Alternative treatment and cholangiocarcinoma is working
Comments
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Hi Philip,Philipritchard said:Hi,
Thank you for your posting regarding your wife's condition. I am an acquaintance of Helen Kogan. My question is how can we get the same treatment that your wife was undergoing, or get to speak to a specialist about her Father's particular symptoms, wrt to having IPT. It certainly seems to have worked. If you can help in any way I would be very grateful. As far as I know it's not available in the UK, but do you know of any practitioners in Europe? If not we may have to consider getting him to the US.
Many thanks. I hope things are continuing to go well for you and thank you again for posting your original message.
Philip Pritchard.
There is a doctor in Liecestershire (sp?) UK. Go to www.iptq.com, and click on the Doctors Listing link. You'll find all his info there.
All the Best0 -
Hi All,
We received a preliminary report back from the doctor from the PET scan my wife had done last week.
It shows there is a little cancer left, but that it is very small and in a weak state. Medically speaking it is hypermetabolic, but low attenuation. The Doctor says 6 more treatments should do it. While of course we were hoping it was all gone by now, given Thiery's state when she first started the treatment and the fact that the cancer is still decreasing, this is good news. Being the type of cancer it is, it's just taking longer to kill it off. My wife is doing well, her weight is normal and she feels good (except that she has developed another infection from the stents which she is getting antibiotics for, damn things, we can't wait till they can finally be removed).
So it's off to the doctor's office for six more weeks........I'lll keep you posted!0 -
Once my husband was diagnosed with cholangiocarcinoma we seached for treatment. He fought it for 11/2 years, but nothing helped. We all miss him so much, he was such a special person. Good luck in all that you do.RobbinsEgg said:Hi All,
I want to post the results of my wife's most recent CT scan.
There were no peripheral lesions detected in the liver. The liver is now clear.
The tumor mass has continued to shrink and is now 1 1/2 cm's
She continues to gain weight and she feels good. She looks healthy and continues to lead a normal life.
We are obviously more than encouraged by this great news, and we are very optimistic about her beating this thing.0 -
Hi All,
It is with great joy that I can tell you that my wife now appears to be cancer free. After the 6 subsequent treatments of IPT, the tumor is gone. She had a PET scan a few weeks ago that confirmed this. It did show that there was some "activity" along her bial ducts, so we had a biopsy done and the biopsy came up negative. The activity seems to be inflammation from the stents that are still there. I can't tell you how happy, thankful and relieved we are right now.
I just hope that somehow, someway, that IPT becomes more known and accepted in the very near future. It's just amazing that with a little medical ingenuity that many people with a terminal cancer, including my wife, can be cured by a treatment that is so gentle and without side effects that can be so effective. My hat's off to all the folks involved with IPT, keep up the good work, and don't give up trying to convince "traditional medicine" that your way is better, more forward thinking and truly the future.0 -
Dear RobbinsEgg,
Thank God for people like you who are willing to share your experience and speak out for people dealing with cancer without being brutalized by standard chemotherapeutic protocols. I am a twice survivor of ovarian cancer, once using standard method and nearly dying in the process, cetainly suffering diminished quality of life for almost 2 years. The second time I elected to do IPT and what a difference. I have been working and living a full life while dealing with this very difficult cancer. Thanks to IPT I can say it was worth saving my life. The last time I certainly was not so sure.
You said in your January 2005 post "I just hope that somehow, someway, that IPT becomes more known and accepted in the very near future. It's just amazing that with a little medical ingenuity that many people with a terminal cancer, including my wife, can be cured by a treatment that is so gentle and without side effects that can be so effective. My hat's off to all the folks involved with IPT, keep up the good work, and don't give up trying to convince "traditional medicine" that your way is better, more forward thinking and truly the future." To this end in September of last year I established a foundation dedicated to privately raising the half million or so needed to produce the preliminary clinical trials to statistically prove 70 years of expectional but not metered results from using this protocol. I named the foundation after my late mother who died in 1980 of breast cancer well before anything of this nature was even heard of in Australia, which is where I am orginally from.
Once the trials are over we will have more fuel to fire this procedure being accepted in mainstream oncology and also being covered by insurance under network care. Then we will put together an educational team to go out and teach the value of this procedure to clinics all over the U.S. and other countries
I am interested to hear about your progress with getting you 80% back from your treatment costs. You may email me privately at Rachel@ElkaBest.org or post to this board. Keep up the good work and I am glad your wife is doing so great.0 -
Dear Robbinsegg,RobbinsEgg said:Hi All,
It is with great joy that I can tell you that my wife now appears to be cancer free. After the 6 subsequent treatments of IPT, the tumor is gone. She had a PET scan a few weeks ago that confirmed this. It did show that there was some "activity" along her bial ducts, so we had a biopsy done and the biopsy came up negative. The activity seems to be inflammation from the stents that are still there. I can't tell you how happy, thankful and relieved we are right now.
I just hope that somehow, someway, that IPT becomes more known and accepted in the very near future. It's just amazing that with a little medical ingenuity that many people with a terminal cancer, including my wife, can be cured by a treatment that is so gentle and without side effects that can be so effective. My hat's off to all the folks involved with IPT, keep up the good work, and don't give up trying to convince "traditional medicine" that your way is better, more forward thinking and truly the future.
Your messages are a beacon of hope to those of us who have a loved one diagnosed with cholangiocarcinoma. It is wonderful to hear of your wife's recovery.
My step-son, who is in his 40's, was diagnosed in December with the disease, which is inoperable in his case. It has spread to the liver and beyond and he is at stage 4. He had conventional chemotherapy, which helped somewhat, but did not shrink the tumors. His oncologists told my step-son that the therapy can prolong his life but is not a cure.
I looked at the IPT website and contacted a doctor in his geographical region, who told me that IPT was particularly useful in reducing side-effects. Unfortunately, that would not be enough in my step-son's case.
I would be very grateful if you would share with us the name of the IPT doctor under whose care she recovered so well. Clearly, she had the best of care, including both therapy and nutrition, as well as a loving family. As long as we could help our son to recover, geographic distance from the IPT doctor would not matter.
If you prefer to contact me on my direct e-mail, please write to me at xeniavw@aol.com.
God bless you and your wife and thank you for your messages of hope.
Xenia0 -
Dear Robbinsegg,RobbinsEgg said:Hi All,
It is with great joy that I can tell you that my wife now appears to be cancer free. After the 6 subsequent treatments of IPT, the tumor is gone. She had a PET scan a few weeks ago that confirmed this. It did show that there was some "activity" along her bial ducts, so we had a biopsy done and the biopsy came up negative. The activity seems to be inflammation from the stents that are still there. I can't tell you how happy, thankful and relieved we are right now.
I just hope that somehow, someway, that IPT becomes more known and accepted in the very near future. It's just amazing that with a little medical ingenuity that many people with a terminal cancer, including my wife, can be cured by a treatment that is so gentle and without side effects that can be so effective. My hat's off to all the folks involved with IPT, keep up the good work, and don't give up trying to convince "traditional medicine" that your way is better, more forward thinking and truly the future.
Your messages are a beacon of hope to those of us who have a loved one diagnosed with cholangiocarcinoma. It is wonderful to hear of your wife's recovery.
My step-son, who is in his 40's, was diagnosed in December with the disease, which is inoperable in his case. It has spread to the liver and beyond and he is at stage 4. He had conventional chemotherapy, which helped somewhat, but did not shrink the tumors. His oncologists told my step-son that the therapy can prolong his life but is not a cure.
I looked at the IPT website and contacted a doctor in his geographical region, who told me that IPT was particularly useful in reducing side-effects. Unfortunately, that would not be enough in my step-son's case.
I would be very grateful if you would share with us the name of the IPT doctor under whose care she recovered so well. Clearly, she had the best of care, including both therapy and nutrition, as well as a loving family. As long as we could help our son to recover, geographic distance from the IPT doctor would not matter.
If you prefer to contact me on my direct e-mail, please write to me at xeniavw@aol.com.
God bless you and your wife and thank you for your messages of hope.
Xenia0 -
To RobinsEgg and all,RobbinsEgg said:Hi All,
It is with great joy that I can tell you that my wife now appears to be cancer free. After the 6 subsequent treatments of IPT, the tumor is gone. She had a PET scan a few weeks ago that confirmed this. It did show that there was some "activity" along her bial ducts, so we had a biopsy done and the biopsy came up negative. The activity seems to be inflammation from the stents that are still there. I can't tell you how happy, thankful and relieved we are right now.
I just hope that somehow, someway, that IPT becomes more known and accepted in the very near future. It's just amazing that with a little medical ingenuity that many people with a terminal cancer, including my wife, can be cured by a treatment that is so gentle and without side effects that can be so effective. My hat's off to all the folks involved with IPT, keep up the good work, and don't give up trying to convince "traditional medicine" that your way is better, more forward thinking and truly the future.
My husband is considering IPT--he was diagnosed with squamous cell anal cancer. Does anyone have information about the use of IPT with this type of cancer? Thanks so much for any help!0 -
How can I identify doctors that use IPT and other info about it?creativesearch said:To RobinsEgg and all,
My husband is considering IPT--he was diagnosed with squamous cell anal cancer. Does anyone have information about the use of IPT with this type of cancer? Thanks so much for any help!0 -
Dear RobbinsEgg,RobbinsEgg said:Hi All,
It is with great joy that I can tell you that my wife now appears to be cancer free. After the 6 subsequent treatments of IPT, the tumor is gone. She had a PET scan a few weeks ago that confirmed this. It did show that there was some "activity" along her bial ducts, so we had a biopsy done and the biopsy came up negative. The activity seems to be inflammation from the stents that are still there. I can't tell you how happy, thankful and relieved we are right now.
I just hope that somehow, someway, that IPT becomes more known and accepted in the very near future. It's just amazing that with a little medical ingenuity that many people with a terminal cancer, including my wife, can be cured by a treatment that is so gentle and without side effects that can be so effective. My hat's off to all the folks involved with IPT, keep up the good work, and don't give up trying to convince "traditional medicine" that your way is better, more forward thinking and truly the future.
I very much hope you are still checking messages from this forum. My father (54 years of age) has cholangiocarcinoma and the cancer has mestaticized in his lung. He will be undergoing chemo in the fall. I was wondering how your wife is doing now, and whether you still recommend IPT.
If anyone else out there has experiences with IPT or other treatments, let's connect and get in touch.
Many thanks,
Improart0 -
Dear elkabestdotorg,elkabest.org said:Dear RobbinsEgg,
Thank God for people like you who are willing to share your experience and speak out for people dealing with cancer without being brutalized by standard chemotherapeutic protocols. I am a twice survivor of ovarian cancer, once using standard method and nearly dying in the process, cetainly suffering diminished quality of life for almost 2 years. The second time I elected to do IPT and what a difference. I have been working and living a full life while dealing with this very difficult cancer. Thanks to IPT I can say it was worth saving my life. The last time I certainly was not so sure.
You said in your January 2005 post "I just hope that somehow, someway, that IPT becomes more known and accepted in the very near future. It's just amazing that with a little medical ingenuity that many people with a terminal cancer, including my wife, can be cured by a treatment that is so gentle and without side effects that can be so effective. My hat's off to all the folks involved with IPT, keep up the good work, and don't give up trying to convince "traditional medicine" that your way is better, more forward thinking and truly the future." To this end in September of last year I established a foundation dedicated to privately raising the half million or so needed to produce the preliminary clinical trials to statistically prove 70 years of expectional but not metered results from using this protocol. I named the foundation after my late mother who died in 1980 of breast cancer well before anything of this nature was even heard of in Australia, which is where I am orginally from.
Once the trials are over we will have more fuel to fire this procedure being accepted in mainstream oncology and also being covered by insurance under network care. Then we will put together an educational team to go out and teach the value of this procedure to clinics all over the U.S. and other countries
I am interested to hear about your progress with getting you 80% back from your treatment costs. You may email me privately at Rachel@ElkaBest.org or post to this board. Keep up the good work and I am glad your wife is doing so great.
My father (54 years old) has cholangiocarcinoma, which has mestaticized to his lung. He will undergo chemo in September. I was wondering what info. you have regarding IPT -- also, did you ever hear back from RobbinsEgg as to how his wife is doing now?
Thank you all for sharing your experiences.
My very best,
Improart0 -
treatment for cholangiocarcinoma....
my father age 64 has been detected the same 3 months ago ,surgery and liver transplant possibilities are ruled out.I want to know is there any hope for him through IPT Insulin Potentiation Therapy
or any other alternative treatment .please do reply as time is running short for him....0 -
IPT Insulin Potentiation Therapysolan said:treatment for cholangiocarcinoma....
my father age 64 has been detected the same 3 months ago ,surgery and liver transplant possibilities are ruled out.I want to know is there any hope for him through IPT Insulin Potentiation Therapy
or any other alternative treatment .please do reply as time is running short for him....
Hi. Was wondering if your found any info. on this treatment since my Mother has just been diagnosed with that same type of cancer. Looking for ANY ways to treat it & of course with great results. Please let me know any info you have learned that may help! Would appreciate anyone else w/ info too!!! Good luck to your Dad and your family!0 -
Hi RobbinsEggRobbinsEgg said:Hi All,
It is with great joy that I can tell you that my wife now appears to be cancer free. After the 6 subsequent treatments of IPT, the tumor is gone. She had a PET scan a few weeks ago that confirmed this. It did show that there was some "activity" along her bial ducts, so we had a biopsy done and the biopsy came up negative. The activity seems to be inflammation from the stents that are still there. I can't tell you how happy, thankful and relieved we are right now.
I just hope that somehow, someway, that IPT becomes more known and accepted in the very near future. It's just amazing that with a little medical ingenuity that many people with a terminal cancer, including my wife, can be cured by a treatment that is so gentle and without side effects that can be so effective. My hat's off to all the folks involved with IPT, keep up the good work, and don't give up trying to convince "traditional medicine" that your way is better, more forward thinking and truly the future.
My mom was recently diagnosed with Cholangiocarcinoma and I was researching IPT treatment and was wondering how your wife was doing? I pray that she is has remained cancer free and you both are enjoying life.
Warm Regards;
Jersey Girl0 -
bile duct cancer
Dear RobbinsEgg,
My husband was just diagnosed with bile duct cancer. He was supposed to have a Whipple surgery to remove the tumor, but when the surgeon opened him up, he saw the cancer had spread to the liver, and closed him up. He gave him 6 months. We are so devastated. Any advice would help. We are seeing an oncologist today to talk about treatment, however I am interested in trying IPT.0 -
Dr Schulickrbanova said:bile duct cancer
Dear RobbinsEgg,
My husband was just diagnosed with bile duct cancer. He was supposed to have a Whipple surgery to remove the tumor, but when the surgeon opened him up, he saw the cancer had spread to the liver, and closed him up. He gave him 6 months. We are so devastated. Any advice would help. We are seeing an oncologist today to talk about treatment, however I am interested in trying IPT.
Hi All:
My mother had been misdiagnosed with Stage 4 Cholangiocarcinoma (bile duct cancer). I would suggest before you make any decisions to go to Dr Richard Schulick. He is the best doctor for Bile Duct Cancer. He removed my mother's tumor from the Liver. it was a Huge tumor, so He removed 2/3 of her Liver. The Liver regenerated and she has been undetectable for cancer since the surgery. It has been 2.5 years since the surgery. Dr Richard Schulick works at the Johns Hopkins Hospital in Baltimore. You can find his information anywhere on google. If he says that he can remove the tumor, then you're golden.
Any questions you can contact me: Damjan42@yahoo.com
GOOD LUCK to all. I know what you are going through! BE STRONG, DON'T LOSE HOPE.0
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