Anyone else on Revamid?

DrSteve
DrSteve Member Posts: 8
edited March 2014 in Multiple Myeloma #1
Just wanted to hear from others on Revamid. Thanks. DrSteve

Comments

  • llsimon
    llsimon Member Posts: 1
    #2
    DrSteve,
    Did you get any resonses? I'm brand new to CSN and maybe don't know how to access info. My dad has MDS/AML. He went through the first round of induction chemo. My parents have asked me to find out about revamid. Any experiences that you can share?
    llsimon
  • DrSteve
    DrSteve Member Posts: 8
    #3
    llsimon said:

    DrSteve,
    Did you get any resonses? I'm brand new to CSN and maybe don't know how to access info. My dad has MDS/AML. He went through the first round of induction chemo. My parents have asked me to find out about revamid. Any experiences that you can share?
    llsimon

    llsimon,
    I've been on the revimid since the 3rd week in Feb. 04. My response has been exremely dramatic. Upon starting the double-blind study, my monoclonol peak was 5.6(after being only 1.2 after my stem cell transplant and T cell transplant in May of 03. At that point my options were very limited, and if I did nothing--I had 4 to 6 months to live. The revimid-dexamethasone combination has kept me seeing a full day's patients in my office, and given me as normal a life as possible--considering I'm 4 inches shorter due to the typical skeletal failure.
    The side effects of the treatment aren't fun, but the alternative isn't either. So far-so good. I'm going to ride this out as long as I can. Good luck to you. DrSteve
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #4
    DrSteve said:

    llsimon,
    I've been on the revimid since the 3rd week in Feb. 04. My response has been exremely dramatic. Upon starting the double-blind study, my monoclonol peak was 5.6(after being only 1.2 after my stem cell transplant and T cell transplant in May of 03. At that point my options were very limited, and if I did nothing--I had 4 to 6 months to live. The revimid-dexamethasone combination has kept me seeing a full day's patients in my office, and given me as normal a life as possible--considering I'm 4 inches shorter due to the typical skeletal failure.
    The side effects of the treatment aren't fun, but the alternative isn't either. So far-so good. I'm going to ride this out as long as I can. Good luck to you. DrSteve

    Dear DrSteve

    My husband has Waldenstrom's Macroglobulimenia and is to go on a Rituxin/Revamid trail at Dana Farber (when it is finalized in mid August). We were under the impression it was well tolerated. Are the unpleasant side-effects due to the dexamethasone or the revamid. If the revamid, what were they please?

    Many thanks for any information you can provide.

    Jazille
  • DrSteve
    DrSteve Member Posts: 8
    #5
    AuthorUnknown said:

    Dear DrSteve

    My husband has Waldenstrom's Macroglobulimenia and is to go on a Rituxin/Revamid trail at Dana Farber (when it is finalized in mid August). We were under the impression it was well tolerated. Are the unpleasant side-effects due to the dexamethasone or the revamid. If the revamid, what were they please?

    Many thanks for any information you can provide.

    Jazille

    Hi, the worst effects I have noticed since being on the revimid/dexamethasone study have been from the steroids(dexamthasone). when I am off the steroids,I fell the bone pain much worse than before for a couple days. Constipation is also a problem. So take a double dose of pericolase a day or 2 before the steroids, and until the steroids are done. Other complications are quite tolerable. Nothing like the VAD treatments, or like the other chemotherapies. The results for me have been quite dramatic. I'm waiting now for the latest results of my M-protein and bone marrow biopsy. I really feel good in all aspects of life, but the pain from the skeletal failure
    (back pain) is still the worst thing I have to deal with. Good luck!!! Dr. Steve
  • drknite414
    drknite414 Member Posts: 1
    #6
    I've been on 4 cycles of revamid and decodron since March 04. My biopsy went from 85% active myeloma cells to less then 5 by 8/4. Now getting stem cell transpalnt. Worked very well.
  • believe08
    believe08 Member Posts: 2
    #7
    drknite414 said:

    I've been on 4 cycles of revamid and decodron since March 04. My biopsy went from 85% active myeloma cells to less then 5 by 8/4. Now getting stem cell transpalnt. Worked very well.

    My husband just finished 4 cycles of revlimid with great reduction too. He will have a stem cell harvest in a couple weeks with transplant in jan. How did your's go?

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