tamoxifen

bjhof · March 2004

Do you know, when the 5 years of taking this is over, do you just stop the drug or do you have to be weaned off? Is anyone out there taking anything after tamoxifen?

ksfc · March 2004

I'm only on my second year of tamoxifen, but my mom took it for 5 years and then just stopped when she finished the last prescription. She isn't taking anything else, but I do know there are women who are taking other drugs after tamoxifen - don't have the details though. Diane

krisrey · March 2004

Hi bjhof,
I have only been on tamox for 6 months, but I think that you can just stop it at the end of 5 years..it loses it effectiveness after that time. There is a brand new drug out that was in a study, but they stopped the study because of the really good results of the drug. It is a drug for women to take after tamox..I can't recall the name right now, but I am sure someone will know. This is really good news, especially for people like me that will still be young enough after the 5 year mark that could get their period back. Hope this helps a little..if i think of the name of the drug I will post it..it just escapes my mind right now...
Kris

cinder · March 2004

I took Tamoxifen for 5 years and when my 5 years were up the doctor told me I could quit taking it. I didn't have to take anything else, it was like a normal life without drugs. Now, 10 years later, my cancer came back and I am now taking Arimidex. Hope this has answered your question.

Cinder

tlmac · March 2004

ksfc said:
I'm only on my second year of tamoxifen, but my mom took it for 5 years and then just stopped when she finished the last prescription. She isn't taking anything else, but I do know there are women who are taking other drugs after tamoxifen - don't have the details though. Diane

The drug you're thinking of might be Femara. It's 4th generation aromatase inhibitor, like Arimidex, only supposedly even more effective.

ksfc · March 2004

tlmac said:
The drug you're thinking of might be Femara. It's 4th generation aromatase inhibitor, like Arimidex, only supposedly even more effective.

Thanks - that's it - I thought my chemo brain was gone, but I couldn't think of the name - LOL!Diane

nette · March 2004

cinder said:
I took Tamoxifen for 5 years and when my 5 years were up the doctor told me I could quit taking it. I didn't have to take anything else, it was like a normal life without drugs. Now, 10 years later, my cancer came back and I am now taking Arimidex. Hope this has answered your question.

Cinder

Cinder Im not very good at ALWAYS taking my pill but did it every make you sick. I puke every morning I take it and cant get anyone to believe me. If I quit taking it for a week or so I stop. I have tested and tried everything. any ideas or comments? anyone? I worry about it returning because of how I take it.... thanks

jeancmici · March 2004

nette said:
Cinder Im not very good at ALWAYS taking my pill but did it every make you sick. I puke every morning I take it and cant get anyone to believe me. If I quit taking it for a week or so I stop. I have tested and tried everything. any ideas or comments? anyone? I worry about it returning because of how I take it.... thanks

Your comment is interesting because it IS one of the first side effects listed yet few people get the vomiting problem.

Have you tried taking it with food - dinner - in the evening. Did your doctor have any suggestions? I found that one time when I got the generic version instead of Nolvadex - the brand name - the generic gave me a stomachache every day - no doubt in my mind that was it.

If you are post-menopausal you could switch to Arimidex which might be easier for you to take.

Jean

jeancmici · March 2004

nette said:
Cinder Im not very good at ALWAYS taking my pill but did it every make you sick. I puke every morning I take it and cant get anyone to believe me. If I quit taking it for a week or so I stop. I have tested and tried everything. any ideas or comments? anyone? I worry about it returning because of how I take it.... thanks

found this on Imaginis website

"Nausea or vomiting: Some women who take tamoxifen may experience nausea or vomiting while on the medication. Nausea and vomiting usually cease after the first few weeks on tamoxifen. Women who experience severe nausea and vomiting while taking tamoxifen should talk to their physicians about ways to relieve these symptoms"

AuthorUnknown · March 2004

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pattyrg · April 2004

I hope you are still checking this for replies.

Definitely, talk to your oncologist what do to next, even if it is just to stop. There are so many things being learned every day, you don't want to miss out on something that will improve your survival rate!!!

tamoxifen

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