2b invasive ductal bc+ wondering ???

SeaJay
SeaJay Member Posts: 2
edited March 2014 in Breast Cancer #1
It will be 2 years in a few weeks since my dx.So far ao good , but I would like to know if anyone has gotten thicken areas in other parts of affected breast? This has started about 5-6 months ago and I think it is increasing.(check-up this week). Sometimes I can touch different areas of my breast and I jump when I get a sharp/burny feeling not necessarily in the thickened part. I was told the breast would never feel like the other one but, I don't understand the inconsistancy. Sometimes burny..sometimes not. Sometimes here sometimes there. Had neoadjuvant chemo(A/C) before surgery and then radiation afterwards. I am on tamoxifen ...could this be the cause? Not knowing what is going on is a real pain...Any ideas or suggestions? A year ago I was told it spread to my lung, but after going to a large Cancer center, it was decided(after needle biopsy)that it was still radiation damage. I had PET scan which showed elevated suv's...over2 and up to 6+ in different areas of my body. No one felt a need to follow this up. I would LOVE some answers/experiences...not knowing what is going on is a waste of time. :) Thank you for taking the time to read this !!... All the Best to you and yours !!!!!....CJ

Comments

  • elizagain
    elizagain Member Posts: 43
    #2
    Hi, actualy I did get some thickening which they told me was scar tissue. But, as you know, the only way to know for sure is get it tested. I'm sure it will be fine, but you need your peace of mind.
  • SeaJay
    SeaJay Member Posts: 2
    #3
    elizagain said:

    Hi, actualy I did get some thickening which they told me was scar tissue. But, as you know, the only way to know for sure is get it tested. I'm sure it will be fine, but you need your peace of mind.

    Hi Elizagain, I still have the scar thickening, but this is additonal and in a different part not near the scar...all along the base of the breast. I was wondering if it could be lymph fluid building up? I had a positive sentinal node and axillary nodes removed under my arm. Thanks for writing!! It is hard sometimes to know the difference of when to be aware and when to be concerned. I just don't want to be a nuisance but, I want to do what is correct. Believe me: I SALUTE ALL YOU brave and caring souls who have real concerns... God bless you all, for your many stories have truly touched my heart. SeaJay
  • hummingbyrd
    hummingbyrd Member Posts: 950 Member
    #4
    SeaJay said:

    Hi Elizagain, I still have the scar thickening, but this is additonal and in a different part not near the scar...all along the base of the breast. I was wondering if it could be lymph fluid building up? I had a positive sentinal node and axillary nodes removed under my arm. Thanks for writing!! It is hard sometimes to know the difference of when to be aware and when to be concerned. I just don't want to be a nuisance but, I want to do what is correct. Believe me: I SALUTE ALL YOU brave and caring souls who have real concerns... God bless you all, for your many stories have truly touched my heart. SeaJay

    SeaJay, it's really hard to tell what is 'normal' and what's not. My breasts have changed so much, thick, lumpy, tender... AAIIGGHHH!
    It's enough to drive a madwoman sane. LOL
    My right one is so thick I thought the surgeon left the lump after the surgery. At this point I rely on my mammograms, probably not a great idea, but jeez, after a while you just get fed up with the pre-occupation. At least I have, so I just pray "Lord, if there is something abnormal I need to know about point me to it."
    Simple, non-clinical (and I'm a Physician Assistant), but it works for me.
    I guess the best advice is; know your body and if something is different get it checked out.
    Hope this helps. God bless.
    hummingbyrd

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