Anybody survived peritoneal metastasis?

VibhaRathi
VibhaRathi Member Posts: 3
edited March 2014 in Colorectal Cancer #1
Hi everyone,
Its been great to read all the encouraging stories here and special thanks to everyone who replied to my earlier post.
My dad is stage III with peritoneal involvement.
His omentum was also infected but removed during surgery.
A latest ultrasound on his abdomen is showing some peritoneal deposits. I met the surgeon who operated on him yesterday and he said that peritoneal cancer cannot be removed or cut away, it just has to be treated with chemotherapy. We were on oxaliplatin earlier but are now on Irinotecan as he was not tolerating oxaliplatin that well. Has switching the drugs caused the cancer to come back?
I would really like to hear from someone who has had peritoneal involvement..what are the options in this case?
This is proving to be a very tough fight for all of us..I feel cancer is the worst disease in the world to have...its so damn unpredictable!!
Hoping to hear from you all..
Regards,
Vibha.

Comments

  • deneenb
    deneenb Member Posts: 130
    #2
    Hi Vibha,

    My Dad has stage IV with peritoneal and omentum mets. It seems that there is much controversy over what Dr's tell us. For instance, we were told that there are no diagnostic tests that can see peritoneal mets, that you have to actually open someone up to see their progression or regression. You are the second person that I have heard say their Dr. saw them on a scan or ultrasound.

    There is surgery for peritoneal mets although I understand that it is quite involved and a bit risky. We have an oncologist at Sloan Cancer Center in NYC that is willing to set up the surgery for my Dad in 6 months if everything else goes well. I am praying.

    I fully believe that my father can beat this. I know a gentleman who had stage IV with peritoneal mets 15 years ago. He was told he had 2 years to live and then he found a Dr. to do the surgery and he is still here today. It came back in his lung 5 years ago and they removed that as well. There are survivors of every stage of every type of cancer. Dr's don't know what allows one person to beat what so many others succumb to but it happens. I believe that my father will be one of those "miracles of medical science" and I pray for it every day. I will pray for your Dad to be one as well.

    Sincerely,
    Deneen
  • Btrcup
    Btrcup Member Posts: 286
    #3
    Hi Vibha, sorry to hear about your dad. My husband is Stage IV with mets to omentum & lymph nodes. He had colon resection in Feb. 2004, started chemo in April (5FU, Oxiliaplatin, Avastin & Leukovorin) and in July his scans were "no evidence of disease." He was recently taken off of oxiliaplatin because of nerve damage (we don't know if it is permanent).

    Please keep the faith. My husband is 42 years old and we have two children (4 & 7) and he has too much to live for. There is hope! We will keep your dad in our prayers.

    Linda (Baltimore)
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #4
    Hello, I'm thirty with a nasty peri met. I am in pretty much a similar boat to your old man. I am searchingfor answers as well. Look up Doctor Sugarbaker on the net, I think he is in Washington, he is supposed to be a front runner in this peritoneal mets, mess. Good Luck and stay stuff.
    randy
  • Tessyann
    Tessyann Member Posts: 56
    #5
    AuthorUnknown said:

    Hello, I'm thirty with a nasty peri met. I am in pretty much a similar boat to your old man. I am searchingfor answers as well. Look up Doctor Sugarbaker on the net, I think he is in Washington, he is supposed to be a front runner in this peritoneal mets, mess. Good Luck and stay stuff.
    randy

    I guess it time for me to start talking again... ok my hubby had peritoneal mets..hes a 11 year stage 3 3x recurred.. so it lets you know some do live..
    and Cable sugerbacker is one of the best.. but also look into John Hopkins my hubbies last surgery was in May done by a Dr Susan Gearhart very wonderful and dedicated doctor.
  • themis01
    themis01 Member Posts: 167
    #6
    wondering how your dad is doing with peritoneal treatments. my mom has same thing and started chemo today. i am so scared. did your dad have any abdominal pain with this?
    thanks,
    erika

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