cervical survivor anyone feel like me

TUG
TUG Member Posts: 11
edited March 2014 in Gynecological Cancers (other than ovarian and uterine) #1
i found out that i had cervical cancer one year ago in june i was supposed to go in and have a radical hysterectomy when they opened me up they said that the cancer had spread so thay had to remove two nods on one side and one nod on the other , but they did not remove my plumming instead they closed me up gave me a month to heal and then i started my radeation (sorry bad speller) and chemo after that i had the two vaginal implants,it has been a long road, i was wondering if anyone had there plumming left to, my lyphodema in my leg and it is driving me crazy i just started thearpy for the leg and i also would like to know if anyone will know how long will it last and how will it affect my life.will i ever get my period again sorry so many ? but i wish i knew someone like me i could ask .thanks for listening GOD BLESS YOU ALL STAY STRONG

Comments

  • 1jml
    1jml Member Posts: 12 Member
    #2
    I, too, found out that I had cervical cancer in June of '03. I was prepared for a hysterectomy and when they opened me up, found that it had spread to my lymphnodes. I've completed radiation, and chemotherapy, and I also had the implants.
    My legs aren't swolllen. I have however gained weight since I do not have the energy to exercise as I used to. If you are like me, you will no longer have a menstrual cycle. The radiation kills your ovaries. Your doctor should have explained this to you. Questions are going to come up. Do not hesitate to call your dr and get the answers that you need. This is such a difficult time for you and your questions are very important. I hope this is helpful to you. Take care.
  • Bon1978
    Bon1978 Member Posts: 16
    #3
    Your story brought tears to my eyes when I read it. I as mentioned in the previous reply, I was diagnosed in 2002. A radical hysterectomy was discontinued after the cancer was discvored in my lymphnodes. I then began chemotherapy with external and internal radiation. After that I became incredibly sick because of bowel obstructions and radiation enteritis. I had a 2nd surgery and now have even more problems.

    To make a long story short, I have recently developed lymphadema in my leg as well and gone through physical therapy, etc. I am still continuing to have problems daily and currently go to the hospital 2-3 times a week. I still have a uterus and cervix, but the doctors did remove my ovaries. I stopped having a period for a long time and recently started having one again. That's really fun with no ovaries! Anyways, feel free to ask any questions or if you just feel like talking, let me know. My other e-mail is Bon1978@aol.com.
  • bgreen
    bgreen Member Posts: 4
    #4
    Bon1978 said:

    Your story brought tears to my eyes when I read it. I as mentioned in the previous reply, I was diagnosed in 2002. A radical hysterectomy was discontinued after the cancer was discvored in my lymphnodes. I then began chemotherapy with external and internal radiation. After that I became incredibly sick because of bowel obstructions and radiation enteritis. I had a 2nd surgery and now have even more problems.

    To make a long story short, I have recently developed lymphadema in my leg as well and gone through physical therapy, etc. I am still continuing to have problems daily and currently go to the hospital 2-3 times a week. I still have a uterus and cervix, but the doctors did remove my ovaries. I stopped having a period for a long time and recently started having one again. That's really fun with no ovaries! Anyways, feel free to ask any questions or if you just feel like talking, let me know. My other e-mail is Bon1978@aol.com.

    Bon1978/ Hope you are doing well...What is lymphadema? I am scheduled to undergo radiation and chemo this week June 7, 04. I have Glassy-Cell Carcinoma/ Cervical Cancer. I had my hysterectomy on May 25th. When the doctor opened me up the tumor had came out of the cervix and attached itself to my bladder. My ovaries were removed however, everything else remains. I am only 29 yrs old, I have no children. What am I to expect with these treatments? My doctor indicated I would have a vaginal implant, as well, in 4-weeks. HELP! ~Brandy Green
  • hope7
    hope7 Member Posts: 5
    #5
    Bon1978 said:

    Your story brought tears to my eyes when I read it. I as mentioned in the previous reply, I was diagnosed in 2002. A radical hysterectomy was discontinued after the cancer was discvored in my lymphnodes. I then began chemotherapy with external and internal radiation. After that I became incredibly sick because of bowel obstructions and radiation enteritis. I had a 2nd surgery and now have even more problems.

    To make a long story short, I have recently developed lymphadema in my leg as well and gone through physical therapy, etc. I am still continuing to have problems daily and currently go to the hospital 2-3 times a week. I still have a uterus and cervix, but the doctors did remove my ovaries. I stopped having a period for a long time and recently started having one again. That's really fun with no ovaries! Anyways, feel free to ask any questions or if you just feel like talking, let me know. My other e-mail is Bon1978@aol.com.

    I'm also a survivor of cervical cancer. I have had Lower limb Lymphadema from waist down. One thing I will warn you of. Mystery infections. Make sure you have antibiotics with you for when this will happen. I find that bad stress sometimes triggers the infection. I start with a bad headache, then my low back feels as if someone is breaking it. Then I get cold and can not get warm. The I have the chills. They say it is because of the lympadema.
    I find that wearing my high compression tights help alot. They are made by Juzo.
    my e-mail is lesia_p7@yahoo.com
  • mardichandler
    mardichandler Member Posts: 1
    #6
    hi tug how are you doing since all this has happend to you? I just found this site i have been clean for almost 3 years. I have had all the stuff you have had and they did leave the plumbing as you call it. I would love to talk to you and see how you are doing with all of this and maybe compare some of our symptoms and how we are doing now? any way god bless ya.

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