Cholangiocarcinoma

medusax2
medusax2 Member Posts: 1
edited March 2014 in Rare and Other Cancers #1
My husband has bile duct cancer. Does anyone know that outcome of the proceedures? or the Prognosis if they remove the tumor?

Comments

  • tsb
    tsb Member Posts: 2
    #2
    If you would still like information please feel free to contact me. My mother was diagnosised almost 4 years ago and would be happy to let you know what we have went thru. We will help any way we can. Take care and god bless.
    Tammy
  • Jessalyn
    Jessalyn Member Posts: 6
    #3
    I don't know if I can be of any help, but my mother had cholangiocarcinoma...and if you have any questions or would like to vent, feel free to contact me.
  • dgjtex
    dgjtex Member Posts: 1
    #4
    tsb said:

    If you would still like information please feel free to contact me. My mother was diagnosised almost 4 years ago and would be happy to let you know what we have went thru. We will help any way we can. Take care and god bless.
    Tammy

    My father has just been diagnosed with cholangiocarcinoma it is intra hepatetic "Klatskins" Tumor. I would very much enjoy talking with you if your moms case was similiar
  • ciddli
    ciddli Member Posts: 1
    #5
    Jessalyn said:

    I don't know if I can be of any help, but my mother had cholangiocarcinoma...and if you have any questions or would like to vent, feel free to contact me.

    My father has recently been diagnosed with probable papillary cholangiocarcinoma and has had around 60% of his liver removed. The oncologist said that there is a high rate of reoccurrence (as high as 75%) but that we cannot do much about it except wait. If you know of anyone who specializes in this cancer, any treatment, or any other info., please let me know. thanks, C
  • dw01532
    dw01532 Member Posts: 1
    #6
    ciddli said:

    My father has recently been diagnosed with probable papillary cholangiocarcinoma and has had around 60% of his liver removed. The oncologist said that there is a high rate of reoccurrence (as high as 75%) but that we cannot do much about it except wait. If you know of anyone who specializes in this cancer, any treatment, or any other info., please let me know. thanks, C

    This is the first time I have looked into this board...and was surprised to see my daughter's message. In addition to her request above, my wife and I are looking for others who have intra-hepatic bile duct cancer who we can share experiences with. Please send email if interested. Thanks ciddi....love Dad
  • lilhill
    lilhill Member Posts: 4
    #7
    tsb said:

    If you would still like information please feel free to contact me. My mother was diagnosised almost 4 years ago and would be happy to let you know what we have went thru. We will help any way we can. Take care and god bless.
    Tammy

    i WOULD LOVE TO ASK YOU A FEW QUESTONS IF YOU HAVE THE TIME??
  • pburdick
    pburdick Member Posts: 2
    #8
    dw01532 said:

    This is the first time I have looked into this board...and was surprised to see my daughter's message. In addition to her request above, my wife and I are looking for others who have intra-hepatic bile duct cancer who we can share experiences with. Please send email if interested. Thanks ciddi....love Dad

    My uncle was diagnosed with Cholangiocarcinoma, and has been cured, but experiences pain constantly. He is very despondent, and beleieves he has only 4 years left to live. He desires to talk to anybody that has had Cholangiocarcinoma; just to see what to expect. If you have survived Cholangiocarcinoma, please email me at: pburdick@mccanntech.org. I would like to ask a few questions. Thank you.

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