estrogen negative

Researchers know that something other than estrogen is driving the growth and spread of ER- cancer but haven't yet discovered what it is. The good news is that doctors from the famed Dana-Farber/Harvard Cancer Center have joined with researchers from 2 other institutions to launch a 4-year study (beginning in 2003) that they hope will lead to designer drugs for ER- cancers. There's an excellent 5 page article posted on the Dana-Farber website if either of you would be interested. It describes the problem and their plan for this study. Here's the web address...
www.dfci.harvard.edu/res/research/ernegative.asp

tlmac said:

Researchers know that something other than estrogen is driving the growth and spread of ER- cancer but haven't yet discovered what it is. The good news is that doctors from the famed Dana-Farber/Harvard Cancer Center have joined with researchers from 2 other institutions to launch a 4-year study (beginning in 2003) that they hope will lead to designer drugs for ER- cancers. There's an excellent 5 page article posted on the Dana-Farber website if either of you would be interested. It describes the problem and their plan for this study. Here's the web address...
www.dfci.harvard.edu/res/research/ernegative.asp

I was told I could not take tamoxifen either because of the hormone receptors. It kinda leaves ya thinking oh well that's it for me. I wish there was something I could take that would stop me from worrying about it but the only thing I know best to do is to try to forget about it otherwise it affects my quality of life. After reading on this board tho I have lots of questions for my doctor when I see her the end of the month. One of which is related to the tamoxifen use.

I found a product that I think everyone should take, and I take it too. It's called THE GREATEST VITAMIN IN THE WORLD. I have a website that you can go to to find out some very interesting stuff about cancer, heart disease, diabetes, arthritis, indigestion, weight loss, and why it is proven to be the best in the world. It is made from whole foods, and is the most complete, highest grade, and most absorbable vitamins, minerals(amino acid chelated), enzymes, and probiotics known on the planet ALL IN ONE CHEAP BOTTLE!! It has everything you need to nutritionally support your entire body and it's all for $40 bucks. Some of the ingredients cost more than that for a single ingredient, not to mention that most of what you buy in the store can actually cause cancer, heart disease, and more. Just read the label, if it doesn't say words like carrots, wild yams, and other vegetable words that you know, then they are synthetic and they could be hurting you, and eveen if they're not they not doing you much good either. Please for you and everyone you know, share this website- it's www.dontforgettotakeyourvitamins.com/wiley15427

epgnyc said:

Unfortunately I too am in the estrogen/progestrin negative camp and I can relate to your worry about not having any further treatments to rely upon to reduce the chances of recurrence. I think of it as flying without a net - Tamoxifen, Arimidex, etc. being the net. I was happy to read about the study started at Edna Farber. It's about time the medical community spent some time and money studying ER/PR negative breast cancer. 20-30% of all breast cancer (that's us) may be the minority, but it's sure a heck of a lot of women. Just try to put the worry out of your mind and take satisfaction in knowing you've done everything you can to fight bc. Good luck to you.

I have estrogen negative breast cancer,too. I had a mastectomy, chemo for 6 months and 33 raditation treatments. 10 months later it reoccurred.(only 3 weeks ago) I work in a compounding pharmacy and have taken bio-identical hormones and lots of suppliments to keep my immune system strong. I survived the first treatment better than most, my doctor was very surprised at how well I did. I am convinced it is the hormones that are balanced with the bio-identical compounds, the additional suppliments and all the prayers people said for me. I am now on xeloda and so far so good. This is only my fourth day. I know most doctors do not even know about bio-identical hormones which is such a shame. They are the same as your body produces and are not well-known because pharmacutical companies can't make them. There are small studies but no big studies because of the major cost to do research. Most research is paid for by pharmacutical companies and aimed at selling their products. Progesterone, Not the synthetic progestins in regular hormone replacement, is the key to good health for many women. Please read the book What Your Doctor Won't Tell You About Breast Cancer by Dr. John Lee. You will be amazed at what you learn. It sounds a little far out and scary at first, but it is true. The environment plays a big part in our health as well as the way we eat. I have completely changed the way I eat and feel better than before my original diagnosis. I have every intention of beating this again and living a long and productive life. My prayers are with all of you. Do not give up and educate yourself - doctors can't know everything. They just don't have enough time and they are bombarded with information from pharmacutical companies about their products.