traveling precautions???

krisrey
krisrey Member Posts: 194
edited March 2014 in Breast Cancer #1
Hi All,
Can anybody please tell me if I need to get some kind of sleeve to prevent lymphedemia before I fly? And if so, who do I call to get fitted?
Am I increasing my risk for lymphedemia simply by flying? Any advise would be greatly appreciated.
Thanks
Kris

Comments

  • prayerangel
    prayerangel Member Posts: 147
    I don't know of any of my breast cancer friends who got a sleeve just because they were traveling. They only got a sleeve when they actually had lymphodema. I have flown and I've never gotten a sleeve. I've had 2 mastectomies with lymph nodes taken under both armpits. I suppose I wouldn't worry about something that hasn't happened yet. Good luck.
  • krisrey
    krisrey Member Posts: 194

    I don't know of any of my breast cancer friends who got a sleeve just because they were traveling. They only got a sleeve when they actually had lymphodema. I have flown and I've never gotten a sleeve. I've had 2 mastectomies with lymph nodes taken under both armpits. I suppose I wouldn't worry about something that hasn't happened yet. Good luck.

    Prayerangel,
    I have heard that it is something out the pressure that can cause it..I will see what the doc's say..thanks for responding.
    kris
  • tlmac
    tlmac Member Posts: 272 Member
    krisrey said:

    Prayerangel,
    I have heard that it is something out the pressure that can cause it..I will see what the doc's say..thanks for responding.
    kris

    kris, The same change of pressure that prompts some people to chew gum during take offs and landings has also been associated with lymphedema in some women. It may not affect you at all. Not everyone who smokes will get lung cancer. Definitely ask your doctor. The nasty thing about a chronic condition like this is, once you've got it, there's no cure.
  • jeancmici
    jeancmici Member Posts: 665 Member
    tlmac said:

    kris, The same change of pressure that prompts some people to chew gum during take offs and landings has also been associated with lymphedema in some women. It may not affect you at all. Not everyone who smokes will get lung cancer. Definitely ask your doctor. The nasty thing about a chronic condition like this is, once you've got it, there's no cure.

    If your arm is OK, flying will not affect it. I finished treatment in end of Sept 2001 and flew to europe in July 2002 returning a month later. I had no problem. I was careful about lifting or straining my left arm while there. also with a lot of walking and sightseeing, I had slung my shoulder strap purse from the right shoulder across the chest to rest on my left hip. since I always had my left hand resting somewhat on that purse for security purposes, I was also elevating my arm somewhat.

    Who would have thought - in 2003 when I began a more intensive walking program, May of 03, I got lympohedema in my hand - was told: "of course, never walk with your arm hanging down!' Wherever have you or anyone read that!!!!!???? By accident I protected my arm while protecting my purse ;-)

    I'd fly and not worry if your arm is all right now - just watch the carrying. I lived in Paris a month and always carried things in my right arm and pulled a rolling cart for groceries also with only my right arm.

    Then I must confess I had some physical therapy later on the poor overworked right arm. Life is tough!

    Good Luck,
    Jean
  • bunnie
    bunnie Member Posts: 233
    Hi i was told to wear what they call a comprsion sleeve if i fly.I got it from a physical theapist that deals in lympodima.I havent flowen since i had my mastecomy though so i dont know if you increase your chances or not.Hope this helps.Bunnie
  • Future
    Future Member Posts: 133 Member
    I've flown about 10 times since my mastectomy last May. Did not wear the sleeve for first two trips and had no problem. Talked with a physical therapist and she leaned on the side of caution and said to at least have one with me and if I noticed any changes in my arm while traveling to put it on. When I started flying every one to two weeks it was recommended I wear it as a precaution. So far so good, no problem.

    So........my thought, get a physical therapy referral with someone who has done additional training in lymphedema and have them at least measure you for a sleeve. It's small, you can tuck it in your purse and if you start to have signs of a problem you can put it on.

    what I also did was start wearing a ring on my hand so I'll notice any increased swelling sooner.

    Just some thoughts.
  • kcbh
    kcbh Member Posts: 8
    I am currently in a preventative program at a lymphedema center, referred by my surgeon. I just asked about flying as a risk factor. I was told it could add to a cumulative effect since flying can cause swelling, as in ankles. I was told to be careful of other contributing factors, such as lifting, sun and high altitude (which I would never have thought of). Flying alone should not cause much risk. I would suggest you look at www.lymphnet.org for a good treatment center in your area. If needed, they could measure you for a sleeve. I discovered the hard way that not all therapists claiming to specialize in lymphedema have any real training.
  • billandpatty
    billandpatty Member Posts: 86
    Kris
    I wear a compression sleeve when I travel (I fly approx. 5+ times a year = 10 times in the air, short and long trips). I figure it doesn't hurt and why not try to prevent lymphedema when you can because once you have it, you have it. I also went to a lymphedema workshop and had an appt. with a physical therapist (which recommends wearing a compressions sleeve) to teach me about manual drainage. It helps to educate you about lymphedema and recognize what to look for. Many doctors don't know much about it. I flew 10 days after the melanoma surgery I had last year wearing a compression sleeve and had no problems.

    Have a great trip!

    Patty
    (lumpectomy, lymph node dissection in Mar/Apr 2000 and melanoma surgery and sentinel lymph node on same side June 2003)

    p.s. I wear a sleeveless top to the airport (and a sweater or jacket to keep warm) and put the sleeve on after I'm on the plane before takeoff. I can take it off when we land. You get some strange looks from fellow passengers once in awhile, but some of them wear compression socks, etc. for circulatory problems. I also try to sit so that I can elevate that arm if it starts to feel tight or uncomfortable (it's my right arm, so if my husband flies with me, he's on my right and I can rest it on him). You can also ask for a couple of pillows or blanket to help keep it slightly elevated. Also, it's important to keep the sleeve clean. I wash out mine in the hotel room and lay it out to dry on the counter -- and hope the maid doesn't take it out with the linens!