Dry Mouth

hi there spacerbill, don't believe everything your doctor tells you. I survived this 11 years with a bone dry mouth. Hard yes, but I still have most of my teeth. Lost two molars because I couldn't open my mouth far enough to fix them. that's key, practice opening your mouth wide, everyday. brush after EVERY MEAL and at night. use floride etc etc.How old is yur wife?? Let me know if you have more questions. Laurena

Hi spacerbill,
I had radiation therapy two years ago for head and neck cancer. I, like her, still use Salagen. I don't use the toothpaste and mouthwash as much any more. What I did find that helped me more than anything is accupunture. I did not bring back all of my salvia but I only went to eight treatments and plan on doing them again in the future. My doctors even talk about how much more saliva I have than their other patients. Actually my ENT started recommending it to his other cancer patients. Hope this helps and let me know how it goes and if I can help in any way. Shirley

lotusflower said:

I am in exactly the same boat. It is getting better as time goes by. She may lose her teeth, nothing is for sure. It is all wait and see. All we can do is be more attentive to our teeth and go on. Also I chase my food with milk and drink room temp water my throat feels better. I drink beverages without ice. Would love to hear from you or her my e-mail is Dharmanature@comcast.net it's a capital "D" in Dharmanature.

I am currently being treated for nasopharygeal tumor Stage 3. I have 40 radiation treatments and 2 chemo. I have already had both chemo and now have 18 radiation treatments in front of me. Are you still in treatment or recovering? I have many more questions to ask you if you are willing. Getting through thios cancer day to day is an unbelievable struggle, even with full support of family and friends.I would appreciate hearing from you or any one else with head and neck cancer. I need tips on the day to day things. Thank you so much for your replies in advance. Linda

LostinVA said:

I am currently being treated for nasopharygeal tumor Stage 3. I have 40 radiation treatments and 2 chemo. I have already had both chemo and now have 18 radiation treatments in front of me. Are you still in treatment or recovering? I have many more questions to ask you if you are willing. Getting through thios cancer day to day is an unbelievable struggle, even with full support of family and friends.I would appreciate hearing from you or any one else with head and neck cancer. I need tips on the day to day things. Thank you so much for your replies in advance. Linda

My husband had 35 radiation treatments, 6 Cisplatin and three 5Fu chemos. His CT scan last week showed no new growth, plus the bone in the middle of his head is growing back - the tumor had destroyed it. However, the road back is going to be very long. He is never without his water bottle due to the dry mouth. He is just now having "real" food - nothing crunchy. Instant breakfast has been his salvation of late - Ensure and Boost are okay but the soy was starting to upset his stomach - the last thing a cancer patient needs - more nausea! He also has neuropathy in his hands and feet. We've been told that may resolve itself in about 2-3 months. If you have specific questions - I have a pile of answers these days!

I would be careful with sugar candies if you have saliva problems. My dentist stated I needed sugar-free hard candies as the saliva keeps teeth clean and the sugar would worsen my teeth. I was told to try Dr. John's Sugar Free Sour Candies and they really worked for me to keep my mouth moist when I tried to workout. I also drank fresh squeezed lemonade (with Sugar substitute) to try and enhance production. Here is an amazon link to what I purchased (this is NOT an affiliate link for me).

https://www.amazon.com/gp/product/B07ZWGBQJK/ref=ppx_yo_dt_b_asin_title_o03_s00?ie=UTF8&th=1

Coconut water is helps. It's an acquired taste but it really helps dry mouth. Tell her to swish it around a lot before swallowing.