrea
  • jsabol
    jsabol Member Posts: 1,145 Member
    #7
    Dear Linda and Scott,
    I, too, was wiping away tears while reading your brave post. I hope the quiet joy that you all shared that day continues to carry you all through this tough battle. It may be a rough ride, but know that we are all in your corner.
    Wishing you continued strength, Judy
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    #8
    Hi Linda,

    I am so sorry about Scott, but so happy that you two can find joy in moments together and with your kids.

    I have a book list of alternatives that I highly recommend:

    A Cancer Battle Plan by Anne Frahm (she did everything western med had to offer then was sent home to get her affairs in order and discovered a plan that healed her cancer)

    A Cancer Battle Plan Sourcebook by David Frahm (the how-to)

    Prescription for Nutritional Healing by Balch and Balch (good basic info)

    When Hope Never Dies by Marlene McKenna (was given a death sentence and lived to tell--did diet changes)

    The Makers Diet by Jordan Ruben (excellent intestinal health info--best I have found so far)

    Options by Richard Walters (explanation of alternative methods out there)

    The Cancer Prevention Diet by Michio Kushi (macrobiotics--many successes)

    Here are some websites to check out:

    www.curezone.com

    www.hacres.com

    www.healthquarters.org

    www.gardenoflife.com

    there are so many I do not want to overwhelm you.
    www.alternativemedicine.com

    www.oasisofhope.com

    www.IPTMD.com (integrative Medical Specialists) 770.474.4029
    Please do not wait. There are places and clinics you can go to also.

    American Nutriceuticals, Inc. 888.848.2548

    Envita Natural Medical Centers of America (www.behealthyamerica.com 866.830.4576)

    Also do a google search on Max Gerson. He promoted an intense juicing regimen and his relatives continue on with a clinic. Pricey but could be well worth it.

    Out east there is Dr. Gonzales who uses enzymes. Again a google search will turn up more info.

    I don't know what you plan on doing in the Alternative department because there is so much to choose from you may feel overwhelmed. Keep looking until you find what feels right for Scott. But don't give up!!! There is SOOOOO much that can keep your hope alive.

    peace, emily who is still using alternatives 3 1/2 years later and remains cancer free!
  • RunnerZ
    RunnerZ Member Posts: 185
    #9
    Linda,
    I am so sorry to hear that you guys have had to deal with such difficult subjects. I do understand your description of the nice day that you and your husband spent together even that day. My wife and I found ourselves occasionally enjoying ourselves during the worst of times. Gallows humor? NO...it is love. You and your husband will have many more days like that. Whatever happens, we as humans have the ability to put our own concerns aside and love our own family and friends. You have one another, and you always will. We are here for you. I will pray that your family has much joy and love in the coming year.

    RunnerZ (a 42 year old father of 3 who was diagnosed at 36 and continues to remain disease free...but forever wondering).
  • steved
    steved Member Posts: 834 Member
    #10
    So sorry to here your news- it is all too easy to relate t what you are going through that it realy hurt to read your story. It sounds like you are facing up to it admirably and I respect your strength in doing so. The next period will be hard for all of you and I hope you will feel free to use us to unburden anything you want. My thoughts are with you.

    Steve

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